- Results from Genetic Scenarios

Section	Date	Assignment	Comment
Do Amaral_750	11/13/2009 6:36:21 PM	Fragile_X	I personally am pro life. So the abortion debate is not something I discuss no matter what the terms are. As for what she should do, if she is that worried about passing on a bad gene or having the child with fragile x syndrome, the best advice is don’t try and conceive. God only gives you what he thinks you should have. And she may never get the little boy she wants or the child without the fragile x syndrome. So why take a chance of murdering a child just because he/she is not what you wanted. Babies are not something you order, they are god’s gift. So therefore if she can’t accept whatever is given to her, then I suggest she adopt a child. Because there are so many children in this world that need a good home, because their biological parents didn’t want them, couldn’t support them, had a drug habit, or had a terrible accident. So if you can’t accept whatever is given to you then you should always adopt a lovely child that needs a good home.
Do Amaral_750	11/13/2009 6:28:27 PM	Private_Woman	It is the woman’s right to tell them or to keep it private, I don’t agree with the choice of the secretively, but then again it’s her right. As for the clinic, and if they should tell; I personally would convince her in every way possible to tell them, as for they eventually will find out. As for what they should do? Well you really can’t say what you would do until you are put in that situation. If you tell without consent you open your clinic up to malpractice lawsuits, lose trust with your patients, among other things. So my best advice would be to try their hardest to convince the woman to tell her family, because they longer they go without being screened, the bigger their chances are of dying at an early age because it goes unnoticed for so long. But the sooner the woman realizes that they are going to find out eventually. The easier she might be about letting her family members know. There are pros for both sides, as she doesn’t want to tell, because she doesn’t want everybody in her life treating her like she is going to die tomorrow and pestering the living day lights out of her.
Do Amaral_750	11/13/2009 6:19:16 PM	Ignorant_Husband	I personally am a little confused with the scenario as he wasn't the father as he was not a CF carrier and now he is a CF carrier and what he should be told. Personally speaking as a father myself, I would want to know if the child was mine or not. Also I would want to know if I was going to risk endangering the life of another unsuspected baby. I could not intentionally bring a baby into this world knowing it would have a disorder, or take the chance just to prove my own happiness. As for my own personal situation, I was 17 years old when I got with my wife so long ago. She had a newborn at the time, which in turn she is now 7 years old. I am the only father she knows. And I often debate on telling her who her real father is when she is old enough to understand. But then I am left with the same feeling of what if she hates me. What if she holds it against me? But I still believe she has the right to know. As I believe this man should have the right to know about this child if it is not his. Let’s say things didn’t work out, It will only be devastating in the middle of divorce hearing to find out a child is his or not. But I do believe it should be his choice weather he wants to be in her life or not. Not something that should surprise him one day.
Do Amaral_750	11/11/2009 7:08:00 PM	Fragile_X	She should not abort either.
Do Amaral_750	11/11/2009 7:06:56 PM	Private_Woman	Yes, they could all die an early death
Do Amaral_750	11/11/2009 7:05:48 PM	Ignorant_Husband	Yes they should
Do Amaral_750	11/11/2009 11:10:43 AM	Fragile_X	She should not abort either fetus. She should definetly not abort the famale carrier fetus because the baby may come out fine. She should also not abort the mentally disabled fetus because God has a plan for everyone and she should accept the baby the way it is.
Do Amaral_750	11/11/2009 11:07:37 AM	Private_Woman	The counseling center should urge the women to tell her family so that they can start being screened or possible treated. They can't technically tell the other family members due to privacy laws.
Do Amaral_750	11/11/2009 11:05:17 AM	Ignorant_Husband	Both parents should be told at the same time, it would only be fair. Since the husband doesn't carry CF they should try to have another child because it will more than likely not carry the disease since only one parent has the gene and it is recessive.
Visitor	11/8/2009 1:10:04 PM	Fragile_X	i can understand her wishing to abort a mentally-disabled fetus especially if she will not be able to properly care for the child. however i do not think she should abort a healthy child. especially when she doesnt even know if her child would want kids.
Visitor	11/8/2009 12:29:07 PM	Private_Woman	since the woman does not want to inform them of her diagnosis they shouldnt tell her family. however since her mother died from this all of her children should be advised to get tested just incase. this way it doesnt risk her privacy but allows them to take preventative measures.
Visitor	11/4/2009 3:52:26 PM	Private_Woman	YES!!!! because if the family is going to be affected then the family should be told!
Visitor	11/4/2009 3:50:36 PM	Fragile_X	no there are alot of people that would love to adopt any kid!!!!!!!!!!!!!
Visitor	11/4/2009 3:49:36 PM	Fragile_X	NO!!!!!!!!!!!!!!!!!!!!!!!!! There are plenty of people who would adopt any kid
Visitor	11/4/2009 3:15:17 PM	Private_Woman	YES!!!! They should tell the family because when it comes down to the family being affected then they have the right to know!!!!
Visitor	11/4/2009 2:56:31 PM	Ignorant_Husband	yes i think they should tell the husband because he needs to know!!!!!!!!!
Visitor	10/27/2009 6:26:05 PM	Fragile_X	I think she should not be able to abort a child that is healthy but runs the risk of carrying the flawed gene she wasnt aborted.. i also think that she shouldnt abort a child that is mentally disabled after all that is a life.. and someone in this world would love to take care of the said child
Visitor	10/27/2009 6:20:32 PM	Private_Woman	Yes i do... Because this is a life threatening situation and in life threatening situations family does need to be notified. Not to mention this is something that the rest of the family could be suffering from but don't realize it. Not only is the mothers health and life at risk but so is the rest of the family's
Visitor	10/27/2009 6:17:06 PM	Ignorant_Husband	I think the father should be told that he is a CF carrier, and that the child is not his biological child.
McDaniel_007	10/27/2009 2:36:34 PM	Private_Woman	No, the genetics counseling center is under law to not divulge information about a patient. Though, it is wrong for the women to want to hide the fact that her family could also be in risk. If caught early enough, the condition could be stopped or defended against as stated. But, ultimately the GCC should stay out the issue
McDaniel_007	10/27/2009 2:32:32 PM	Ignorant_Husband	The Testing Center should be obligated to tell the Mother about the DNA evidence stating the husband is not the biological father. They should also divulge to the mother that the husband is not a CF carrier. It is the Mothers responsibility to inform the Father of her infidelity. Or, the Testing Center should not tell the Father about the heritage of the child, but should hint at it by telling the Father that He is not A CF carrier and it involves two carriers to produce a child with Cystic Fibrosis.
Visitor	10/26/2009 10:40:34 AM	Ignorant_Husband	I believe that the husband has the right to know because he wants to have more kids
Visitor	10/26/2009 10:38:47 AM	Fragile_X	In this situation I feel that the mother has the choice of what she wants to do with either fetus. But if that was me I wouldn't abort the healthy nor would I abort the mentally-disabled fetus.
Visitor	10/26/2009 10:32:18 AM	Private_Woman	In this situation I believe that the family has the right to know because what if one of the family memebers do have it then they could be more prepare.
Visitor	10/26/2009 10:29:46 AM	Ignorant_Husband	I believe that the husband has the right to know because he wants to have more kids but thinks that he will give it to the children in the future but the child with this disorder is not even his bilogical child.
Do Amaral_750	10/21/2009 1:42:37 PM	Fragile_X	I think that it should be her decision, but sadly enough this decision in absolutely linked to the ability to pay for the procedure. As such someone who would have a financially tougher time raising a disabled child would have no other choice but to have said child.
Do Amaral_750	10/21/2009 1:39:22 PM	Private_Woman	they should tell the woman that she needs to tell her family, for their own protection. and let her do it herself
Do Amaral_750	10/21/2009 1:37:19 PM	Ignorant_Husband	They should tell the husband not necessarily that the husband is not the father, but they should explain the recessive nature of the disease and let him figure it out for himself.
Visitor	10/21/2009 8:49:16 AM	Fragile_X	I am a firm believer that abortion is wrong on any level. The fetus is still a living human being. She is in the wrong for attempting to play god!
Visitor	10/21/2009 8:41:59 AM	Private_Woman	I think the family has a right to know on a certain level. They need to know that they have a chance to develope such a problem but that is it. She is an adult.
Visitor	10/21/2009 8:39:47 AM	Ignorant_Husband	I think the husband has a right to know but it is on the wife to do so! The doctor has a job to offer the best possible health and a job to prevent any harm he is not a counselor. No it is not the doctor's job to tell him!
Do Amaral_750	10/20/2009 11:40:24 AM	Fragile_X	I do not agree with abortion in most cases, but I do believe that all women have the rights to their our bodies and that it is the woman's choice what to do. She should do what ever she wishes.
Do Amaral_750	10/20/2009 11:38:33 AM	Private_Woman	The center has to keep the information private. They would be violating medical ethics in telling the family when they were not the ones who came in for tests. It is not the center's place to contact patients' families without their request.
Do Amaral_750	10/20/2009 11:36:08 AM	Ignorant_Husband	I think that they should tell the father that he is actually a CF carrier because that is what they have been asked to test for. They should not, obviously, tell the family about their original mistake.
Visitor	10/19/2009 3:27:20 PM	Fragile_X	I guess abortation is legal and she can abort if she may choose to do so not saying I agree but as for the carrier, I feel she is making a mistake on aborting a healthy baby which she may not even decide to have children of her own.
Visitor	10/19/2009 3:20:07 PM	Private_Woman	I do not feel the husband should have to be informed being the wife can tell him if she so desires. As for the four brothers and sisters and her two children I feel they should be informed for this could save their lives.
Visitor	10/19/2009 3:11:24 PM	Ignorant_Husband	I feel the couple should be explained the results together. I think the husband should be told because his DNA is involved. As for the biological father, I feel he should as well be informed, this could change his decisions in life when it comes to whom he may concieve a child with.
Visitor	10/19/2009 2:30:58 PM	Fragile_X	There is no reason that the woman should be able to abort a healthy fetus for no reason other than 'playing God.' If the baby is perfectly healthy but simply carries the flawed gene, she could just opt to not have children and the problem would be solved. In my opinion, the mentally- disabled fetus should not be aborted either, because many people with mental disabilities go on to lead a high quality life.
Visitor	10/19/2009 2:28:28 PM	Fragile_X	I don't think she should be able to abort a healthy fetus just becasue it is a carrier. She is a carrier herself, but is cabable have having healthy children, so why should a healthy fetus be aborted?
Visitor	10/19/2009 2:24:03 PM	Private_Woman	The usual patient privacy should be honored in this case, because she has not yet developed colon cancer. When and if she actually does develop the disease, her children should be tested due to the risk of their own health, and because regular screening can help to stop the formation of the disease.
Visitor	10/19/2009 2:20:37 PM	Private_Woman	They should tell the family, because her brother and sister are at risk. This is a very hard disease to treat and catch before it is to late. It is very likely her family has the same disease, and they should know. If she is thirty they are either older or younger, and they are likely to die by forty, so that only gives them a few years to treat the disease before it is too late.
Visitor	10/19/2009 2:15:55 PM	Ignorant_Husband	I believe that they should first start by privately telling the mother of the child. She should then be given the opportunity to tell her husband about the situation, however if she chooses not to tell him, the Testing Center has a responsibility to step in. The counselor should also get in touch with the biological father, because he should be informed before he decides to have more children.
Visitor	10/19/2009 2:11:47 PM	Ignorant_Husband	Yes, the mother should be told, because the father of the child could have other medical issues that could affect the childs health. If they don't tell her, other medical issues could come up without anyone knowing.
Visitor	10/19/2009 2:05:00 PM	Ignorant_Husband	I think the mother should be told privately and told she must tell the husband for the child's best interest. If the husband doesn't know and the child has an emergency then half of the family medical history and everything would be wrong. I also think that the biological father should be told, thats kind of an important think to know!
Visitor	10/19/2009 11:31:48 AM	Ignorant_Husband	yes because if i was the father i would be upset by the fact that the kid may not be mine.
Visitor	10/19/2009 11:21:04 AM	Fragile_X	I dont think that she should abort any fetus healthy or mentally disabled. I can understand why but I believe that abortion is wrong. Every child deserves the right to live.
Visitor	10/19/2009 11:18:17 AM	Private_Woman	This is a hard question to answer because the genetic counseling center does have the patient privacy protection and by telling the family they could risk their license i do believe. Even though I do believe that the family should know...i think that the councelors need to councel her into telling her family, so they could get checked out for this.
Visitor	10/19/2009 11:13:33 AM	Ignorant_Husband	I think that they should call both the wife and husband in and read them the results while they are both there.
Visitor	10/19/2009 11:05:10 AM	Fragile_X	in this case i belive she should not be able to aboth a healthy fetus that happens to be a carrier because she is making her daughters future for her if she does. and i do not think she should abort the mentally-disabled fetus because i beleive everyone should have the chance to see life.
Visitor	10/19/2009 11:02:44 AM	Private_Woman	in this case i believe they should notify the family of the medical conditon that they could possibly face so that they can get treatment if possible and so that they can know what they need to look out for in the future
Visitor	10/19/2009 11:00:35 AM	Private_Woman	in this case i believe they should notify the family of the medical conditon that they could possibly face so that they can get treatment if possible and so that they can know what they need to look out for in the future
Visitor	10/19/2009 11:00:02 AM	Ignorant_Husband	i believe that the husband has the right to know. for one the child is not even his and he thinks that if they have other children that they will have a chance of getting this disorder.
Visitor	10/19/2009 10:58:24 AM	Ignorant_Husband	in this case i beleive the man should be told that he is not the father and the CF carrier should be told that he is the father
Visitor	10/19/2009 10:26:06 AM	Fragile_X	An unborn fetus is an unborn fetus. the mother can do whatever she feels like, i cant really do anything to stop her. what king does in his castle is his business, but if it were my child i would not abort it.
Visitor	10/19/2009 10:23:24 AM	Private_Woman	No, they should discuss it with the woman first and if she permits them, then they can discuss it with the rest of the family.
Visitor	10/19/2009 10:21:08 AM	Ignorant_Husband	I think the center should set both parents down and have a long long discussion that would include who is the biological father all the way to the father now being discovered as a carrier of CF.
Visitor	10/19/2009 10:11:20 AM	Fragile_X	askngoasg
Visitor	10/19/2009 10:10:59 AM	Private_Woman	sdgasg
Visitor	10/19/2009 10:10:29 AM	Ignorant_Husband	fgjfgjf
Visitor	10/19/2009 10:08:02 AM	Fragile_X	If the baby is healthy no matter what it is they should keep it as long as it is healthy. I dont believe in abortion and think it should be done only when completely necessary.
Visitor	10/19/2009 10:07:11 AM	Private_Woman	they should tell the family because what if one of them to carry that gene. they should be able to know so that they could prepare themselevs for the future.
Visitor	10/19/2009 10:05:27 AM	Fragile_X	she should not abort the fetus, the fetus is healthy. she shouldn't abort the mentally-disable fetus either.
Visitor	10/19/2009 10:03:55 AM	Private_Woman	Although the patient is supposed to be able to have her privacy the test center should pass this information on to the family. The reason for this is because the family needs to know they could get colon cancer.
Visitor	10/19/2009 10:03:31 AM	Fragile_X	No there is never a reson to abort!
Visitor	10/19/2009 10:03:04 AM	Private_Woman	Yes the family has a right to know!
Visitor	10/19/2009 10:02:29 AM	Private_Woman	they should tell the family because if one of them might get it to and they have the right to know and maybe they could be more prepared.
Visitor	10/19/2009 10:02:21 AM	Ignorant_Husband	NO the woman should do it!
Visitor	10/19/2009 9:59:18 AM	Ignorant_Husband	I think the mother should be told privately, and then she should tell her husband. I also think the test center should tell the husband, so he knows that he could spread the disease.
Visitor	10/19/2009 9:01:53 AM	Ignorant_Husband	I think that that they should tell the husband because he neds to know, If they didnt tell him that the man isnt the far than he would be living a lie for the rest of his life. The genetic Counselor shouldnt be the one to tell him though, thats not his bussneiss or job title to do so.
Visitor	10/19/2009 8:22:58 AM	Ignorant_Husband	I believe the husband has all the right to know that he isn't the father of the child. The wife and husband should be told together, then the biological father should be notified.
Visitor	10/19/2009 7:35:34 AM	Fragile_X	This is a very hard situation. The healthy fetus, no I would not abort. This fetus may be a carrier, but that would be the daughter's right to decided if she wants to procreate one day. She may not even want children. To abort based on a situation that may or may not happen, is ridiculous. However, the mentally disabled fetus is a harder situation. For me, it would depend on the severity of the retardation. If the child would never be able to lead a normal life in any way, and would only live to be a certain age, then yes, I would abort. However, if the retardation was mild and the child's quality of life could be high, I would keep the baby.
Visitor	10/19/2009 7:32:10 AM	Private_Woman	I think the woman should be continually urged to inform the family. They are VERY at risk and telling them could save their life. If the mother still refuses, then the center should contact the family and, without diclosing the mother's information, let them know that since the grandmother died at 32, they might want to be tested.
Visitor	10/19/2009 7:29:22 AM	Ignorant_Husband	Yes, it is necassary for him to know that he is a carrier. This is useful for future children he may have. If by doing this, he is informed of the non-paternity, then so be it.
Visitor	10/19/2009 5:24:44 AM	Fragile_X	She just wants her child to not have to go through what she is. Its her future child and ultimately her major decision.
Visitor	10/19/2009 5:22:23 AM	Private_Woman	It isnt really in their place to tell the rest of the family. Unless they come and ask they have no obligation to tell them. It would be morally right but not professional.
Visitor	10/19/2009 5:19:32 AM	Ignorant_Husband	Yes, he has a right to know that hes not the babies daddy and also he does have a strand of CF. If they didnt tell someone they had a disease it would be pretty bad.
Visitor	10/18/2009 10:04:49 PM	Fragile_X	I dont think she should abort no matter what the baby will be as long as it is healthy. I say this because I dont agree with abortion and think abortion should only be used when completly necessary.
Visitor	10/18/2009 10:01:08 PM	Private_Woman	They should definantly tell the rest of the family because her family needs to know if they could potentially have the same condition.
Visitor	10/18/2009 9:58:12 PM	Ignorant_Husband	In this circumstance I believe everyone should be told. Honesty is the best policy. The mother should be told privatly, and she should do the right thing and tell her husband. The genetic counselor should tell the father, this way the mother doesn't have to. Also the father needs to no that he is a CF carrier.
Visitor	10/18/2009 9:54:03 PM	Fragile_X	a healthy fetus that is a carrier-no a mentally disabled fetus- it depends. she should examine if taking care and providing the extra needs that would be necessary is a possibility.
Visitor	10/18/2009 9:26:15 PM	Ignorant_Husband	yes he sould be told 1- his wife has been unfaithful and he sould know 2- they are not at risk of having another child with CF 3- he is not a carrier of CF and he needs to know this - just in case he were to remarry
Visitor	10/18/2009 9:22:58 PM	Private_Woman	i think to protect the patients privacy they could set it up as a preventative screening. that way she doesnt have to let them know of her own medical problems but the rest of the family is protected
Visitor	10/18/2009 9:21:50 PM	Fragile_X	I believe that abortion is WRONG no matter the situation there is always the chance of a micrle.
Visitor	10/18/2009 9:13:29 PM	Private_Woman	the women needs to get over it and relize that is can be cured and that the others need to know so that they can be screened as well why would she not want to keep her sisters and daughters safe!!
Visitor	10/18/2009 9:05:59 PM	Ignorant_Husband	yes because he needs to know 1- that his wife has been unfaithful 2- that he is not a carrier for CF 3- they can have another child that will not be at rish for CG
Visitor	10/18/2009 8:52:46 PM	Ignorant_Husband	because the biological father is a carrier i believe he should be contacted and told. the mother should be told that the husband is not the father but since the husband was tested he should be told by the counselor that he is not a carrier of the gene.
Visitor	10/18/2009 8:10:47 PM	Fragile_X	if it was up to me i would not because i believe that if the baby comes out with a diability then that is hat is supposed to happen and she dont have the right to take its life away jst because it isnt perfect but then again i could see the flip side she is giving one of her children a chance to have a normal life.
Visitor	10/18/2009 8:07:45 PM	Private_Woman	i totally think that they shuld tell the family yes there are privacy issues that could come into play but i thin that a possibly life or death situation is very important issue family members should know about.
Visitor	10/18/2009 7:14:11 PM	Ignorant_Husband	I think they should absolutely tell the husband he has a right to know about the child and the condition that it is in. He has a right to know granted it may cause problems with the family but his feelings should not change for the child.
Visitor	10/18/2009 3:49:14 PM	Fragile_X	I do not agree with the womans decision to abort ANY fetus, but ultimatley, when it comes down to it, it is her decision. If she wants to abort an affected child it may make more sense if she simply don't have the money and time to spend on the care of this child, but to kill a perfectly healthy baby is ludacris. It's just not right to think about making her daughters decision because her daughter may not be so particular, and may love her child despite any problems she may be born with, just as she should.
Visitor	10/18/2009 3:40:10 PM	Private_Woman	I understand that the patient privacy protection is a strict policy, therefore I wouldn't take it upon myself to tell the patients family, but I would explain to the patient how it would be benificial to her family to know the dangers of her disease and to be tested for the same type diseases, especially if there are ways to defend it. I would tell her this information in hopes that should would change her mind and inform her family about these type diseases.
Visitor	10/18/2009 3:27:48 PM	Ignorant_Husband	I believe that the non-biological father should be informed that he is not a carrier and is not that biological father of the child. If I were carrying this trait to possibly pass to my children I would want to be informed of it, therefore I would also tell the biological father.
Visitor	10/18/2009 3:11:07 PM	Fragile_X	I don't think she should be able to make the decision for someone else. That's taking a life and someone else's free will to choose what they want.
Visitor	10/18/2009 3:08:10 PM	Private_Woman	I think that the information should be told. It could help prevent an entire family from dying of a disease if prevented soon enough.
Visitor	10/18/2009 3:02:44 PM	Ignorant_Husband	I think that it's important that thr truth about this be told. In the healthcare field, they are bound by law to protect patient confidientiality. This is important, but can also cause problems. This information may hurt people emotionally, but it may help, too. I think both men should know the truth.
Visitor	10/18/2009 1:33:07 PM	Fragile_X	No the child should not be aborted for any reason that is murder!
Visitor	10/18/2009 1:31:24 PM	Private_Woman	Yes the rest of the family needs to be tested for the same condition.
Visitor	10/18/2009 1:27:23 PM	Ignorant_Husband	That is up to the wife to tell! The doctor has to explain the way things are and it is up to her to do the right thing!
Visitor	10/18/2009 1:25:02 PM	Ignorant_Husband	In this case, I believe that the mother should first be sat down and told that her husband is not the biological father of her child. Then it should be the mother's responsibilty to tell her husband that this child is not actully his own. The testing center should not have to do this, the mother should. After she has told her husband, she should then get in contact with the biological father and tell him that he is the father of the child
Visitor	10/17/2009 7:02:51 PM	Ignorant_Husband	I believe that they should tell the father so he knows for sure that the baby is not at risk. Even though the father may be upset with the situation, he will still accept the child and the child will be healthy.
Visitor	10/16/2009 9:55:01 PM	Ignorant_Husband	the husband has a right to know that he is not the father. if the counselor knows who the real father is, then he should be told that he carries the gene that contributes to cf
Visitor	10/16/2009 12:41:57 PM	Private_Woman	I think the family should be told. If there is anyway to treat or medicate this problem then it should be known to all and prevented if possible. Especially the children. They are innocent and the youngest, so maybe if they are regularly tested and the cancer is found early, they can get treatment.
Visitor	10/15/2009 6:07:40 PM	Fragile_X	No!, every child is a blessing no matter their disability. Some child are able to learn to do something after some help from medical doctors and nurses. Many of these kids are still able to learn just like kids that learn at a more normal pace. They are no different than anyone else, they just learn at a slower pace. Also, she should not abort the carrier or healthy fetus. Abortion in all situations is wrong.
Visitor	10/15/2009 6:02:27 PM	Private_Woman	The medical team have to follow secret information or confidental information from the family and friends. But they could ecourage the mother to tell the family, since it is such a serious condition all family members need to know. Cancer is a serious dieases that shouldnt be taken lightly.
Visitor	10/15/2009 5:57:47 PM	Ignorant_Husband	They should tell the husband, because every child should know who their father is. Also, cystic fibrosis is a serious condition for many children. Letting him know, he can help the child to stay healthly. In case the child lungs are filled with mucus he can do the proper techniques to help save him bioloigcal child.
Visitor	10/14/2009 8:58:50 AM	Fragile_X	I do not believe that abortion for any reason is murder. I do not think anyone should be aloud to play God and pick and chose who lives and who dies. I think that just because a child maybe a carrier for a gene or be mentaly retard is a stupid reason and excuse for killing a baby.
Visitor	10/14/2009 8:50:44 AM	Private_Woman	It is not the genetic counselor's place to disclose information with anyone but the patient. I think that they need to make her aware that by her telling her brothers, sisters, and children this information that it could very well save one or all of their lives. But in the end it is her place, choice and information
Visitor	10/14/2009 8:41:24 AM	Ignorant_Husband	I believe that both Mother and Husband should be told all information. They wanted to know what there chances are of having another child with CF are and they should be told. If they are smart they will put two and two together any way so i think they should have the right to know. The husband needs to know that he isn't the father and the real father has the right to know he has a child and for health reasons also.
Visitor	10/13/2009 7:50:54 PM	Fragile_X	I do not think that the woman should abort the fetus if it is healthy, or if it is mentally-diabled she shouldn't either.
Visitor	10/13/2009 7:43:38 PM	Private_Woman	Yes I believe the genetic counseling center should inform the siblings about the condition. So, if they want to get tested and treat it they should be able to. As for the woman that does not want her husband to know let her keep it from him. However i do think she should have her children tested just to be on the safe side.
Visitor	10/13/2009 7:39:13 PM	Ignorant_Husband	I think that the mother should be told in private. If she wants to tell the husband then she should, no one else. As for him thinking he has the recessive gene let him think, the mother knows if she wants to have a child with her husband that it isn't at risk for CF.
Visitor	10/13/2009 4:06:05 PM	Fragile_X	NOPE she should NOT abort the fetus simply because there are families out there who want to adopt kids retarded or not!!!!
Visitor	10/13/2009 3:41:16 PM	Private_Woman	They should tell the rest of her family because this gene and that way her sons and daughters will know in the future so they can too get tested.
Visitor	10/13/2009 3:29:59 PM	Ignorant_Husband	Yes I do think that they should tell the biological father.
Visitor	10/13/2009 11:35:59 AM	Fragile_X	No she shouldnt abort a healthy fetus, though I do understand her concerns. Her daughter may never even have children. I disagree with the decision to abort the mentally diabled fetus also.There are many mentally diabled people who have a great quality of life and so I feel that decision directly benefits the pregnant womans fears of the amount of time and difficulty taking care of a mentally disabled child. I see no difference in this and a fetus that may be physically challanged in my opinion either way abortion shouldn't be an obvious answer.
Visitor	10/13/2009 11:29:30 AM	Private_Woman	Yes, they should tell the family. When it comes a heath issue for the other family members it is no longer the womans secret to keep. It now concerns 6 people who could genetically have the same disease.
Visitor	10/13/2009 11:26:22 AM	Ignorant_Husband	I think the wife should be given the opportunity to tell the husband that the child isn't his child biologically. The testing center may not be aware of certain aspects of the marriage, as in private situations that have occured in the marriage. I also diagree with the testing center getting in contact with the biological father. The pregnancy could have occured during a rape that the woman didnt report, rape is the most known crime to go unreported.
Visitor	10/12/2009 8:04:36 PM	Fragile_X	I do not believe that the woman should abort the fetus whether it is a fetus who is a carrier, healthy, or the mentally-disabled fetus. I do understand that it is ultimately the mothers decision, but I do not think that it would be right to abort a fetus just because of a disability. I think when you are preparing to have a child you should make sure to prepare for risks such as these.
Visitor	10/12/2009 8:04:14 PM	Fragile_X	I do not believe that the woman should abort the fetus whether it is a fetus who is a carrier, healthy, or the mentally-disabled fetus. I do understand that it is ultimately the mothers decision, but I do not think that it would be right to abort a fetus just because of a disability. I think when you are preparing to have a child you should make sure to prepare for risks such as these.
Visitor	10/12/2009 7:49:14 PM	Private_Woman	I believe that the family should know especially if they may also be at risk, but the woman should be the one to tell them. The genetic counseling center should not contact the family with the results. The woman should tell her family when she feels it is the right time.
Visitor	10/12/2009 7:43:23 PM	Ignorant_Husband	I believe that the husband has the right to know he is not the biological father, but it is the wife who should tell him. The Testing Center should meet with the wife to discuss what they were able to conclude from the DNA.
Visitor	10/12/2009 5:14:28 PM	Fragile_X	Every woman should have that right. She should do what she feels is right for her and her childs future. While I wouldn't abort because of something like that, I don't know her full situation or ever been in any type of situation that resembles that. So I think it is her decision and hers only.
Visitor	10/12/2009 5:11:41 PM	Private_Woman	They should not tell the family. That is a lawsuit waiting to happen if they do. The mother would have her reasons for not telling. The counseling center should not tell.
Visitor	10/12/2009 5:10:07 PM	Ignorant_Husband	I think the biological father should definately be informed, I would want to be if I was a CF carrier. I also see both sides when it comes to the husband though. Legally the center can get into ALOT of trouble if they don't and the father eventually finds out. Also if the child gets very sick down the road, half of his families medical history will be wrong which could turn out very bad! But then again it may not really be the clinics place to tell something like that. I think the mother should be informed privately but told that the father has to know for legal issues and the well-being of the child, and if she doesn't want to tell him then they will. At least give her the chance, he would probably rather hear it from her than them.
Visitor	10/12/2009 2:14:36 PM	Fragile_X	there is no proof that even if she has a child with the gene that this child will then pass it on though this is a horrible dilemma the woman should she it is not the childs fault whether it is affected by the syndrome or a carrier therefore this child still reserves the right to live a life.
Visitor	10/12/2009 2:13:17 PM	Private_Woman	Yes, I feel as if the rest of the family has the right to know. Their health could be in danger as well. I think that each family member owns their own individual body. The family has the right to know that they need to be tested so that they are able to keep a close watch on the sickness if they are diagnosed.
Visitor	10/12/2009 2:07:24 PM	Ignorant_Husband	Yes, the husband should be told. No, I think that the parents should be told together. Obviously this is a problem that the couple should work together on. Yes, the biological father should know that he is a CF carrier, but not that the has a child that has it, unless he pushes to know the information.
Visitor	10/12/2009 2:06:54 PM	Private_Woman	despite patient privacy protection, the family has a right to know though the woman wants it kept a secret .if its possible her mother passed this disease to her its a very rational thought that her siblings and even children could also be affected maybe an early treatment could or discovery could help the doctors and patients know whats best.
Visitor	10/12/2009 1:59:59 PM	Ignorant_Husband	yes, the mother and husband should both be brought in together to hear about the results of the dna test, after being told there is not a chance for a second chid to inherit the disorder the counselor should then explain that according to the test the child does not belong to him .
Visitor	10/12/2009 11:17:42 AM	Fragile_X	i dont think she should have the right to make that chioce because it should have a chance to live. How would she have felt if her mom would have made that choice about her. i fill the same about the mentally-disabled. It to should have the right to live.
Visitor	10/12/2009 11:09:48 AM	Fragile_X	She should not have the right abort the fetus because it should have a chance to live, and how would she have felt if her mom would have made the choice to abort her. The same goes for the mentally-disabled fetus.
Visitor	10/12/2009 11:07:12 AM	Fragile_X	i think that she should not abort the fetus, because it is a living life. the mentally disabled fetus is capable of living a full and healthy life just as others with mental disabilities
Visitor	10/12/2009 11:05:24 AM	Fragile_X	She should not abort the healthy fetus, nor the mentally disabled fetus, because both have a right to live.
Visitor	10/12/2009 11:03:33 AM	Private_Woman	The family should be told because the four brothers and sister and two children could have the condition.
Visitor	10/12/2009 11:02:15 AM	Private_Woman	I think that the family should be told because they could change their mind and want to take preventative action in case of illness.
Visitor	10/12/2009 11:01:24 AM	Private_Woman	The family should be told because they have a condition that may result in death.
Visitor	10/12/2009 10:59:42 AM	Ignorant_Husband	That he does not have CF and that he is not the bioliogical father.
Visitor	10/12/2009 10:58:58 AM	Ignorant_Husband	Yes, the husband should be told that he does not have cystic fibrosis and that he is not the biological father.
Visitor	10/12/2009 10:58:42 AM	Ignorant_Husband	yes the husband should be told that hes not the biological father.I think the mother should be told privately, and then the center should tell the husband because it is his right to know. The genetic counselor should get in touch with the biological father because he could possibly need to know, in case he started a new family.
Visitor	10/12/2009 8:45:23 AM	Fragile_X	Yes, she should be able to abort the healthy fetus and the mentally disabled fetus because there is still the chance it will have it.
Visitor	10/12/2009 8:43:21 AM	Private_Woman	Yes, i think they should tell the family so that they can be tested as well.
Visitor	10/12/2009 8:40:58 AM	Ignorant_Husband	Yes, i think the husband should be told about the nonpaternity findings.
Visitor	10/12/2009 8:35:15 AM	Ignorant_Husband	Yes the husband should be told. He has the right to know that if he has future children he will not contribute to any deformities.
Visitor	10/3/2009 10:28:56 AM	Fragile_X	I believe that every woman has the right to make her own decision about abortion. I understand her thinking about not passing the gene along and feel she is responsible in that way. However, she should be held responsible for this child as well by taking care of her and not becoming pregnant in the future.
Visitor	10/3/2009 10:26:33 AM	Private_Woman	No they should not tell the family. There is no contagious disease involved. However, this woman is being selfish not to give her family an early chance of being tested and being able to monitor their personal situations.
Visitor	10/3/2009 10:21:13 AM	Ignorant_Husband	Yes they should tell the husband. So if the husband would like to have children in the future (maybe not with this wife) he would know he was not a contributing factor to a child having CF.
Do Amaral_750	10/2/2009 3:03:26 PM	Private_Woman	This is a hard one. If I was one of the sisters or brothers or even one of the children, I believe that I have the right to know. In the same instance she has the right to her privacy. I think that the physician should counsel the woman and explain to how important it is that her family to be checked for same condition and the possible fatality it could posess.
Do Amaral_750	10/2/2009 2:57:19 PM	Ignorant_Husband	Yes, I think that the mother should be given the option to tell him herself but with the understanding that he must be told. I feel that the father needs to know so that he will not worry about fathering another child. I also believe that the biological father needs to know, because of possible future children.
Visitor	9/30/2009 4:29:54 PM	Fragile_X	I do not think she should abort the carrier/healthy fetus nor the mentally-disabled fetus. Everyone should have the choice to live.
Do Amaral_750	9/30/2009 4:27:14 PM	Private_Woman	No, I do not think the genetic counseling center should disclose the test results because of HIPPA regulations. However, I do think the family has the right and need to know but that is not the counseling centers responsibility it is the wife/mother's responsibility.
Do Amaral_750	9/30/2009 4:23:15 PM	Ignorant_Husband	I think the testing center should conact the mother privately and the biological father should be contacted privately as well. I think the person should have the right to know when important matters arise such as this one.
Do Amaral_750	9/30/2009 1:39:17 PM	Fragile_X	I think she is crazy to want to abort any fetus. In my personal opinion, it's wrong to commit murder...Forget what science has to say, God still works Miracles...all you have to do is ask... From my own personal experience, when the doctors has done all that they can do, God steps in...I was told that I could not have kids; long story short... Today, I have a beautiful 10mos old healthy baby boy, my Miracle.
Do Amaral_750	9/30/2009 1:35:40 PM	Private_Woman	I think that if the familiy is at risk too, then they should be told. The mother should not keep such a secret from the ones they love...when she starts making frequent doctor visits, getting sick, the family will find out. Save yourself the heartache and tell them.
Do Amaral_750	9/30/2009 1:33:10 PM	Ignorant_Husband	Yes, the husband has a right to know that is not a carrier for CF, privately. As for the mother, she should be informed privately. Then each can make the decisions to consult together with the genetic councelor...
Do Amaral_750	9/28/2009 5:14:37 PM	Fragile_X	I do not personally feel that abortion would be the choice for me personally, but I do believe that we should have the right to make that decision for ourselves and a doctor or anyone else does not have the right to decide for us. She has the right to abort either of the fetuses if she chooses.
Do Amaral_750	9/28/2009 5:11:12 PM	Private_Woman	No the testing center should not disclose this information to the rest of the family because it is against the privacy laws. I assume that the rest of the family is aware that her mother died from colon cancer and have the opportunity to have themselves screened. I still think that you own the right to your own genes.
Do Amaral_750	9/28/2009 5:07:49 PM	Ignorant_Husband	No, I do not think that they should tell the father. The mother should have the opportunity to tell him herself. No, I do not think that they are colluding with the mother, they were not testing for paternity. I do however think that he should be told that he is a carrier of CF to make both the mother and father aware of the chances for the disease in their future children, if they decide to have any.
Visitor	9/28/2009 10:25:55 AM	Fragile_X	She should not abort either one
Visitor	9/28/2009 10:24:59 AM	Private_Woman	I dont think Hippa laws would allow the center to notify the family unless the patient gave them permission.
Visitor	9/28/2009 10:23:28 AM	Ignorant_Husband	I do think the mother should be told that the child has a different father, but not the husband. That is up to the wife. It is also up to the wife to tell the biological father.
Do Amaral_750	9/24/2009 6:22:32 PM	Fragile_X	I am of the opinion that all children are a gift from God. He alone can give and take life. As difficult as this decision would be for her, I would hope she would choose life.
Do Amaral_750	9/24/2009 6:19:44 PM	Private_Woman	I do not think the family should be notified against the patient's wishes. To do so would violate her personal rights. Hopefully, her brothers and sisters are already being screened, and awareness for the children can come from them if the mother continues to keep her secret.
Do Amaral_750	9/24/2009 6:15:19 PM	Ignorant_Husband	Morally, I think both the mother and the paternal father should be told the test results. Perhaps the mother should be told first....to prepare herself. However, I am not sure if the Testing Center is legally obligated to do so. I do not think the counselor should have to track down the biological father, the mother may not even know who he is.
Visitor	9/3/2009 3:34:41 PM	Fragile_X	I personally do not think that she should abort the child because she may be a carrier. What the her daughter never decides to have children and even so she could be perfectly healthy and then marry or have a child with a man that is a carrier of something himself. I think it would be up to the woman to decide what to do about the mentally-diabled fetus. Every person is different and everyone does not have what it takes to take care of and support a mentally disabled child. I would think this decision is up to her and her religious views. Everyone is different and I don't think anyone person and decide for someone else.
Visitor	9/3/2009 3:26:34 PM	Private_Woman	I think the family should be sent information about the disease that states if anyone in their family has suffered complication they may want to be tested. Give them test information as well as test sites. I don't agree with the woman but her medical information is private and can't be shared due to hippa
Visitor	9/3/2009 3:19:48 PM	Private_Woman	Since the woman's mother died at 32 I think the family should be contacted about early screening and this could be done without involving the woman and why she would not want her family members to be tested. I would think that if she wanted to be tested to possible save her life she would want the same opportunity for other memebers of her family, but since sharing her medical information cannot be done I would think that they should be at least have a pamplet explaining they might be at risk and what they could do to see and advise of testing and sites to be tested.
Visitor	9/3/2009 3:19:37 PM	Private_Woman	Since the woman's mother died at 32 I think the family should be contacted about early screening and this could be done without involving the woman and why she would not want her family members to be tested. I would think that if she wanted to be tested to possible save her life she would want the same opportunity for other memebers of her family, but since sharing her medical information cannot be done I would think that they should be at least have a pamplet explaining they might be at risk and what they could do to see and advise of testing and sites to be tested.
Visitor	9/3/2009 3:11:41 PM	Ignorant_Husband	I think that the mother should be told that she is a carrier and that she and her husband are not at risk. Since the topic of information concerns CF I don't think I would talk about the paternity findings. Also because of Hippa laws I don't think you could talk about the biological fathers medical information with either of them.
Visitor	8/20/2009 12:18:23 PM	Private_Woman	YES THEY SHOULD TELL THE FAMILY BECAUSE SINCE SHE HAVE KIDS IT COULD RUN IN THE FAMILY AND THEY COULD DEVELOP IT TOO!
Johnson_750	5/26/2009 5:50:31 PM	Fragile_X	I believe it's her choice and if she wants to have an abortion then I think she should. Because what if she has it and then she's not the best care giver she could have been even if it wasn't affected with the syndrome. Yes, it's terrible thing to do but if she doesn’t' want the child then she doesn't want it...simple as that. If I was having the child, there would be no way I could have an abortion...it's taking someone's life for no reason. But if she doesn't want to pass it on and not deal with the situation right then maybe it's best for her to abort it.
Johnson_750	5/26/2009 5:44:08 PM	Private_Woman	I think it's against the law to disclose information about the patient to others. But I do believe they have a right to know about the health condition. I mean it's their life at stake and why not detect this at an early stage. Maybe she feels embarrassed or doesn't want to deal with the situation maturely but it's terrible if she doesn't want to let her husband, brothers and sisters, and her children know about it. Even if they don't have the condition they still need to know for just a family record history. What if their kids have it and so on.
Johnson_750	5/26/2009 5:39:25 PM	Ignorant_Husband	I think the Mother should be told privately. I don't think it's the responsibility of the testing center to tell the husband that he is not the biological father of the child. But the testing center must tell on the caregivers. Yes, the genetic counselor must get in touch with the biological father. But I think it’s the responsibility of the biological mother to tell her husband. She's the one who got herself in this mess and she needs to confront the problem.
Johnson_750	5/24/2009 11:16:49 PM	Fragile_X	I do not think that the woman should abort a fetus simply because it carries the same gene for Fragile X syndrome that she carries herself. If her mother had made that decision, she would not be alive herself. That being said, I do believe that all women should have the option of abortion if it is necessary, so if another woman can abort a fetus simply because she does not want it, then this woman should have the same right, even though I personally do not think her cause if justified.
Johnson_750	5/24/2009 11:11:13 PM	Private_Woman	I do think that the rest of the siblings and the two children (depending on their age) should be warned and tested for this condition since they are also very likely to have it. The husband should not be told unless the wife chooses to inform him, because he is not at risk of having the condition. Only those family members at risk should be told for their own safety. The woman does not have the right to withhold information from her siblings if it is crucial to their own health and well being.
Johnson_750	5/24/2009 11:06:18 PM	Ignorant_Husband	I do not think that the counselor should tell the husband. I do think that the counselor should tell the mother. Clearly, there is prior information that the counselor does not know that the mother does, and it should be at the mother's discretion to decide whether or not the husband finds out. The biological father should be contacted if possible. He should not know the identity of his child or its mother, but he should be made aware that he is a CF carrier in case he has more children in the future.
Johnson_750	5/22/2009 9:21:18 AM	Ignorant_Husband	The wife and husband should each be told that the risk for CF is 0%, and the explanation about the recessive nature of CF should be forthcoming. However, the health care provider should not say anything about infidelity in case some data from the tests is invalid; let the husband put the pieces together himself. I am not so sure about contacting the biological father because it is bound to open a can of worms. He would likely be curious as to how they found out. It's also a possibility that he could not be found. This situation is very precarious and would likely solicit the healthcare provider to consult with a professional counselor before doing anything at all.
Johnson_750	5/21/2009 6:26:23 PM	Fragile_X	The mother has the right to do what she wants to do with her child. I personally feel that abortion is wrong in either case. If she doesn't want the child she can put it up for adoption. I would not have a child aborted if I were in her place.
Johnson_750	5/21/2009 6:19:33 PM	Private_Woman	Due to patient confidentuality the information should not be told to family members. The family should already be aware that colon cancer runs in the family do to the patients mother's death.
Johnson_750	5/21/2009 6:12:30 PM	Ignorant_Husband	I feel that the biological father should be contacted; however, the center should contact the mother first to get her input on how to handle the situation. The testing center does need to let the father know he is a carrier of the gene for future fertility reference. I feel that the mother has the right to explain the child in her own way. My suggestion for the testing center would be to inform the mother first and give her a certain about of time to talk to the biological father before the center calls him.
Johnson_750	5/21/2009 5:13:13 PM	Fragile_X	It depends on the legality of abortion where the gal is having it done. Other than that we live in a nation where you have the right to make your own decision. If she feels that an abortion is the right route to take she has her rights to make that decision.
Johnson_750	5/21/2009 5:03:20 PM	Private_Woman	The family should not be told. It is the woman's wish to keep her condition to herself though negative outcomes might occur. We have the right to free speech in this country and sometimes that speech is saying nothing at all. I will also refer back to all the HIPAA laws and what they say about confidential information.
Johnson_750	5/21/2009 4:59:06 PM	Ignorant_Husband	It depends did they come in together as a couple to do this test or did the mother just come in to have the test done by herself. If the woman came in by herself to have the tests done she would sign a HIPA form. So the doctors nurses or therapist can't exchange any information with the father or with anyone else for that matter without breaking the law. So I would say let a sleeping dog lay. No one is contesting the paternity of the child so why bring it up.
Johnson_750	5/21/2009 2:58:15 PM	Fragile_X	I disagree with abortion. God wills each and everyone of us with his own purpose and who are we to play God and destroy something/someone he created. We all have our own purpose in life to glorify him. If she is so concerned about the matter she shouldn't have children.
Johnson_750	5/21/2009 2:54:39 PM	Private_Woman	No! The whole reason for the HIPPA Law is to protect the patient seeking medical attention. This law prevents various types of discrimination. If each of the parties were notified, it could possibly prevent obtaining insurance, medical or life. The right thing would be for the woman to tell all involved/affected family members. However, she does deserve privacy. She may not want the husband to know for fear of him being to overprotected, leaving, etc.
Johnson_750	5/21/2009 2:49:56 PM	Ignorant_Husband	I have several opinions to the situation. If the married couple have sought out this procedure together, shouldn't the results be discussed with them together? These findings could be detrimental to the marriage. If I were the counselor, I believe I would explain to both parties what my findings are due to the nature of medical concern for the present child at hand. Furthermore, how could you notify the biological father when he is currently nonexistant? Once the biological father has been confirmed, he should be notified that he is a CF carrier. All parties involved have the right to know of all medical findings related to each pertinant person.
Johnson_750	5/21/2009 1:53:13 PM	Fragile_X	The woman should not have a right to abort a healthy fetus that happens to be a Carrier of the Fragile-X syndrome. Who's to say the gene will then continue on through her daughter to the next generation? The future is impossible, so she would be destroying a possibly healthy child's life. Also, even if a fetus is mentally-disabled, it is still a human being. It seems almost selfish for the woman to make the choice to rid herself of a child that may be mentally-retarded but is still a human being.
Johnson_750	5/21/2009 1:49:23 PM	Private_Woman	I believe the testing center should disclose the results to her family because they have a right to be alerted to any dangers they could have in their own health as a result of this genetic disease. However, if the woman does not want to have frequent screenings (or removals) of the polyps, then that should be her choice. It seems almost cruel to keep the results a secret from her family since they're at risk of both losing her, their family member, as well as having the disease themselves.
Johnson_750	5/21/2009 1:32:57 PM	Fragile_X	I personally think that abortion is wrong but i also believe in pro-choice. So while i do not think she should have an abortion especially if it is only a carrier it is the womans choice. I think in general it is irresponsible of a person to try and get pregnant, especially if that person knows they have traits that effect health that can be passed on and do not want to pass on those specific traits.
Johnson_750	5/21/2009 1:27:12 PM	Private_Woman	I believe that the testing center should not tell the woman's family with out her knowledge. Even though i would personally tell my family in this kind of situation, it is the womans choice to tell who she wishes. I do think that it is selfish to not tell her children who could be at a risk later in their lives.
Johnson_750	5/21/2009 1:23:53 PM	Ignorant_Husband	On the basis of the paternity findings i believe that it is against certain ethical codes for the person who has been fathering the child to be informed, but the mother should be told. It is not the testing centers responsibility to tell the father. I do think that the biological father should be contacted by the testing center to be informed that he carries the CF recessive gene.
Visitor	5/21/2009 12:22:10 PM	Fragile_X	I think she should keep the carrier/healthy fetus as well as the mentally-disabled fetus. I stand against abortion. The mother is making her future child's decision and that is not fair in my opinion.
Visitor	5/21/2009 12:19:00 PM	Private_Woman	I think the genetic counseling center should protect the patient's privacy by keeping the test results confidential. This is a bad situation because other members of her family could possibly suffer from colon cancer and it could be prevented if they knew they are at risk. However, I think it is up to the lady to tell her family, not the genetic counseling center.
Visitor	5/21/2009 12:15:58 PM	Ignorant_Husband	I think the husband should be told abou the paternity findings. I also think the mother should be told privately so she will have time to decide how she wants to break the news to her husband. I think the testing center should also tell the husband about the findings but allow the mother to get the news first. The genetic counselor should also get in touch with the biological father to inform him that he is a CF carrier.
Johnson_750	5/21/2009 6:44:23 AM	Fragile_X	I personally am Pro-Choice on this particular issue. I beleive in god and a right to life. I think abortion should be for rape victims, underage pregnacies, and should also be limited, so no i personally dont think she should be able to play games like that with her body or the life of her unborn child. Abortions can leave women unable to bear children. She could miss out on the best oppurtunity in any of our lives. I know this is controversial thinking and think this question should be taken out of future assignments because this is an on going fued in religious communities, but this is just my opinion. Keep in consideration im a male and have no idea what the opposite gender will think of my opinion.
Johnson_750	5/21/2009 6:36:28 AM	Ignorant_Husband	I think everyone should be notified. In cases of perternity it could cause an uproar but it is not fair to either of the innocent parties. They are living a lie. It can still work out for this family. It had to be known there was a chance. The biological father should also be notified and informed in case he would like to have his next companion tested for the same thing. He should also be put on child support and have oppurtunities to see his child and be the father he has the oppurtunity to be.
Johnson_750	5/21/2009 6:31:17 AM	Private_Woman	i think blood should be drawn from each of the children and family members to check DNA makeup in order to see if the gene is recesive. If it is dormant in all of them privacy should apply, yet if it is primary in more family members DNA it should be a family issue. Genetically speaking someone should not be allowed to hide something from someone that might share the same trait through inheritance because that would entail the doctor denied help to someone that deserves that attention because of one persons selfishness. Thats just my opinion.
Johnson_750	5/20/2009 8:49:51 PM	Fragile_X	I don't think she should make her daughter's decision. She should let her daughter make that decision in the future. If she knows she is going to have a mentally desabled child, I do think it is her decision to abort the baby.
Johnson_750	5/20/2009 8:45:47 PM	Private_Woman	Yes. They are witholding vital information that could prevent their deaths. The family needs to know.
Johnson_750	5/20/2009 8:42:50 PM	Ignorant_Husband	They should just tell him that he is not a carrier, and if he is smart enough to realize that the child is not his, then good for him.
Johnson_750	5/20/2009 6:17:50 PM	Fragile_X	This seems to be more of a moral question than a genetic one, and I feel very strongly that a woman should not abort a fetus for any reason. Even if the fetus is a carrier or will be mentally disabled, the woman should still deliver the baby.
Johnson_750	5/20/2009 6:14:21 PM	Private_Woman	This is a tough decision, but I feel that the center should probably tell the family, since their own health might be at risk. The woman herself really shouldn't make health decisions for the rest of her family. Maybe the center could tell the family members about their risk without disclosing the exact diagnosis of the woman. Either way, I do feel that it would be best for the family to learn about their potential to develop the cancer.
Johnson_750	5/20/2009 6:10:52 PM	Ignorant_Husband	The center agreed to test the couple to determine their chances of having another child with CF. So the center has an obligation to tell them that the chances are zero. If that means telling the couple that the husband is not a carrier, then that's what the center should do. That action will, in effect, tell the husband about the non-paternity findings, but it should still be done, if for no other reason, then at least because of the fact that the center agreed to do the testing in the first place.
Johnson_750	5/20/2009 1:31:47 AM	Ignorant_Husband	The husband should be told about the findings since he took the liberty of being tested for CF. To allow only one parent to know the results of the tests may result in a law suit or other legal action taken against the Testing Center.
Visitor	5/13/2009 5:29:50 PM	Fragile_X	I don't believe in any type of abortion. I think that every child should be given the chance to live and have life.
Visitor	5/13/2009 5:28:32 PM	Private_Woman	Yes the family should be aware of her condition and possibly the risk of their generations to come. It could save their life's of their childrens.
Visitor	5/13/2009 5:26:50 PM	Ignorant_Husband	Yes the biological father should know because he has every right to know about this situation.
McDaniel_007	4/13/2009 10:42:20 PM	Fragile_X	Absolutely not. God does not put more on us than we can handle.
McDaniel_007	4/13/2009 10:38:54 PM	Private_Woman	I do not feel that the genetic counseling center should disclose the results of the tests. I do feel that it is up to the patient to inform the family. I feel that it is up to the counseling center to adequately inform the patient and to stress to the patient how important it is for her loved ones to be tested as well, for their own well being.
McDaniel_007	4/13/2009 10:33:46 PM	Ignorant_Husband	Yes and no. I think they should explain the medical standpoint of the genetics and the rest would be up to the couple to figure out. If something should happen to the wife in this situation, the husband should know that he is not a carrier in the event that he wanted to have more children in the future. I also feel that the biological father should be told.
Philips_005	3/30/2009 12:30:53 AM	Fragile_X	This is a very hard decision to make but I believe that it is virtually the woman's decision whether or not she wants to abort the fetus or not. She is the one who is giving birth so she should decided whether or not she wants to pass it on to her daughter.
Philips_005	3/30/2009 12:27:59 AM	Private_Woman	I believe that the test results should be shared with the rest of the family because they are at risk also. It's not fair to them that they do not know and the mother does. This is a life threatening medical condition that should not be kept private.
Philips_005	3/30/2009 12:23:16 AM	Ignorant_Husband	I believe that the mother should be told privately and see if she wants to disclose this information to the husband. I do believe that the counselor should get in touch with the biological father to let him know that he is a CF carrier because he could keep passing on the disorder if he has more kids.
Philips_005	3/30/2009 12:01:09 AM	Fragile_X	I personally dont believe in abortion at any level. Regardless of it having a disability, or a carrier of the syndrome it is a human with a heart beat and soul, you cant just kill someone because you dont want that certain type of child.
Philips_005	3/29/2009 11:58:58 PM	Private_Woman	I think that they should tell the family since everyone is in risk except her husband. Every one else should also have the ability to be able to get tested constantly for this condition. If they dont they are just saying that they dont care that they can die from something that could be detected.
Philips_005	3/29/2009 11:56:13 PM	Ignorant_Husband	I think that they should tell the husband so that he wont always have over his head that all of his children will come out with the CF Carrier,and he needs to know that he isn't the real father of the child but instead, will just father the child.
Visitor	3/25/2009 8:02:42 PM	Fragile_X	Neither of the fetus's because every child should have a chance regardless of its disability or its gender. There is also a possibilty that her child could be perfectly fine and healthy. Abortion should not be option to a child who has a disability.
Visitor	3/25/2009 7:56:59 PM	Private_Woman	Yes the family should know because it could help them to find out about their own health and their childrens health. She should want to protect her family and her children from finding out of this disease to late.
Visitor	3/25/2009 7:35:35 PM	Ignorant_Husband	Yes they should tell the father because it's only fair for him to know the truth and who know's he could possibly want to raise the child regardless. But either way he still has every right to know the truth.
Philips_005	3/24/2009 12:36:58 PM	Fragile_X	Well i think that the fetus should not be aborted because of the syndrome. She can not help that her child has the syndrome its in her blood. So her aborting the baby wont do any good because its in her genes and the next child could possible have the gene or the syndrome. Also this could cause problems for her body.
Philips_005	3/24/2009 12:08:34 PM	Private_Woman	Well I think the family should know but it is the law to keep the woman's information private. So my answer is to keep it private but influence her that this is an important issue and needs to be brought to the family attention.
Philips_005	3/24/2009 12:04:28 PM	Ignorant_Husband	I think the the center should speak to the mother at a differnt time to talk about the husband not not being the father. Then proceed to find out who is the father and get information from him.
Visitor	3/22/2009 11:45:46 AM	Fragile_X	Abortion is a nation and regional question. The difficulty I have personally with this question makes it impossible to answer either yes or no.
Visitor	3/22/2009 11:43:54 AM	Private_Woman	The center should inform the rest of the family. The right to know about potential dangers to family is more important than the patients privacy. No one owns the right to genes.
Visitor	3/22/2009 11:40:51 AM	Ignorant_Husband	I belive the mother should be told privately. the testing center is not colluding with the mother against the father, becauce this is a moral question that should be addressed by the mother.
Johnson_750	3/20/2009 2:32:54 PM	Fragile_X	I don't believe she has the right to terminate pregnancy just because the female child be a carrier. I mean who knows by the time the female child becomes able to have children their might be a cure for this.
Johnson_750	3/20/2009 2:30:26 PM	Private_Woman	I do believe in patient confidentiality but at the same time we are talking about the possibilty of saving her kids lives so I believe in this instance that i would tell the family so that they could try to take some preventive measures.
Johnson_750	3/20/2009 2:27:23 PM	Ignorant_Husband	I believe that it would be in the best interest of all parties if the truth was told no matter how painful because we are talking about bringing another child into this world and it wouldn't be fair knowing the child could possibly be born with complications. Also the biological father needs to be told so that if he is trying to have children he will know that he ia a carrier for this .
Johnson_750	3/20/2009 1:44:52 PM	Ignorant_Husband	I think that the information that the husband is not the biological father should be told to both husband and wife. I also think that the biological father should know, if they can contact him, that he is a carrier of cystic fibrosis.
Johnson_750	3/20/2009 10:36:40 AM	Fragile_X	She should not ABORT either fetus. This was her choice to get pregnant and carrying the gene does not guarantee that the fetus will be affected. How could she live with herself thinking that she may have killed a pefect child? This is awful and if she was willing to get pregnant then she should take responsibility, and love her child no matter how it comes into the world!
Johnson_750	3/20/2009 10:33:11 AM	Private_Woman	The family SHOULD be told, but in this case CAN'T be told. HIPAA rights absolutely prohibit the disclosure of personal information to anyone other than a legal guardian or spouse. Also, the woman has flat out asked for the family NOT to be told, which adds to the situation. The woman should choose to tell her family, but it is her choice, and there is nothing the center can disclose without permission of the patient.
Johnson_750	3/20/2009 10:26:55 AM	Ignorant_Husband	I think that the mother should be told in private--because she may not know that the alleged father isn't the biological father. If she is told in private, then she can then choose to discuss the issue with her husband. The test was not a paternity test, therefore the testing center doesn't have the right to disclose information that isn't appropriate to the reasons that the DNA test was given in the first place. The genetic counselor has no right to get in touch with the biological father, and therefore all decisions about this case should be left up to the mother.
Johnson_750	3/20/2009 8:22:32 AM	Fragile_X	Unfortunately I belive she does have the right to abort any child/fetus she wants, thats just her given right here in the US. Do I feel as thought his is right, no, but thats the harsh reality of the freedoms we are granted here in the USA.
Johnson_750	3/20/2009 8:19:38 AM	Private_Woman	Once again, the counselors have a professional obligation for the well being of their clients (at least one would think), so yes he/she should enlighten the family as to the situation. Plus why would anybody in their right mind not want to warn their family about potential health threats, especially when they're pretty realistic concerns?
Johnson_750	3/20/2009 8:15:31 AM	Ignorant_Husband	Of course, after all there could be serious rammifications to the marriage as well as other variables that may have never been disclosed. I also believe that the biological father should be made well aware of the situation due to him being responsible for the well being of his child.
Philips_005	3/18/2009 2:02:24 PM	Fragile_X	I think that a person should not abort a fetus unless there is a high risk of either the mother or the child dying. So, I believe that whether the child will have a mental disability or be a carrier of the disease, she should still have the child and love it like any other child. Ultimately, however, the decision would be up to the mother and it seems that her mind is made up on what she would do.
Philips_005	3/18/2009 1:57:38 PM	Private_Woman	In my opinion, the woman is being selfish by not letting her family know since they could be at risk of the disease as well. I don't understand why the woman would want this information a secret from her family in the first place since keeping it a secret could be hazardous to their health.
Philips_005	3/18/2009 1:53:44 PM	Ignorant_Husband	I believe that they should let the husband know about the issue at hand as well as let the biological father know that he is a carrier of CF. The husband should know that he is not a carrier of the disease and it is not his fault that the child has Cystic Fibrosis. However, it is up to the counselor's idea of ethics about whether they should get in contact with the husband.
Visitor	3/17/2009 12:16:52 PM	Fragile_X	i believe its her choice
Visitor	3/17/2009 12:15:46 PM	Private_Woman	No because she isnt allowed to do that
Visitor	3/17/2009 12:11:59 PM	Ignorant_Husband	I believe that no one should be told because its confidential.
Visitor	3/16/2009 10:30:36 AM	Fragile_X	In my own opinion I do not believe that the woman has the right to abort a healthy fetus. The fetus does not choose to be or be a carrier. I do not believe that she should abort the fetus because of mental disability. Aborting a healthy fetus, unless the mothers life is at risk, is wrong. Up to a certain point the heart beats and fingers are formed. It is not right to abort a potentially healthy, disabled, or carrier fetus. The woman should just love as is and not judge or be ashamed.
Visitor	3/16/2009 10:29:32 AM	Private_Woman	In my opinion the genetic counseling center should strongly advise the woman to let the rest of the family know that they have the possibilty of their own medical condition. In this case I would leave it up to the woman to decide whether to disclose this information to the rest of the family or not. They do deserve to know.
Visitor	3/16/2009 10:28:02 AM	Ignorant_Husband	I believe that the father has every right to know that he is not the biological father of the child. For the wife to want to with hold that information and not tell her husband is wrong. I agree with having private information kept private, but to an extent. The father should be shown the results of the paternity test and explained to how the paternity test works.
Visitor	3/16/2009 7:58:11 AM	Fragile_X	I do not believe that the woman has the right to abort a healthy fetus, and I also think that if she knew her family history and wasn't up to raising a mentally retarded child (or knew the possibilty that the child could be a carrier) then she had no right to get pregnant either. The woman is making her future daughter's decision for her. If she wanted the option to pick and choose then she should have adopted a child without needlessly killing another. Furthermore, even if the child did have the syndrome why abort it? Mentally disabled children can live a happy full life just as a normal child could.
Visitor	3/16/2009 7:51:09 AM	Private_Woman	I believe that the genetic counceling center should reveal the results to the family, because their future health and well being is at risk. When the results of someone else's personal test means that their family could be at risk for something fatal I think that it is the exception for the patient privact protection. That way the family can take precautions against developing colon cancer.
Visitor	3/16/2009 7:47:42 AM	Ignorant_Husband	I believe that the Testing center has an obligation to discuss the findings with the husband, otherwise it would be withholding information from a patient. However I do not believe that the biological father should be contacted, that is the wife's job not the facility's because he did not come in for testing.
Visitor	3/16/2009 7:26:44 AM	Fragile_X	In my own opinion I do not believe that the woman has the right to abort a healthy fetus. The fetus does not choose to be or be a carrier. I do not believe that she should abort the fetus because of mental disability. Aborting a healthy fetus, unless the mothers life is at risk, is wrong. Up to a certain point the heart beats and fingers are formed. It is not right to abort a potentially healthy, disabled, or carrier fetus. The woman should just love as is and not judge or be ashamed.
Visitor	3/16/2009 7:06:55 AM	Ignorant_Husband	I believe that the father has every right to know that he is not the biological father of the child. For the wife to want to with hold that information and not tell her husband is wrong. I agree with having private information kept private, but to an extent. The father should be shown the results of the paternity test and explained to how the paternity test works.
Visitor	3/16/2009 5:44:03 AM	Fragile_X	I believe a person has that choice themselves but i dont think its right to do just because the kid might have problems.
Visitor	3/16/2009 5:41:08 AM	Private_Woman	It isnt right for them to tell the information. But its not good that she wont tell on her own
Visitor	3/16/2009 5:38:52 AM	Ignorant_Husband	I dont believe the husband should be told about the non-paternity findings, the mother should be told in private. This isnt withholding information, that is a big issue and the child should be thought about. I also dont think that the counselor should get in touch with the biological father.
Mahmood_630	3/16/2009 12:17:13 AM	Fragile_X	No she should not abort the healthy fetus, because she would be making the choice for sumone else. To me no she should not because these are her kids and it is still has a life.
Mahmood_630	3/16/2009 12:03:07 AM	Private_Woman	Yes they should because this has more lives involved than just hers. considering there mom has died from and they have a chance to die from colon cancer everyone involved should know.
Mahmood_630	3/15/2009 11:34:55 PM	Ignorant_Husband	They should consult the women first but in the end the father should be told because he wouldnt exactly be taking care of his own son.
Mahmood_630	3/15/2009 10:19:06 PM	Fragile_X	I do not think she should abort the healthy fetus because they could have a completely normal life and be healthy, but the mentally-disabled fetus would have to be her choice. if it was me it would be aborted because the child would have no life worth living.
Mahmood_630	3/15/2009 10:15:47 PM	Private_Woman	I dont believe the center should say anything because it violates the womans right of privacy.
Mahmood_630	3/15/2009 10:13:36 PM	Ignorant_Husband	I believe the father should be told about everything biological or not since more than likely he will be raising the child as his own.
Visitor	3/15/2009 9:54:26 PM	Ignorant_Husband	I believe that the doctor should tell the wife and she should tell her husband, because its not the doctors place to to tell her husband and its breaking her privacy and she should tell the real father because he needs to know in case he wants to have anymore children in the future.
Visitor	3/15/2009 8:12:42 PM	Fragile_X	I really dont agree with abortion, but considering the case, if she is truly just wanting to prevent any further occurrances of this then she should abort the female fetus but I dont think she should abort the mentally-disabled fetus just because she doesnt want to deal with the syndrome.
Visitor	3/15/2009 8:06:17 PM	Private_Woman	Personally, I don't think that it is the place of the center to pass out information from an individuals file. I think it is wrong of the woman to withold the information from the rest of the family and greater their chances of developing the cancer themselves.
Mahmood_630	3/15/2009 8:06:11 PM	Fragile_X	No I don't agree with it. I don't think she has the right to abort a healthy fetus. If her mother would have had the choice 34 years ago, I'm sure she would be pleased that her mother made the decision to keep her.
Mahmood_630	3/15/2009 8:03:16 PM	Private_Woman	Certain individuals who are at risk for contracting the disease, such as the children and siblings, should be told. Others such as the husband who have no chance of contracting the disease because he does not share genetic make-up should not be told.
Visitor	3/15/2009 7:57:16 PM	Ignorant_Husband	Yes they should tell the husband because it lets him know he is not at risk for passing on the CF gene to any offspring. The biological father should be contacted as well, so he can be warned that he may pass along the gene if he has offspring with another carrier.
Visitor	3/15/2009 7:19:44 PM	Ignorant_Husband	The mother should be told privately at first just to know. Directly after, the center should contact the father with the results. The genetic counselor needs to get ahold of the husband and inform him that he is definatley a CF carrier & let him know he is not the biological father.
Mahmood_630	3/15/2009 4:10:25 PM	Fragile_X	I disagree with aborting any fetus. If God gives life, we do not have the right to take it away. I think abortion is completely wrong. I understand her not wanting to pass it on any further and if she feels that strongly about it she should just decide to not have children. It is not right to abort a fetus just because they will be mentally-disabled or are a carrier for the disability.
Mahmood_630	3/15/2009 4:06:04 PM	Private_Woman	Even though they don't agree with her decison to not tell her family it doesn't give them the right to share confidential information about her health. It is her decision if she wants to share her health information and it would be a violation to share information that she has decided to withold from her family.
Mahmood_630	3/15/2009 4:03:43 PM	Private_Woman	Even though we do not agree with her keeping it a secret, it would not be our job to tell the family. They are in danger of developing the same thing that she has, but it's her decision wether or not to tell her family. Her medical information is confidential and they do not have the right to share this without her permission.
Mahmood_630	3/15/2009 4:00:26 PM	Ignorant_Husband	I think that both parents should be informed that he is not the biological father, and also the biological father of the child should be informed as well. He needs to know this information about himself in case he decides to have children with other women. This information should not be kept secret.
Visitor	3/14/2009 2:15:07 PM	Fragile_X	I am absoloutely astonished by this question. I understand that everyone has the right to their own body but a fetus is someone else's body. I feel people have become accustomed to the idea of if I don't see it it must not be important and in some cases even exist. I am not sure what right this woman believes she has to end the life of another. I continuously heard people say that it should be the woman's choice, and they are right. It was the woman's choice when she had unprotected sex. I am curious about the child's rights because apparently it does not have one. If you do not want a child then their thousands of people who are dying to adopt. I cannot seem to understand how many do overs someone is entitled to. It further entrigues me that as much emphasis we try to put on human rights this being supposedly one of them I have to wonder why does the womans rights outway the childs. Obviously, this is not equal human rights because if it was then the child should have the right to even the basic right to live. Furthermore, I do not understand once again the woman's choice to destroy her own child's right to choose whether she would like to have this child. This seems rather contradictory to me. The woman claims it is her right to choose, yet, she feels it is okay to take that right away from her daughter. How selfish does that sound. I have researched abortion thoroughly and I feel that if you choose to abort a child then you should know how it is done. If you cannot handle knowing how the procedure is done you should probably reconsider. It seems that this woman as well as many others in this world have forgotten do unto others as you would have done unto you. The statement is not do unto others what you would like and you should get special treatment because we can see you and you can speak. Neither child should be murdered!!!!!!!! If she does not want the children then she should not be selfish and let someone take the baby that can.
Visitor	3/14/2009 2:00:49 PM	Private_Woman	Sadly, I have to say that the husband does not have the right to know, yet, her brothers, sisters, and children do. This is something that could be fatal to them. Of course her husband would be affected by her death or disease yet it is in an indirect way, as where, her gene sharing family could be affected directly. The doctor does not have to let them know what family member has been tested but they should be told that they are at risk. I cannot understand why a mother or sibling would not want to tell others when this may possibly save their lives, especially, their own children. If her mother has already passed from this disease then maybe the doctor could use this as his reasoning for testing. This scenario seems to be a very selfish act on the part of the woman.
Visitor	3/14/2009 1:52:49 PM	Ignorant_Husband	I feel the father has the right to know. It is unbelievable hard for a child and an entire family to deal with finding out that someone is not a childs parent after years of believing otherwise. The child as well as the man has the right to know. The woman should have considered this before having sex with another man. Another thing is if your relationship is struggling enough for you to be looking elsewhere it is probably not the right time to be having unprotected sex. Another reason besides just morals, is that the child may need to know for other genetic reasons. There are often times when a child will need to know his or her medical history. Also, the other man has the right to know that he has a child and that he may be carrying a gene that could affect future children he may have. I know it seems harsh but maybe these things may bring people back to responsibility for your actions.
Mahmood_630	3/13/2009 10:33:56 AM	Fragile_X	I think that the pregnant woman has every right to abort any carrier or fetus of Fragile X syndrome. It is the womans choice and I feel that the doctors should let it be.
Mahmood_630	3/13/2009 10:33:28 AM	Fragile_X	I don't believe that any doctor or genetic counselor has any right to tell a pregnant woman what she does or doesn't do with her child. Whether the counselor would abort her own child if she is in the same situation is her own business. I wouldn't abort my children, but the pregnant woman has the ultimate right to decide.
Mahmood_630	3/13/2009 10:30:17 AM	Private_Woman	I feel that the genetic counselor should warn the rest of the family about this condition and they should start testing for it as soon as possible to hopefully prevent the cancer from starting or spreading. Also, I think that the genetic counelor should ignore the fact that it's "private" because by telling them, the counselor could save a life.
Mahmood_630	3/13/2009 10:28:16 AM	Private_Woman	I think that they should tell the family so that they can be screened for the same condition. This is putting her family's lives at risk because this condition could have been passed down to them. If the family was screened regularly it could prevent them from this condition becoming cancerous.
Mahmood_630	3/13/2009 10:24:43 AM	Ignorant_Husband	I think that the genetic counselor should get in touch with the husband, due to the fact that he is a CF carrier. He needs to know that he is a carrier incase he decides to have any more children.
Mahmood_630	3/13/2009 10:24:24 AM	Ignorant_Husband	I think that the genetic counselor should tell the husband that he is not the biological father of the child but he is a carrier of CF. This may put any of his future children at risk and he needs to know about this disorder that he carriers.
Mahmood_630	3/11/2009 2:14:21 PM	Fragile_X	No, she should not abort the carrier/healthy fetus or the mentally-disabled fetus. The reason that I am saying this is becauase, if she didn't want to chance it then she should not have put her self in this situation.
Mahmood_630	3/11/2009 2:09:34 PM	Private_Woman	Yes, the family should know. Because, they are at risk for this condition. And if they are not told about it then how are they going to know that they need to get screened for it.They need to know because, the mother telling them is the only fair way. If she doesn't tell them then she is the silent killer instead of the disease.
Mahmood_630	3/11/2009 2:02:01 PM	Ignorant_Husband	Yes, because he has the right to know the whole truth about the whole situation. And also becauseh might want to move on into another relationship since this has happened.
Visitor	3/11/2009 12:52:51 PM	Fragile_X	NO,You should never have the right too play god.Theres people who take care of kids like that all the time.
Visitor	3/11/2009 12:51:40 PM	Fragile_X	I believe that it is ultimately her decision, but it does not make any sense to abort a healthy fetus who carries an unhealthy gene. If everyone were to do that our population would be merely thousands. I think this woman isn't considering her unborn child, she is being selfish. A mentally retarded person can live a happy life just as a normal person could. The thing is that she KNEW about her family history, and if she was so afraid of having a mentally challenged child then she had no business get pregnant. And if she wanted children so badly she could have adopted, that way she could pick an ideal child without needlessly killing another.
Visitor	3/11/2009 12:50:06 PM	Private_Woman	Yes,Anytime theres something that could affect your life ,you should have the right too know.
Visitor	3/11/2009 12:46:52 PM	Ignorant_Husband	YES,I think he has the right too know .It is his choice if he wants to raise another child that isn't his.
Visitor	3/11/2009 12:45:23 PM	Private_Woman	I believe that the genetic counseling center should inform the family, even though it does violate the patients privacy. The family has a right to know because then they could take precautionary measures just in case the children might have the genetic abnormality. If it involves other individuals future well being then they have a right to know.
Visitor	3/11/2009 12:42:07 PM	Ignorant_Husband	I think that the Testing Center should not withhold information from either parent. They should discuss their findings with the couple openly, not telling the husband would be wrong morally. I also think that the Testing Center should not contact the biological father because he has not come to the facility so therefore he isn't their responsibility.
Mahmood_630	3/11/2009 10:08:37 AM	Ignorant_Husband	i think he should be told. it would be the right thing to do.
Mahmood_630	3/10/2009 10:04:59 PM	Ignorant_Husband	Yes, because he deserves to know the truth about the whole ordeal.And another reason he needs to know is because this could determine what he nees to do about his condition.
Visitor	3/7/2009 4:36:18 PM	Fragile_X	No, i do not believe the fetus should be aborted. i do not believe in abortion, not for any reason except for rape. she would be killing her daughter.
Visitor	3/7/2009 4:35:06 PM	Private_Woman	Yes, the should tell the family. She might want to keep it secrete, however patient privacy protection does allow them not to tell why they are being tested. however, if i had a serious disease, i would think it's mandatory for the center to get ahold of everyone who might carry the genes.
Visitor	3/7/2009 4:33:34 PM	Ignorant_Husband	The husband should be told. the mother should be told privately if that is the rules, but the husband should know as well. he has a right to know and to be tested, it could save a life. If i had a disease i would want to know.
Visitor	3/5/2009 4:48:29 PM	Fragile_X	No she should not abort the carrier for many reasons. I am strongly against abortion, although in some circumstances it may be considered. But since this child is healthy then there is no reason to kill it. Even if the child is a carrier of this gene then let her make those decisions on her own when she is at the right age. The mentally disabled fetus should not be aborted either. Every child should be shown love and cared for even if they are mentally disabled. That baby already is a living being and it should not be punished or killed just because of its disabilities.
Visitor	3/5/2009 4:43:22 PM	Private_Woman	Yes the all of the family should be told and aware of her condition because if they are not told then she is putting all of them at risk. She should want to protect her family and make sure they are healthy.
Visitor	3/5/2009 4:40:26 PM	Ignorant_Husband	Yes the husband should be told because he has legal rights of knowing about a child that he thought was his own.
Johnson_750	3/2/2009 9:37:19 PM	Fragile_X	My personal beliefs, she should not abort no matter what! Legally I think she could do whatever she wants as long as she is not too far along.
Johnson_750	3/2/2009 9:34:21 PM	Private_Woman	This is difficult, the woman is protected by HIPPA laws; however the family should be warned so they can be tested. The only way it should be kept a secret is if the family already knew of the grandmother's condition and knows they should be tested due to her condition and death.
Johnson_750	3/2/2009 9:30:25 PM	Ignorant_Husband	The father should be told for two reasons; one is the chance that if he is a carrier and so is the mother then the next child is at risk for the recessive disorder. Also, legally the father is not obligated to support the child since he isn't the father.
Visitor	3/2/2009 7:50:47 PM	Ignorant_Husband	Sadly, I have to say he has the right to know. A child is a large responsbility. It is not fair for someone to feel obligated to a child especially if they are not the father. Sadly, this commonly happens when men raise children, have an emotional bond to the child only to realize usually during a divorce that they are not the father. The damage that this can cause to the parent as well as the child should be prevented if possible. Honestly, you probably should not be married if you cannot be honest with your partner. Your relationship has a better chance of survival if you are honest. Now, on to the question of telling the biological father. I actually have a friend who lost a child when he was four because a gene he had inherited from his father. When the father found out he denied it and refused to be tested and to let his new wife who he was having children with know. Even though the situation was awful for them their are some good men and they deserve the right to know. These of course are the tangled webs we weave when we begin dipping in someone else's honey pot. Especially, when you already have one of your own. If you are ashamed or do not want the new man to know your child you should have not been sleeping around to begin with. If your other half is so bad that you want to sleep around maybe you should rethink your marriage and your choice to have children with them. People should be responsible for their choices regarding the birthing and raising of children. These are not decisions that should be addressed after becoming pregnant or after childbirth, but should be addressed before the child is created. That is why we are adults!!!!!!!!
Visitor	3/2/2009 7:37:16 PM	Private_Woman	Once again I have to wonder how people became so selfish. I cannot seem to understand why someone would want to risk their childrens lives when they have the option to save it. If your child is in a burning building do you save it or leave it to fend for itself? I would say SAVE IT!! I understand that everyone has a right to privacy, however, it is no longer a private matter when it affects someone else. I think the clinic should make the woman aware that they are going to make the children at least aware of the condition. Maybe giving the woman a few days to bring in the children to address the situation. I do not feel however the husband should be notified because it does not threaten his life. I think if it is possible to save someone else's life by disclosing the information it should be done. It is different if you have a nontransmittable or uninheridated illness. If it is transmittable, inherited, or has a decent rate of fatality it is only fair to make the people who may be directly affected.
Visitor	3/2/2009 7:27:59 PM	Fragile_X	Absoloutely NOT!!!! I feel that if you knew that it was a possibility for you to pass on this gene and you knew you had already made the decision that you would abort a child if it was mentally disabled or a carrier, you should have been using birth control. You should look into adoption if you are looking for a specific baby. I find it offensive that women act like it is their choice. They are right they had a decision when they decided to get pregnant or take the risk. Therefore, it is not fair to the child for the woman to feel that she is entitled to a second choice when the child is not entitled to a choice at all. People should take a little more time to consider others and not be so selfish. If you do not want the disabled or the carrier baby try putting it up for adoption. There are hundreds of thousands of people dying to have a baby while you are dying to murder one.
Visitor	3/2/2009 10:53:07 AM	Ignorant_Husband	fgkfdfjdlkfjsdfdfnmdnfdklfjsdklfjklsd
Mahmood_630	3/2/2009 9:55:26 AM	Fragile_X	i think she should. yes and the mentally-disabled fetus will jus be ok.
Mahmood_630	3/2/2009 9:52:17 AM	Private_Woman	yes. the womans mother own's the person's genes. i think they should tell the family just because they need to know to get rid of it at the time.
Visitor	3/2/2009 9:49:03 AM	Ignorant_Husband	yes and no. yes they should
Mahmood_630	3/1/2009 11:51:44 PM	Fragile_X	No, NO, she should not abort any child. Thats Gods choice to make not hers. She should love her child know matter what the child looks like or mentally disabled. Every child has a right and disearves to live know matter wat the condition.
Mahmood_630	3/1/2009 11:46:35 PM	Private_Woman	That is a diffacult dission because by law you ave to up hold the patients privacy, but as a person you wont to tell them so they can get tested. So I dont think they should tell the family but they should incourage the patient to tell her family and explain to her that it could save the lives of her loved ones.
Mahmood_630	3/1/2009 11:41:04 PM	Ignorant_Husband	I believe that the mother should be told that the husband is not the father and that she needs to confront him on her own, and that it would be a good idea to tell the real father that he carries the gene for this disease. That way he knows that he is a carrier and in the future if he wants anymore kids his partner can see if shes a carrier to and take the proper steps to prevernt this disease from accuring again.
Visitor	3/1/2009 9:32:49 PM	Ignorant_Husband	I agree that the father should be told about the DNA testing showing that the husband is not the biological husband. The Testing Center wouldn't be colluding with the mother, the Center is tryng to figure out what would be best in reality one would think it would be best for a family if something like this was discovered, but in my opinion I would be unhappy if i were to find out by some other means
Mahmood_630	3/1/2009 7:50:51 PM	Fragile_X	No, I do not believe she has the right to abort a perfectly healthy fetus. Personally I do not think she has the right to abort even an MR fetus, seeing as you can't really tell what level of MR a child may be in the womb. I suppose if I were the doctor, I'd make it a simple case of white lie.
Mahmood_630	3/1/2009 7:38:12 PM	Private_Woman	It is not the genetic center's choice of whether or not to break the privacy pact with the patient. However, they should strongly urge her to share the information, perhaps even trying to use a guilt tactic in saying that they could possibly die from this if they themselves are not informed.
Mahmood_630	3/1/2009 6:45:46 PM	Ignorant_Husband	No, I do not think the husband should be told. The clinic's job is to do testing, not to be the moral absolutes. However, the mother SHOULD be told, and perhaps given a suggestion to tell the illegitimate father. I do not think the illegitimate father should be told by the clinic either. It invades on privacy far too much to contact a random man to not only tell him he has a child, but that he's a carrier for a disease. For all we know, the woman's husband could have met and married her after she was already pregnant, and already know it isn't his child. The clinic does not know their history, and it would be rude to pry.
Visitor	3/1/2009 3:50:05 PM	Fragile_X	NO BECUSE she is taking a life That should be enogh there
Visitor	3/1/2009 3:47:27 PM	Private_Woman	NO Theres no reason too if you do they might worry themselves sick.They might worry the rest of their life about when they are going to get it too.
Visitor	3/1/2009 3:42:25 PM	Ignorant_Husband	yes because it could cause problems on down the road. besides i would want to know.You should know who your real parents are.
Mahmood_630	2/28/2009 7:49:01 PM	Fragile_X	I fully believe that every child has a right to be born. It is a living person, even if it's only in the developing stages. If she wanted a baby and took the steps to have one, she should be thankful God gave her one.
Mahmood_630	2/28/2009 7:43:14 PM	Private_Woman	The harsh reality is, the law is the law. Patient/doctor confidentiality must be held to. If this were not the case, it would be nice to be able to tell the other family members in case they wanted to be checked out for the same condition. However, as I previously stated, a person has a right to their own privacy and what they do or dont want others to be told.
Mahmood_630	2/28/2009 7:35:39 PM	Ignorant_Husband	First off, the mother should be informed first. More than likely the mother already knows this is the case or has a good idea. The testing center should then inform the mother that they have to share this information with the father. I believe they also should be obligated to contact the biological father. Every person has a right to know about themselves and knowing information such as this might help the biological father make future decisions for himself.
Johnson_750	2/26/2009 10:54:25 PM	Fragile_X	Even thoug I think that she sould not abort either of the fetuses, I think that is her right to do what she consider is the best for her and her future child. Every time that we face ethical dilemas like this one there is not an answer that would completely satisfy both sides of the issue. There are cultural, social, and legal implcations that we must consider before judging a situation.What we should think about are the legal imolications, whether or not she is legally able to abort the fetus? We can try to persuade her to keep the healthy fetus, but it will be her desicion.
Johnson_750	2/26/2009 10:44:23 PM	Private_Woman	No, they should try to convince the woman of the medical implications and the posible risks her family is exposed to if they do not get tested. Again, they should disclose this information to the woman and and to her family only if she decide to do so. The information the center has is personal and must remain confidential in order to avoid legal issues.
Johnson_750	2/26/2009 10:34:45 PM	Ignorant_Husband	That implies an ethical dilema. I will say that the husband must be told about the findings because he has the right to know and the Testing Center should not withhold information to the couple. The Testing Center must follow the established procedures to disclose their findings, and the genetic counselor do not have to get in touch with the biological father, in order to mantain the confidentiality of the information.
Johnson_750	2/26/2009 6:35:47 PM	Fragile_X	Absolutely not on the healthy baby. That baby will be faced with the same issue someday but she should be given the chance at life with this information. The mentally-disabled fetus should be allowed to live also in my opinion but I guess she has the right to do what she feels is right.
Johnson_750	2/26/2009 6:33:15 PM	Private_Woman	I think the woman has a right to keep her medical information private. The counseling center could however send her family members free coupons for a screening for this inherited gene.
Johnson_750	2/26/2009 6:30:39 PM	Ignorant_Husband	The father should be told the results of the test. He should be told he is not a carrier of this gene. I think he has the right to know all of the findings.
Johnson_750	2/26/2009 2:45:58 PM	Fragile_X	She should not be allowed to abort either fetus. Disabled or healthy, they are both living humans and it is murder for a person to kill another person. There are many people that are mentally-disabled and are living wonderful lives. Sure it would be hard to raise a child with a disorder, but it is still a CHILD. She should not be allowed to abort either one.
Johnson_750	2/26/2009 2:43:08 PM	Private_Woman	I think it is up to the mother. She may not want her family to know what is happening within her body. She may not want it to affect the whole entire family, but instead just her. I don't think they should tell the family.
Johnson_750	2/26/2009 2:40:44 PM	Ignorant_Husband	Yes, because if they are worried about their child having CF then they need to understand that if the child does end up with CF that he is not the real father. The real father of the child may have the CF trait and most likely ccould pass it on to the child.
Visitor	2/26/2009 2:04:15 PM	Fragile_X	No i do not believe in abortion, that baby was given a life and should not be tooken away, no matter what the dilema
Visitor	2/26/2009 2:02:54 PM	Private_Woman	I do believe that the family should be warned about the medical condition for their own protection. I can understand the woman's reasoning in a way to keep it a secrete, but she could save her familie's life, by letting them know of their chances.
Visitor	2/26/2009 2:00:30 PM	Ignorant_Husband	The husband should be told that he is a CF carrier, the genetic counselor should get in touch with him.
Visitor	2/26/2009 9:43:09 AM	Fragile_X	NO! The woman should not have the right to abort a healthy fetus that happens to be a carrier of this particular genetic mutation. If she does not want the child their are many people out there who can not have kids and Im sure they would love to have it reguardless of the circumstances. Whether it is a mentally- disabled fetus or not it still has a right to live. It just means the God took a little more time on it.
Visitor	2/26/2009 9:38:29 AM	Private_Woman	Yes, the genetic counseling center should disclose the test results to the rest of the family to warn them of their own possible medical condition. Because, that would give them more knowlege about it if not even save their lives.The single indivual owns their genes but under circumstances theie family would to.
Visitor	2/26/2009 9:33:19 AM	Ignorant_Husband	Yes the husband should be told about the non-paternity findings. Although I do think that the mother should be told first, in a private setting. No, In my opinion the testing center is not colluding with the motherin withholding information from the father. I do believe that the center should contact the biological father to get tested. So he is aware of it himself.
Johnson_750	2/26/2009 9:07:06 AM	Ignorant_Husband	I do believe they should tell the husband because if the couple does want to have another baby, they will not have to worry about it possible having CF. The news would raise controversy, but it also might bring them together and they may have another child, knowing that it is not at risk for having CF.
Johnson_750	2/25/2009 9:13:44 PM	Fragile_X	No and No! I think it would be a rare situation where I would ever think aborting a fetus is okay. If she thinks like that then they should just tie her tubes now!
Johnson_750	2/25/2009 9:10:44 PM	Private_Woman	No, but he should strongly urge the patient to disclose this information to her family so they can get it detected early. I think if the genetic counselor explained the benefits of her family knowing then she may change her mind.
Johnson_750	2/25/2009 9:03:07 PM	Ignorant_Husband	No. I think if I were the husband I should have the right to know but I do not think the genetic counselor should tell him (although that would be the right thing to do.) I think the mother should be told (she may already know) and she should make the decision as to whether she wants to keep her dirty little secret. The real father also has the right to know but again I think the mother should tell him. If I were a man there is NO way I would believe that a child was mine unless I had the paternity tests done. The mother always knows for sure that she is the mom but how can a man be absolutely sure that he is the father? If you think about how many men pay child support for kids that may not even be theirs...for 18 years, I think not!
Johnson_750	2/25/2009 8:16:14 PM	Fragile_X	The carrier/healthy fetus should not be aborted. I am prochoice, but this mother is only aborting the baby because it is a carrier. What if this child grows up and does not even want to have kids. Then, there is no problem. The mother has no idea if the child will even want to have kids. If this mother wants to abort the mentally-disabled fetus, that is a little more understandable. However, aborting any baby based on something that you find out is going to be wrong with them is sad in my opinion. I think abortion is more for unprepared or unplanned pregnancies. This woman is planning to have a kid so she needs to stop being so worried about the childs disfunctions and be proud she can even have kids.
Johnson_750	2/25/2009 8:09:54 PM	Ignorant_Husband	First of all, I think the mother should be told in private that their first kid was not her husband's child. Then I think the genetic counselor should give the mother the opportunity to tell her husband herself. Finding out that he is not the biological father is a big deal and might upset him, but it is necessary because the health of others are involved. Even though he is not personally at risk, they can not lie and say that he is a CF carrier, so it is better that they tell him up front. Next, the actual father should be contacted. It is true that he has not contacted them, but I am sure he would if he knew he carried CF. Also, what if he is married and wants to have children with his wife. She should be aware that he is a CF carrier and get tested so that they can protect their child from CF. In the end, the hardest thing is going to be telling the husband that his suspected child has never been his. However, it is neccesary for the health of everyone involved.
Johnson_750	2/25/2009 8:08:48 PM	Private_Woman	The family should be contacted, because if this disease is genetic, they are all at risk. They do not have to let the family know that someone has tested possitive in their family, they should just highly recommend tha they come get tested for it. The 30 year old woman can not be selfish and get treatment but not allow her family to get the same treatment if they have the disease. I think it is the woman's responsibility to tell her family about her personal results, but the clinic should at least recommend the rest of the family get tested.
Visitor	2/25/2009 8:04:50 PM	Ignorant_Husband	First of all, I think the mother should be told in private that their first kid was not her husband's child. Then I think the genetic counselor should give the mother the opportunity to tell her husband herself. Finding out that he is not the biological father is a big deal and might upset him, but it is necessary because the health of others are involved. Even though he is not personally at risk, they can not lie and say that he is a CF carrier, so it is better that they tell him up front. Next, the actual father should be contacted. It is true that he has not contacted them, but I am sure he would if he knew he carried CF. Also, what if he is married and wants to have children with his wife. She should be aware that he is a CF carrier and get tested so that they can protect their child from CF. In the end, the hardest thing is going to be telling the husband that his suspected child has never been his. However, it is neccesary for the health of everyone involved.
Mahmood_630	2/25/2009 11:05:49 AM	Fragile_X	The woman has a right to abort a fetus if she chooses to do so due to a person's rights. However, the woman should not abort the carrier/healthy fetus or the mentally-disabled fetus because this is not right. She became pregnant and is going to have a child and she should love the child no matter what. It is not right to terminate a fetus simply because it is a carrier of the gene for Fragile X Syndrome or mentally-disabled--she should love the child for what he/she is. A fetus that is a carrier, a healthy fetus, or a mentally-disabled fetus should be given the chance for life like everyone else.
Mahmood_630	2/25/2009 9:54:46 AM	Private_Woman	Ethically, the genetic counseling center cannot disclose this information to the family due to the patient privacy act. If they told the family about her condition they would be breaking the law. However, if the mother has to undergo surgery for this condition to remove growths on the colon, the family will more than likely know and ask questions about what type of surgery she is having. The genetic counseling center could educate the family on their mother's surgery without coming out and directly saying what type of disorder she has. The genetic counseling center could further educate the woman about her disorder so she would be better educated about her inherited condition as well as informing her how this could possibly be inherited by her children the same as it was inherited by her.
Mahmood_630	2/25/2009 8:56:12 AM	Ignorant_Husband	The Genetic Testing counselor should tell the father of the findings because the testing center should not withhold information from either of them . Since it has been discovered that the father is a CF carrier, both adults should be told this since they are wanting to have another child and are trying to find out what the chances are for another child to be born with CF. The mother should not be told privately because the Testing Center has been working with both individuals, not just one. The genetic counselor should get in touch with the father and tell him that he is a CF carrier because it has to do with his health and the health of a child, if they chose to have one.
Johnson_750	2/24/2009 9:20:00 PM	Fragile_X	No I don't think that the woman should abort any one of the fetus because it is making a decision that is based on a future that is unpredictable.
Johnson_750	2/24/2009 9:14:05 PM	Private_Woman	Privacy protection is important so I think maybe the other family members should be encouraged to do the test. The person owns the information in his/her genes. Maybe the woman should be counseled about sharing this information with her husband.
Johnson_750	2/24/2009 9:08:43 PM	Ignorant_Husband	I think the husband should be given the results. Not only he needs to know about the paternity test but he should know that he is a CF carrier because the other child will have the same disorder, being that both parents are carriers.
Mahmood_630	2/24/2009 12:03:35 AM	Fragile_X	There are a million things that have to take place during pregnancy and they have to take place in the right order or the baby will have some kind of birth defect. Doctors can not always detect this during a pregnancy. Would she not keep a baby that was not born perfectly? A person that worried about a defect should not have a baby. So no I do not think she should abort the fetus. Only if it puts her life at risk.
Mahmood_630	2/23/2009 11:54:32 PM	Private_Woman	If the womans mother died with colon cancer at 32 her brothers and sisters are aware of the risks. If they want to be tested thats their decision to. She made the decision on her own, but just because she tested positive for the gene does not mean that she will come down with the illness. There is no need to worry her family over something that hasn't happened yet. She has the right to keep her privacy and if she is diagnosed with the illness the family can support her in the treatment that she chooses or the right not to take treatments.
Mahmood_630	2/23/2009 11:41:13 PM	Ignorant_Husband	As sad as the situation is all parties need to be told. The mother should be told in private first and make her aware that the husband will be told but it would be better if she told him herself. The biological father has the right to know that he has a child.
Visitor	2/23/2009 6:37:52 PM	Fragile_X	Yes, she should have the right. As long as abortion is legal then it is her right to get rid of the fetus or keep it. Personally, I think it is wrong to get rid of a healthy fetus, but if she knew it would be mentally disabled then she has every right to make that decision.
Visitor	2/23/2009 6:33:37 PM	Private_Woman	Yes, they should tell the family because the disease could be inherited by her kids. She is putting her family at risk by not getting them tested. It would be of no concern to the husband, but the kids and brothers/ sisters who could shares similar genes should know.
Visitor	2/23/2009 6:28:21 PM	Ignorant_Husband	Yes, the non-paternity father should be told. The mother should be told first and then her husband should be told. Then the biological father should be told because it is such a serious condition. It is ethicly irresponsible not to tell them all.
Johnson_750	2/23/2009 1:51:03 AM	Fragile_X	The actual question is should this lady be allowed to choose abortion, and then you threw in a persuasion, marked by a genetic disorder. The female is essentially stating she wants to do her future family a justice and stop anymore chances of defected genes. Doing so means the possible death of multiple fetuses as a result of her rejective feelings for the genetic disorder she may or may not pass on. I think again that she should be allowed her own choice, and that she can decide what to do should the fetus be a carrier. If it is a carrier, and she does decide to abort, then the only alternative that I would use is persuasion, meaning using alternative ways to combat the genetic issue. Though her methods seem drastic, there is always the chance that she does not pass it on, and in that case she will never have to abort. Wemon should have the right to choose what they want to do regarding pregnancy. There are many factors that should be taken into consideration, such that only a medical examiner can provide.
Johnson_750	2/23/2009 1:40:13 AM	Ignorant_Husband	This is probably something that can easily end up as some court case. Here is what I think should be the action taken by the Genitist. I think that both parents, need to be informed about this delema, regardless of the biological link or connection the son and father have. Their kids health should be more important than marital issues. For the Genetic counselor, I think taking into consideration both customers; and as an advisor-like figure for the family, having a discussion "Together" is the best alternative, and opertunity to take the best plan of action for the effected child.
Johnson_750	2/23/2009 1:29:22 AM	Private_Woman	To begin with, I do not think that any woman with a husband, and somewhat large family will keep this a confidential secret, regardless of her disdain for their own well being. But I will go along with the secenario and express my view/opinion on the subject. I think that it is entirely up to the patient (Woman), to choose what she would like to do. I am a pro-choice person, I think that this woman will ultimately choose what she thinks is the right choice, and be satisfied with the consequences. Being tested for a condition that is located in a relative, loved one or significant, should not be viewed as a negative, more so as a positive. It is testing and screening that has given so much success in fighting diseases and disorders for future generations. The counseling center is not probably highly influenced and controlled by various medical restrictions and codes of ethics. That being said I think for the safety of the center, no, I think that it is again up to the woman to eventually make the choice to inform her family about a genitic disorder that she has, which they the family and spouse might have.
Johnson_750	2/17/2009 8:01:01 PM	Fragile_X	Since I am pro-choice, I believe that the woman has the right to make this decision if she so pleases. She is trying to save future generations from being affected. One fetus might suffer in the process but many will be saved in the future.
Johnson_750	2/17/2009 7:58:46 PM	Private_Woman	I do not think that they should break the patient privacy protection. The woman is only trying to protect her family from worrying about her. If the rest of the family is at risk then their doctors should recognize that and let them know separately.
Johnson_750	2/17/2009 7:54:58 PM	Ignorant_Husband	This creates quite the dilemma. If I were the counselor then I would choose to tell the couple together. I would explain to them the circumstances and let them know that the husband is not the child's biological father. They both deserve to know the truth.
Mahmood_630	2/16/2009 1:37:25 PM	Fragile_X	I can see where she is comming from but i do not believe that she has the right to kill her baby becuase there is a possibility of mental retardation or becomming the carrier of the fragile X gene. The child has the right to come into the world as is and has the right to live a normal life dispite of condition.
Mahmood_630	2/16/2009 1:35:27 PM	Private_Woman	I believe that if it is going to be a possible problem then something should be said to the family so that maybe the issue can be diverted if knowing this information would help to decrease her childrens possiblilty of colon cancer.+
Mahmood_630	2/16/2009 1:33:11 PM	Ignorant_Husband	I believe that the father has every right to know that he is not the actual father of the child. It would be wrong to hold the information from because techniquly speaking he has been. I believe that this information should be given to the mother first, then maybe she would come clean, but the father should be notified.
Visitor	12/28/2008 1:58:50 PM	Ignorant_Husband	The mother should be told in private. There may be a reasonable explanation... invitro, ai, adoption, 2nd husband, etc.
Wyatt	12/7/2008 7:42:52 PM	Fragile_X	I am under the belief that abortion for any reason is wrong. Regardless of the sex or mentality I do not think that she should abort the fetus. I fully believe that were she to go through with the pregnancy that she would love that child and the child would be happy regardless of problems. The child would want to live.
Wyatt	12/7/2008 7:40:43 PM	Private_Woman	I think that the doctor's do not have the right to tell the family directly, but they may be able to tell the family in other ways. For instance, mailing out information to the family on the condition and how it is genetic. This way the family can read the info and hopefully realize that they may have the condition as well considering the family history.
Wyatt	12/7/2008 7:38:14 PM	Ignorant_Husband	I think that the husband should know that he is not a carrier of the CF gene. By withholding the information from the husband, he is under the assumption that he and others in his family carry the gene when that is not necessarily true.
MsDaniel_006	12/7/2008 4:44:43 PM	Fragile_X	I do not think that she should abort either of them. The healthy one who is a carrier of the gene should be able to live her own life and decide for herself if she wants to have children. The mentally-disabled one should also be able to live and can still have a fulfilling life, even with some mental retardation.
MsDaniel_006	12/7/2008 4:42:00 PM	Private_Woman	I think that they should tell the family because they need to know that they are at risk for colon cancer, and be frequently screened for it.
MsDaniel_006	12/7/2008 4:39:56 PM	Ignorant_Husband	They should tell the husband. He has a right to know that he is not the father of the child.
Mahmood_632	11/3/2008 12:33:19 PM	Fragile_X	I think that she has the right to her own decisions and she is the only one that has to live with her decisions weather it be ethically right or wrong. I personally do not believe in abortion but I do not put my beliefs onto other people. It is their own decision.
Mahmood_632	11/3/2008 12:28:55 PM	Private_Woman	I believe it's the privacy of the mother to reveal that information. It is very hard to remove yourself from that situation. But she owns the information. I understand it would be extremly difficult to hide that kind of information due to the fact that there are other people at risk. But I just believe the mother has that right.
Mahmood_632	11/3/2008 12:25:04 PM	Ignorant_Husband	I think they should just tell the mother and let the mother tell the husband. That is a family matter and she should be the one to share that important information no matter how you feel.
MsDaniel_006	10/14/2008 11:40:22 AM	Fragile_X	I believe that it is her choice to abort her fetus but she should be informed that there is help for people like this
MsDaniel_006	10/14/2008 11:38:44 AM	Private_Woman	i believe it is up to the women with the colon cancer to tell her family
MsDaniel_006	10/14/2008 11:37:17 AM	Ignorant_Husband	I believe the father should be told it is the right thing to do also the other guy should be told he is a carrier
Sharma_001	10/13/2008 6:27:09 PM	Fragile_X	I think she shouldn't abort either, however that is her choice.
Sharma_001	10/13/2008 6:25:27 PM	Private_Woman	the family should be told and tested
Sharma_001	10/13/2008 6:24:01 PM	Ignorant_Husband	no the shouldn't tell the husband, it is the place of the wife. However i believe the mother should be told in private.
Visitor	10/13/2008 6:03:25 PM	Fragile_X	NO i dont think the woman should have the right to abort a healthy fetus that happens to be a carrier of this particular genetic mutation or if the fetus is mentally-disabled. No matter how disabled a child would be that shouldnt be the reason for aborting them you should love them and take care of them even if it has mental problems. I dont think aborting the fetus would be the right solution.
Visitor	10/13/2008 5:55:14 PM	Private_Woman	Yes i feel that the family should be told. I dont feel that the genetic counseling center should disclose the test results from the rest of the family because they do need to be warned about their own possible medical conditions.So the family member can get a sceening for the cancer.If one of the family members inherited the condition they could try to remove the cancer as soon as possible.
Visitor	10/12/2008 7:01:30 PM	Fragile_X	she should not abort either.
Visitor	10/12/2008 7:00:18 PM	Private_Woman	Yes they should inform the family, the children are at risk too.
Visitor	10/12/2008 6:58:09 PM	Ignorant_Husband	Yes they should tell the biological father
Visitor	10/12/2008 6:57:15 PM	Ignorant_Husband	Yes they should tell the biological Father
Mahmood_632	10/12/2008 2:33:34 PM	Fragile_X	I don't believe in abortion for any reason due to religious purposes.
Mahmood_632	10/12/2008 2:31:49 PM	Private_Woman	Yes I think they should tell the family so they can take the precautions needed to stay healthy and prevent the cancer from taking their body over and ending in death.
Mahmood_632	10/12/2008 2:28:34 PM	Ignorant_Husband	I think they should tell the husband. I don't think the mother should be told privately. And I do think the biological father should be contacted.
Wyatt	10/10/2008 6:06:28 PM	Ignorant_Husband	I think they should tell the husband, because if they know that only the mother is a carrier then he's going to eventually figure it out anyway. The biological father also needs to know for health purposes of the child.
Wyatt	10/9/2008 11:25:24 PM	Fragile_X	Why is testing being done if the suggestion of knowing what's good or bad is not being suggested to her about the unknown. I believe that this information should be left up to the individual since they are being made aware of what retardation, etc is taking place in their bodies. I stick to what is wrong is wrong, and we should not be looking into the future and then don't know how we should respond to the answer.
Wyatt	10/9/2008 11:19:54 PM	Fragile_X	She has the right to do that because it is her decision and she will have to live with it for the rest of her life but I believe that she shouldn't do that. People these days aren't giving anything a chance. All they do is jump to conclusions and not think first. I understand that she doesn't want her children to have it or to pass it on to anyone else but don't kill a child just because they may be a carrier. Just because they are a carrier doesn't mean they will have the disease.
Wyatt	10/9/2008 11:19:51 PM	Private_Woman	Yes, I believe the family should know because it can be helpful for early detection of diseases when other family members who are at risk knows of this type of information that could help them in curring a deadly disease.
Wyatt	10/9/2008 11:16:36 PM	Private_Woman	I think they should tell the family since it concerns them as well. They could possibly have this type of cancer as well. Even though it is under the patient privacy, since it puts others in danger as well and if the patient absolutely doesn't want to tell her family then you should have the right to share it with the rest of the family. It may be harmful to everyone in the family if they don't tell them. Why would you want to keep a secret from someone if it may come to them later?
Wyatt	10/9/2008 11:15:36 PM	Ignorant_Husband	Yes. The husband should know because he is a carrier of a deadly disease.
Wyatt	10/9/2008 11:12:21 PM	Ignorant_Husband	I think that yes the genetic counselor should get in touchh with the biological father. The mother should be told privately first about it and then yes she definately needs to tell her husband. This is not something that needs to be kept a secret especially since there child will probably have cystic fibrosis. The father will wonder if his child has cystic fibrosis and he knows that he is not a carrier then yes he is going to be suspicious. These things are better told first than to try and keep it a secret until it gets out.
Wyatt	10/8/2008 11:17:31 PM	Fragile_X	I think a woman should have the right to do with her body what she wants, but to do something with the body of a defensless fetus should be illegal. I am sure there is someone out there that would take care of an unwanted baby regardless of the flawed gene.
Wyatt	10/8/2008 11:13:56 PM	Private_Woman	Yes, the rest of the family should be told. Why should they not have the opportunity to help their own life, even if the woman wants to keep hers private. Withholding this information should be illegal.
Wyatt	10/8/2008 11:10:12 PM	Ignorant_Husband	The husband should be told. It is wrong for him to think that a child is his when it is not. I also think that the biological father should also be told about the child and the CF gene he carries. He may want to know if he decides to have other children
Wyatt	10/8/2008 11:10:11 PM	Ignorant_Husband	The husband should be told. It is wrong for him to think that a child is his when it is not. I also think that the biological father should also be told about the child and the CF gene he carries. He may want to know if he decides to have other children
Wyatt	10/8/2008 11:43:27 AM	Fragile_X	No, she should not abort the baby. I understand that this is a hard decision for someone to make, but a child is a child and by getting pregnant you have made the decision to love and care for that child no matter what.
Wyatt	10/8/2008 11:38:31 AM	Private_Woman	The doctor cannot legally release the information, but the woman should definitely tell her family. They need to be aware that they may have a possible condition and need to take preventative measures like getting tested.
Wyatt	10/8/2008 11:35:37 AM	Ignorant_Husband	Yes, they should tell the husband because he has a right to know.
Visitor	10/7/2008 3:01:29 PM	Fragile_X	No clearly she should not abort the healthy fetus however, only she know whether or not she can deal with the mentally-disabled fetus. I could not.
Visitor	10/7/2008 2:59:59 PM	Private_Woman	I believe that the genetic counselor should not be allowed to tell the family because it is the mothers medical records not their own. Regardless, to the fact that it may or may not affect them.
Visitor	10/7/2008 2:55:08 PM	Ignorant_Husband	They should tell the husband that he is not the father.
Visitor	10/6/2008 6:57:04 PM	Fragile_X	No I dobn't believe that at all. I feel that I would take care of a child no matter what God giave me.
Visitor	10/6/2008 6:56:00 PM	Private_Woman	I think If the mother wants the information told she should be the one to tell everyone.
Visitor	10/6/2008 6:54:34 PM	Ignorant_Husband	Yes I think he should be told. I would want to know if it were me.
Visitor	10/6/2008 5:51:56 PM	Fragile_X	I don't believe in abortion--period. Therefore, I would choose not to abort either fetus. However, I could understand somewhat a person wanting to abort a mentally-disabled fetus, but I still think it's wrong.
Visitor	10/6/2008 5:49:34 PM	Private_Woman	Again, morally, I think the family should be told. Legally, it probably wouldn't happen.
Mahmood_632	10/6/2008 5:48:35 PM	Ignorant_Husband	Yes, I think they should tell the husband because he does have the right to know that he is not the biological father and that he is not a CF carrier for futher reference. Hopefully he and his wife can overcome situations that may arise and continue being the parents to this child that they always have been
Visitor	10/6/2008 5:47:27 PM	Ignorant_Husband	Morally, I think the husband should be told. Legally, it is probably a matter of confidence and they may not be able to legally tell him because of all the laws that pertain to privacy.
Wyatt	10/6/2008 11:47:00 AM	Fragile_X	This is a tough one. I don't believe she should abort the fetus if it is healthy. When the child is older she can explain the problems that could arise. Also, there may be medical break-through for that particular gene. If the fetus is not healthy, I believe she should have the right to choose. There are so many reasons I believe that. For one, who will take care of this child when I am gone? I believe that would be the big question for me. Each person's situation is different.
Wyatt	10/6/2008 11:39:04 AM	Private_Woman	I do not believe they should tell the family. I don't agree that she should keep from her family but patients should have the right to privacy of their own genes. If people did not have that right, their would be less people wanting to be tested for different medical situations.
Wyatt	10/6/2008 11:34:34 AM	Ignorant_Husband	I think everything should be explained to both the mother and father (about how each would need to be a carrier) and when the results come in they need to be open with the results. Let the father come to his own conclusions. Maybe the clinic should also explain to both parents what it would mean if only one comes back a carrier to give the parent a chance to confess before the results are in.
Visitor	10/6/2008 9:23:20 AM	Fragile_X	No, she does not have the right to abort the healthy fetus.
Visitor	10/6/2008 9:21:33 AM	Private_Woman	Yes, they should tell the family. If this was the cause of the mother of all siblings death, they have a right to know.
Visitor	10/6/2008 9:19:01 AM	Ignorant_Husband	I think the husband should be told. Telling the mother privately breaches confidentiality because both parents were involved in the testing. I feel the biological father should be told because he is at risk of possibly having a child with CF. However, since the may not know who the father is this may not be possible. Also, since he is not the party requesting testing this could be a breach of confidentiality.
Mahmood_632	10/5/2008 11:46:24 PM	Fragile_X	NO!! I am totally against her aborting either of the fetus'. That should not even be an option for her. That is being selfish in herself. I believe that a child is a gift from God and if your child does have some kind of disability or not, there is no reason to kill it. There are other options for that parent such as adoption because there are so many people out here who would love to have their own children but are unable to do so.
Mahmood_632	10/5/2008 11:38:03 PM	Private_Woman	I feel that the family should know but the counseling center should not be the one to give out that information b/c of the privacy act of the patient. Maybe the women will tell them when she feels the time is appropriate so that the others can be tested also.
Mahmood_632	10/5/2008 11:30:31 PM	Ignorant_Husband	Yes, I think they should tell the husband because he does have the right to know that he is not the biological father and that he is not a CF carrier for futher reference. Hopefully he and his wife can overcome situations that may arise and continue being the parents to this child that they always have been.
Visitor	10/5/2008 4:50:10 PM	Fragile_X	The mother has the right to choose
Visitor	10/5/2008 4:48:54 PM	Private_Woman	The clinic should send out information to everyone in the family
Visitor	10/5/2008 4:41:31 PM	Ignorant_Husband	They shoukld first give the wife tghe opportunity to tell tghe husband the truth. Then they should only tell him the medical facts. He should be smart enough to figure the rest out.
Visitor	10/5/2008 2:00:53 PM	Fragile_X	It is the woman's decision to make and not the medical personnel, but they could explain to her that even though the fetus is a carrier it may not ever be affected by this gene. I mentally disabled fetus would not be of decision making age until 18 years of age anyway... It's all up the the parents.
Visitor	10/5/2008 1:53:33 PM	Private_Woman	Due to the privacy act of the client if she does not want any information disclosed then it won't be no matter. If the family has concerns due to their past medical history within the family then they must take it upon themselves to seek medical testing. If the woman wishes to not tell her husband then it is solely her choice and is not the medical staff's responsibility to notify anyone.
Visitor	10/5/2008 1:46:53 PM	Ignorant_Husband	Yes, i do believe they should be told at the same time. If the mother didn't want the father to know then she would have avoided the situation all together. If the mother did not give the child the last name of the biological father then I guess it should be her decision to notify him of him having offspring...
Wyatt	10/3/2008 3:21:19 PM	Fragile_X	I don't think that she should have the right to make a decision that would affect a future daughter's life based on the fact that the daughter could merely be a carrier because that would be denying the daughter the same rights to testing as what the mother is doing. Also the daughter might not feel that the condition is something to have an abortion over, and would decide to keep her baby.
Wyatt	10/3/2008 3:18:36 PM	Private_Woman	I don't think that the genetic counseling center should disclose the test results to the rest of the family directly because that could cause panic throughout the whole family and it's against the law. Instead the center could mail information about the condition to the family's home so that someone else might see it and seek advice on their own.
Wyatt	10/3/2008 3:15:46 PM	Ignorant_Husband	I think the mother should be told privately of the findings. The couple went to the center to be tested on whether or not a future child between them would have CF or not, and it was determined that it would not happen. The mother should make the decision on her own to tell her husband if she chooses to. Also the counselor should not tell the biological father because it is unknown as to whether he will want children in the future and if he does, then at that time him and his partner can be tested of they choose to.
Wyatt	10/3/2008 3:00:03 PM	Fragile_X	My answer to this question will be a bit biased because I have a sister who has down syndrome. I feel that just because I child has a disability does not mean that they should not have a chance at life. There are many disabled children that lead a happy life. I definately think that she should not abort the healthy fetus just because it is a carrier. There is a chance that this child may not even want to have kids so there is no reason for her to not have a chance at life because of that.
Wyatt	10/3/2008 2:52:47 PM	Private_Woman	The genetic counseling center can not disclose the test results to the rest of the family due to the doctor-patient confidentiality rule however they should encourage the patient to let her family know what is going on so they can be tested. The doctor should explain to her how important it is that they be tested since they are all at risk.
Wyatt	10/3/2008 2:42:45 PM	Ignorant_Husband	I think they should advise the wife and the husband of the results of the DNA tests. Since they both were tested they both deserve to know the truth. The information should not be withheld.
Mahmood_632	10/3/2008 12:14:48 AM	Fragile_X	She should not abort the baby. I think that she made the dision to have a baby, and she should except the baby as it is.
Mahmood_632	10/3/2008 12:08:09 AM	Private_Woman	Yes, I think the counseling center should tell the family, because they are also at risk, and as long as they are aware of the problem they can treat it, therefore the better off they are.
Mahmood_632	10/2/2008 11:59:52 PM	Ignorant_Husband	I'm a little confused, if the information indicates, and other DNA information confirms that he is not the biological father then how has now been accidentally discovered that he is a CF carrier, doesn't that mean that he is the biological father. Either way the counselor should get in touch with him, and let him know if he is a carrier or not. The counselor should be 100% honest with the mother and father no mater what the consequences are.
Wyatt	10/2/2008 9:03:35 PM	Fragile_X	i feel like should do whatever she thinks it is right for her daughter. they always say mothers know the best and i believe that is true. i also think she is thinking far ahead and wants to take care of her daughter but then again maybe her daughter wouldnt want her to do this. it is hard to say because you are not feeling what this mother is feeling.
Wyatt	10/2/2008 8:57:22 PM	Private_Woman	this is very tough, i know when you go to see your doctor they disclose how everything is so confidental. i think it should be up to her if she wants to say something. i know it may put some other in danger but it is her family. i feel like she will make a right decision. if nothing else, maybe doctors should send some information to the house regarding colon cancer so they would be eduacted on it.
Wyatt	10/2/2008 8:51:22 PM	Ignorant_Husband	i think husband should be told that he might not be the father. i know it may cause alot of problem but you dont want to cause more problems. the mother should be told in private and consider bringing her husand into this. this is something that should involve all parties, because they suppose to be all adults. defintely, genetic center should contact with him. i dont see reason why not.
Wyatt	9/30/2008 5:49:01 PM	Fragile_X	I am a catholic and have been raised to not support abortion no matter the circumstance. However I am pro-choice if it is under the right circumstances. This however does not fit in any of those circumstances. Abortion is a cowards way out. Just because her baby may or may not have the disease, or may be a carrier does not give her the right to take it's right to live. This baby was given to her for a reason, whether she keep it herself or give it up for adoption. There are plenty of families out there wishing they could have a child and can't when there are thousands of abortions because women don't want to deal with a baby for whatever reason.
Wyatt	9/30/2008 5:44:39 PM	Private_Woman	The testing center has no right to disclose this information even though the rest of her family really deserves to know the truth so they can get treatment if needed. However it is her own right and not the right of the center to tell her family or not.
Wyatt	9/30/2008 5:42:36 PM	Ignorant_Husband	I think they should tell the mother privately. It is a family matter and to have a stranger/counselor tell this huge secret would make things much worse. It is up to the mother to take responsibility and tell both men about the baby and about the gene disorder.
Wyatt	9/30/2008 4:37:24 PM	Fragile_X	No she should not be able to abort. The fact is the child may not have the gene and it is not her decision to decide for her daughter. I also believe that you should go ahead with a pregnancy unless the child has no hope of having a normal life in this case if the child is mentally retarded then yes she should abort. In todays world people are to cruel and non excepting so the child would be made fun of.
Wyatt	9/30/2008 4:34:43 PM	Private_Woman	yes because her children deserve to know that it is in their genes and heredity to. They could maybe prevent death by taking care of themselves and having colon exams often
Wyatt	9/30/2008 4:32:35 PM	Ignorant_Husband	Yes the husband should be told and so should the biological father simply because for one they deserve to know and for another to keep another person from getting the cf. The truth is what needs to be told
Wyatt	9/30/2008 6:37:01 AM	Private_Woman	I know everyone has gone to the doctor and they have asked you about your family history. If she does not let her own family know that she has this condition, then they could go through life without knowing that risk. I would rather know that I could develope cancer later on in life than not knowing. She should tell the family.
Wyatt	9/30/2008 6:32:39 AM	Ignorant_Husband	I think that he should be told. He is not going to not love the child any less than what he already does, but their chances of having another baby with CF are 100%. Would they want the child to go through his life with this disorder? I would think not.
Wyatt	9/28/2008 11:39:04 AM	Fragile_X	I am for pro-choice, but not for the wrong reasons. I could understand aborting if the child was going to be disabled but not if the child was just carrying the flawed gene. The women is making the decision for her unborn child. If her daughter is just a carrier, that doesn't mean she'll have disabled grandchildren. Having to take care of a disabled child, or adult for that matter is hard. She knew with her family history she might have a disabled child. If she didn't want this to happen, she should have never gotten pregnant. She made the choice to become pregnant, now she should be happy that she can give birth to a child.
Wyatt	9/28/2008 11:32:46 AM	Private_Woman	The center should not tell the family, once again, it is not their place to. There is patient confidentially that should be upheld. If the center did tell the family the center would be liable for releasing confidential information. The center should urge the woman to tell her family but not do it for her.
Wyatt	9/28/2008 11:28:37 AM	Ignorant_Husband	I don't believe the center should tell the husband, it's not their place to. They should have a private talk with the mother and share their findings with her and urge her to tell the husband the truth. Sooner or later the husband would find out. When heath is a concern, I can't think of a better time to tell him the truth.
Wyatt	9/27/2008 10:06:30 AM	Fragile_X	I do not believe abortion is ever the right choice. And certainly not to "pick and choose" the sex or characteristics of your child. That is simply appalling to me personally. I think she is being selfish in her choices. I would not have children at all if that were the case. There is an abundance of perfectly healthy children in the world who need families.
Wyatt	9/27/2008 10:01:23 AM	Private_Woman	The genetic counseling center should not disclose test results to the rest of the family. Individuals own the information in their genes. Right or wrong, that is her choice and the center has no choice but to abide by her wishes. I, on the other hand, would certainly want my entire family to know in order to prolong their lives. I do not know why any mother would not want the same for her children.
Wyatt	9/27/2008 9:57:08 AM	Ignorant_Husband	Well, isn't that a sticky situation?! I would think under doctor/patient confidentiality that the father (or so he thinks) would not be told that he is not the biological father but I do think they should tell the mother. I do not agree with this but that is confidentiality. I also think the father should be contacted about being a CF carrier.
Wyatt	9/26/2008 10:05:43 PM	Fragile_X	I do not think that she should be able to abort the healthy fetus and I am unsure about my decision on the mentally-disabled fetus. This is a moral decision but I would probably side with aborting.
Wyatt	9/26/2008 10:00:34 PM	Private_Woman	I think that, by law, the counsler cannot disclose this informantion without the patients consent. If I am incorrect and it is not the law, I think by all means that the counsler should disclose this information that could ultimately save lives.
Wyatt	9/26/2008 9:54:40 PM	Ignorant_Husband	I think that both parents should be told the results of the test. They both went and had the test ran, therefore they should both learn the results. I do not think that the biological father would have to be told unless the couple agrees that he needs to know.
Wyatt	9/26/2008 6:48:54 PM	Fragile_X	If abortion is legal where she lives, then she can have an abortion for what ever reason she has. Personally, I don't think that she should be able to abort a child just because she is a carrier, but it is not my decision. With all the people out there waiting for babies to adopt, I don't think anyone should have an abortion, but it is the woman's personal right to choose.
Wyatt	9/26/2008 6:35:54 PM	Private_Woman	HIPPA laws prohibit the doctors from telling the family about the patient's diagnosis. However, I think there is something in the constitution that allows doctors to make decisions in favor a sick child even if the parents say that they don't want them to have the treatment. I don't know if the same would apply to the unaware family members. Because the family members may also develop the condition, they too have a right to know, and should be tested. If the woman was thinking clearly, she would want what is best for her family. Doctors could probably get past the privacy laws by seeking the advice of the hospital attorney.
Wyatt	9/26/2008 6:27:46 PM	Ignorant_Husband	The parents should be told that in order for a child to have CF, both of them have to be a carrier for it. Fortunately, the father is not a carrier. When they begin to ask questions about how it happened the first time, they should be told again that the only way for a child to have CF is for both parents to be carriers. This will force a discussion between the parents. It is not the responsiblity of the conselors to tell the father that he is not the paternal father of his first child. The evidence should be enough to tell him that. If the mother knows who the paternal father is, then she should provide that information, so that he can be contacted. He should know he is a carrier in case he wishes to have other children.
Wyatt	9/25/2008 10:07:29 AM	Fragile_X	I don't think she should abort the fetus whether it is a carrier, healthy, or mentally-disabled. I am going to college to be an exceptional educator, mild and severe disorders and they are people too. I deeply disagree, but it is her choice as a woman to abort or keep the child. She will have to deal with this decision for the rest of her life.
Wyatt	9/25/2008 10:01:15 AM	Private_Woman	My fist response is shouldn't the other biological family memebers know why she died at such an early age. I don't think the counseling center should tell the family because of the privacy issue. I say this because that is the law and they don't have the right. The daughter/mother/sister should tell the family. It is a little messed up that she is hiding it though. But she is the one who has to live with the secret and if she loved her family she would tell them unless she wants them to die.
Wyatt	9/25/2008 9:53:50 AM	Ignorant_Husband	I think the husband should be told and the child as well. I do think she should be told privately because that is her problem and she is the one who has to bare it. It is there medical dutty to tell him that he is not a carrier of CF. I don't think they should contact the biological father because he didn't go for testing.
Wyatt	9/24/2008 5:18:07 PM	Fragile_X	I do not feel that she should abort the carrier/healthy fetus, or the mentally-disabled fetus. However, I believe she has the right to make her own decision.
Wyatt	9/24/2008 5:15:06 PM	Private_Woman	They should not tell the family. The woman has the right to privacy of her health condition. Even though her children may be at risk, the genetic counseling center does not have the right to disclose the woman's health information.
Wyatt	9/24/2008 5:11:05 PM	Ignorant_Husband	The counselor should tell the husband that cystic fibrosis is a recessive disorder and inform him that he does not carry the gene. It is then up to the husband to put it all together.
Wyatt	9/24/2008 5:00:06 PM	Fragile_X	This is a very volatile subject. I believe it is a woman's choice to have an abortion for whatever reason she chooses. I am pro-choice but anti abortion. So whether or not I think she should have the abortion in either case? No. Yet it should always be a woman's choice and not a government's choice. It is her body.
Wyatt	9/24/2008 4:56:20 PM	Private_Woman	No I think they should respect the patient's rights to privacy. If other family members were concerned with their genes, let them get their own tests ran.
Wyatt	9/24/2008 4:53:38 PM	Ignorant_Husband	They should only tell the husband if it is legal for them to do so. They have to tell the mother since she is the biological mother. They do have to tell the husband that he is not a CF carrier since he had tests ran to find out. They can't with hold medical information about himself that he has requested. I think he would then figure out if he is not a carrier, than the first child could not be his. It is not the responsibility of the clinic to explain it. As for the biological father, I wouldn't think the genetic counselor would need to contact him.
Wyatt	9/24/2008 12:05:41 AM	Fragile_X	I am totally against the aborting of the carrier/healthy fetus and the mentally-disabled fetus. Regardless of the disability that is still your child and they should be loved the same as a normal child. The child was not asked to be brought into the world. Before aborting the child have it and it the women felt she couldn't take care of him/her like she should then there are people who are willing to take them or measures that can be taken rather that abort. Besides you don't actually know till the child is born. As my son had a heart murmur and had to have open heart surgery at 5 months old but this is something that wasn't detected while I was pregnant. Me nor his father has or had any problems. My little girl who is almost 3 months doesn't have any problems either.
Wyatt	9/24/2008 12:00:46 AM	Private_Woman	No I feel that it's not there place to say anything if she doesn't want it told. This is her privacy however I think that she is being selfish by not telling them. The sooner you find out the better the chances for getting the problem fixed. Being that her mother had it, it's very possible for her childern and there childern and so forth.
Wyatt	9/23/2008 11:57:59 PM	Ignorant_Husband	Yes the husband should be told. It is important,everyone should know if they are a carrier of something. If he was to have other kids by someone else he should know that he is a CF carrier. In this situation if he had not been a CF carrier he still had a right to know rather he still choose to claim the child as his or not. Also it's only fair to the child.
Wyatt	9/23/2008 7:51:18 PM	Fragile_X	I don't think she should abort either of the fetus because that is a human bein and they have their own decisions. I think abortion is just not rihgt.
Wyatt	9/23/2008 7:49:28 PM	Private_Woman	Yes i beleive they should tell the family becuase they too could have the same problem with thier colon. they have the right to know.
Wyatt	9/23/2008 7:47:41 PM	Ignorant_Husband	I don't think they should tell the father because this would just cause problems with their realtionship and they should be together for that child.
Wyatt	9/23/2008 10:35:22 AM	Fragile_X	She has the right to do what she wants, but in my opinion if the baby was a carrier/healthy fetus doesn't mean that someone will end up with this disability. I have known different woman that are carriers of certain diseases/disabilities and their children are healthy. I would not abort the fetus whether is was a carrier or had the mental disability. God blesses me with a baby and no matter the condition it is a gift from God.
Wyatt	9/23/2008 10:26:25 AM	Private_Woman	I know that they probably can't share this information due to privacy acts, but in my own opinion I believe they should contact the rest of the family. This could mean life or death for some of her family members. The woman has no right to keep this information a secret, to put someone in her family through pain, or possibly an early death. Early detection is the key to life.
Wyatt	9/23/2008 10:17:31 AM	Ignorant_Husband	I think the husband should be told. He may want to have more children in the future with his wife and if both parents have to be carriers then this indicates that they should have normal children together. I also think the father should be told so that his wife can be tested to see if she is a carrier. This may indicate to them whether they should have children or not.
Visitor	9/22/2008 2:57:06 PM	Fragile_X	In this day and age woman can abort for the reason of anything! All I know is I wouldn't abort for any reason.
Visitor	9/22/2008 2:52:41 PM	Private_Woman	No Because this information is about the woman it is her right not to have it told. THIS IS STUPID! Besides if the granmother died of colon cancer there is enough iformation out there to signal the rest of the families to have check-ups just as this woman is doing.
Visitor	9/22/2008 2:46:45 PM	Ignorant_Husband	yes
Visitor	9/21/2008 6:26:38 PM	Fragile_X	I oppose abortion. But it is legal, and we know when we give people choices that people are often cruel when making them.
Visitor	9/21/2008 6:25:16 PM	Private_Woman	I think the center should send out information that conatins the fact, statistics, and current information with an opportunity to come in for a consultation to everyone who could be at risk. And since she gave her families information, I would send it without attaching her information along. It can be a standard guideline.
Visitor	9/21/2008 6:21:58 PM	Ignorant_Husband	I think the mother should be told privetely. Through time and medical treatment, it is ineveitable that the father will find out the truth. I would also explain that to the mother, because knowing tat she has to tell him the truth. But she should be allowed that opportunity.
Visitor	9/18/2008 12:11:06 PM	Fragile_X	I just want to say one thing...or more. In this case, I am becoming very angry. Fetus, zygote, whatever it is, SHOULD NOT BE ABORTED, OR KILLED! This subject makes me sick to think of women killing their own child!!! Just because it might not be as perfect as they want it. say you didnt have genetic testing, and your child came out with a mutation, I hope you wouldnt cut its throat.Abortion is murder despite the reason.I dont think she should abort the carrier/ healthy fetus, or the mentally-disabled fetus.Mentally retarded childrenare people to, and i believe if you dont want to take the chance on having a special child then you should not be having unprotected sex. JUST MY OPINION!!!
Visitor	9/18/2008 11:51:07 AM	Private_Woman	Oh My God!!! The 30-year-old woman should have better sense than what she has. It is not a sin to get cancer. Maybe she is ashamed, and doesnt want the rest of the family to know, but either they find out soon, or wait until she dies to find out what may have saved their live down the road in the end. The 30-yr-old woman should think of others as well instead of just herself!!I believe the rest of the family should be informed of their POSSIBLE medical condition. People never know, finding out sooner rather than later just might save their lives. My family found out my nephew had cancer in just enough time to save his life, and that is why i believe the family should be aware!!
Visitor	9/18/2008 11:41:47 AM	Ignorant_Husband	I believe The mother should be told in private, however, the husband should be told about the non paternity findings as well.What he decides to do there on is his choice,but he should be given the choice. No sense in keeping him in the dark about something so serious. The biological father should be aware that he is a father, because everyone involved has the right to know. especially since he is a carrier of CF. I believe the genetic counselor should be getting in touch with him.
Mahmood_632	9/15/2008 8:41:08 PM	Private_Woman	Yes they should tell the family because more than likely one of them will have problems from this. Especially since it is genetic.
Mahmood_632	9/15/2008 8:38:35 PM	Ignorant_Husband	Yes, I think the husband should be told. I belive that it is the right thing to do in this situation. The wife should man up and tell him.
Mahmood_632	9/13/2008 8:11:49 AM	Fragile_X	No I don't think that she should abort a healthy fetus. It's not fair to the unborn child to have her life taken because she may be a carrier. Everyone has to make their on decisions and in my opinion if it were me I couldn't abort either fetus.
Mahmood_632	9/13/2008 8:06:59 AM	Private_Woman	I understand that she doesn't want anyone to know. Maybe she doesn't want to worry them. But in all fairness I think that yes most definitely they should be told. Especially her children and siblings. Its inhereted so out of all probability one or more of the family members will have the same condition. My vote is yes tell them.
Mahmood_632	9/13/2008 8:02:34 AM	Ignorant_Husband	Yes, I think the husband has the right to know it isn't his child, and that he isn't a carrier.
Visitor	8/26/2008 7:42:43 AM	Fragile_X	IT MIGHT BE CURABLE
Visitor	8/26/2008 7:37:53 AM	Private_Woman	NOTHING
Visitor	8/26/2008 7:35:28 AM	Ignorant_Husband	NOTHING
Visitor	5/19/2008 5:28:02 PM	Fragile_X	yes she should have the right to aborther child because, she has the final say in what happens to her baby.
Visitor	5/19/2008 5:21:29 PM	Private_Woman	no they should not inform the family of her condtion because, she can inform her family of their risks.she own her own information no matter what the family and her share. she is the only one who has rights to her information.
Visitor	5/19/2008 5:06:36 PM	Ignorant_Husband	yes the husband should be told. the mother also should be told privately so she can be given the chance to inofrm her husband her self. no they are not colluding, the testing center is trying to give the mother the opportunity to tell her husband. yes the canter should tell him that he has achild and that any childern he has will have a chances of also becoming a carrer
Visitor	5/18/2008 9:13:21 PM	Fragile_X	In my opinion, there is no excuse to abort an unborn baby. Ever. She should love the child for who it is even if it is born with a disability.
Visitor	5/18/2008 9:11:36 PM	Private_Woman	In order to avoid a lawsuit, I believe the doctor should not tell the information if the woman. The woman should care enough about her family's health to tell them, or let the doctor tell them that they are at risk.
Visitor	5/18/2008 9:09:03 PM	Ignorant_Husband	If the father has been acting as the child's biological father since birth, he should be allowed to know the results of the test. If he has not, he has no right to know the results of the test.
Visitor	5/18/2008 7:03:15 PM	Fragile_X	In my own opinion I believe abortion is morally wrong and it is basically murder. I think anyone who does that should go to jail and it should be a law not to do it. Even if the baby has something wrong with it I believe it should still have a chance at life and seeing what it can do. So no I don’t think she should abort the fetus under any circumstances.
Visitor	5/18/2008 6:59:34 PM	Private_Woman	It is not actually up to the counseling center to tell the family, it is the wife’s responsibility to let her family know that they are at risk. If she doesn’t want them to know they are at risk to this condition then that is her fault and hopefully one day she will let them know. But if the wife does end up dying in the end then I think the center should let the family know.
Visitor	5/18/2008 6:55:16 PM	Ignorant_Husband	I believe that it is up to the wife to tell her husband that he is not the biological father of that child and no the doctor’s decision. But I do believe they should tell him that he doesn’t have that genetic gene.
Visitor	5/13/2008 8:43:55 AM	Fragile_X	No she should not have the right to abort the fetus. Furthermore, she should not abort any fetus regardless of disability.
Visitor	5/13/2008 8:43:06 AM	Private_Woman	No they should not tell the family. Medical information is private and they cannot disclose it without written consent.
Visitor	5/13/2008 8:42:17 AM	Ignorant_Husband	No they should not tell the husband.
Visitor	5/13/2008 8:40:46 AM	Fragile_X	No she should not have the right to abort a healthy fetus.
Visitor	5/13/2008 8:39:03 AM	Private_Woman	No because medical information is private. She has the right to keep this information to herself unless she gives written permission.
Visitor	5/13/2008 8:37:14 AM	Ignorant_Husband	No
Visitor	3/25/2008 7:30:55 AM	Fragile_X	This is a tough one. I mean she is a carrier of the gene so should her mom took her life. No.. a child is a gift.
Visitor	3/25/2008 7:29:28 AM	Private_Woman	YES!!! The rest of the family should be notified. Maybe if this could be detected earlier then there could be ways to prevent it. But if she doesn't let them know then it could be to late to save their lifes.
Visitor	3/25/2008 7:27:41 AM	Ignorant_Husband	They should definetly tell the non biological father for sure!! I would want to know if i thought that was my child. Not only should they tell the father but find the other father and let him know that he is a CF carrier.
Do_Amaral_005	3/12/2008 8:11:07 AM	Ignorant_Husband	I think that the mother should be told privately, and then the both told together. I think that the biological father should be informed by mail and a request should be made in the letter for him to come in to dicuss it further.
Visitor	3/1/2008 10:33:17 AM	Fragile_X	I don't think abortion is right, but it is her decision to abort her fetus. I don't think she should abort either of her fetus'.
Visitor	3/1/2008 10:29:39 AM	Private_Woman	The patient should share the results with her family just for their own safety. The genetic counselor should not tell them though because of the patient's privacy. morally though, the patient should feel obligated to tell her family.
Smith_003	3/1/2008 10:24:08 AM	Ignorant_Husband	I think that the mother should be told privately about the paternity of her child. Then she can make her own decision about telling her husband. Chances are that she alread knew that her husband was not the father of her child. I also think that the biological father should be notified that he is a carrier. If he chooses to have kids, he can find out if his partner is a carrier also.
Smith_003	2/29/2008 10:03:26 PM	Fragile_X	I respect every life. I mean, if i were the women, i would give birth to child. Child is very precious life. Even if the child will get hurt or disease, that's my child. I will support and help the child until I can. Later, the child will have difficult life, but I can make the child's future better. Recently, every society has been promoting interests for handicaped people. Therefore, I would let my wife born the baby rather than having an operation to kill the baby because life is very important and precious.
Smith_003	2/29/2008 9:49:51 PM	Fragile_X	I think that abortion is always the decision of the female. No matter what her reasons. We never question under any other situation, but when she has a real reason we do? No. I think it is all on her.
Smith_003	2/29/2008 9:47:27 PM	Private_Woman	They should tell the family immediately. It's also their fate. I mean, the mother of the family died early becaus of colon cancer. It means, their sons and daughters can be affected by their mother or father's gen. It's true. I know that that woman get predicament. If she doesn't tell, later, someone will get a cancer. That's not an good idea. To save the whole number of family, she has to decide what the good thing is. First, they tell the family the truth. Second, if any one of the family has a problem, she/he has to find good way to cure. I know that it's serious problem and if they tell, their whole family will be worried about cancer. But, if they really love and trust each other , they got to find the best way which is Sharing the problem.
Smith_003	2/29/2008 9:46:21 PM	Private_Woman	I think that it is the patients right to not want to tell her family. But it is putting her family at risk. But also, that is her right. She owns the information. They should tell the family that the women will have to let them know what she is willing to disclose.
Smith_003	2/29/2008 9:42:18 PM	Ignorant_Husband	I think that it is the non-biological father's right to know that he is not the father. Only telling the mother would put that pressure on her shoulders, and she might never tell him. The genetic counselor should get in touch with the biological father.
Smith_003	2/29/2008 9:29:44 PM	Ignorant_Husband	I think that they should thell the husband the truth. It's very important to the family's whole life. Situation is difficult to decide, they should know their realy story. Counselor must be honest to people who are troubled. Also, counselor doesn't have to make any mistake. In order to have CF, both parents must be carriers. Even if the husband is not the biological father of the child, they got to tell him about this. Of course, it will be difficult , but I think that the husband should know it. And, he has to find the solution with his wife. They are a married couple. In my opinion, if they love each other, they should solve that problem. Man and wife are one flesh. CF is serious problem. even now, there is a few way to cure CF. Therefore, they have to tell the husband as soon as possible.
Smith_003	2/29/2008 8:02:13 PM	Fragile_X	I think it should be up to the woman whether or not she wants to abort. I on the other hand think abortion is wrong. I also think that the woman should not be able to make the choice of her future daughter on whether or not the daughter should abort her childs fetus. Reason being is because, she does not have the right to make the desisions of her future daughter. Only the daughter and her husband should have that right.
Smith_003	2/29/2008 7:46:56 PM	Private_Woman	I think that this woman's family has the right to know that she has inherited this condition.However, the counceling center has to respect the rights of the patient. On the other hand, if the woman's mother died at a young age of this disease, the siblings should already have a clue that they should get tested. So, actually the counseling center has no choice but to keep quiet about it, but they should also strongly encourage the woman to share this information with her husband, children and siblings. She could be saving their lives if they get tested early enough.The woman probably thinks that she is protecting them, but, she is really putting them all in danger.
Visitor	2/29/2008 7:44:02 PM	Fragile_X	I think that this woman's family has the right to know that she has inherited this condition.However, the counceling center has to respect the rights of the patient. On the other hand, if the woman's mother died at a young age of this disease, the siblings should already have a clue that they should get tested. So, actually the counseling center has no choice but to keep quiet about it, but they should also strongly encourage the woman to share this information with her husband, children and siblings. She could be saving their lives if they get tested early enough.The woman probably thinks that she is protecting them, but, she is really putting them all in danger.
Smith_003	2/29/2008 7:37:11 PM	Fragile_X	For me a life is a life and I don't think that she should take the lives of undeveloped children who have no way of defending themselves. So the children might have mental retardation and learn more slowly, at least they would be alive. Again so if your daughter now has the carrier gene, at least she is alive and can have a chance of a good life. I don't think it is right of the women to abort either the mentally disabled fetus or the carrier/healthy fetus.
Smith_003	2/29/2008 7:33:17 PM	Private_Woman	The family should be told that they have the possilbity of a medical condition that could cause early death. Personally it is ridulous that the woman would want to keep the diganosis secret anyway. Patient privacy to me has no effect in this case. To me I think should a doctor risk the lives of others just to keep a womans secret or information private? No! Also it is not like the doctors are posting this woman's information out in public for the whole world to view. They would just be telling the family memebers in order to prevent their possiblity to the disease. It is for the good so the information needs to be shared.
Smith_003	2/29/2008 7:26:33 PM	Ignorant_Husband	I think the husband should be told about the non parternity findings. If the man was to leave his wife sometime in the future for reasons not related to this, he shouldn't have to think he carries a gene CF when he actually doesn't. The mother probably should be pulled a side privately just so she would know a head of time how to compose herself in front of her husband or possilby tell him herself. Also the Testing Center has no right to withhold the test results from the father because after all the results will effect the rest of his life. As for the biological father, I think that he should also be informed that he is a carrier of CF, because if I was I would like to know.
Smith_003	2/29/2008 7:15:29 PM	Fragile_X	I feel like she should not be able to abort the girl baby carrier. The baby could choose not to have biological children, and use a donor egg or adopt a child. Her daughter might not even want children. I feel like the woman would be making a decision that wasn't hers to make. I feel like the woman should not be able to abort the mentally-disabled fetus either. The fetus is her son or daughter. I feel like any good mother would love her child unconditionally, no matter what the circumstances.
Smith_003	2/29/2008 7:05:35 PM	Private_Woman	I think that the woman's family should be told by the genetic counseling center. If the condition only affected the woman, I would say that she has the right to keep the information private. However, this condition can possibly harm other people in her family. If the center could prevent harm to coming to the woman's family, I think they have the obligation to.
Smith_003	2/29/2008 6:56:05 PM	Ignorant_Husband	I feel like the husband should be told. He has the right to know that he is not the child's biological father. I feel like the mother should not have the privilege of being told privately. I feel like the genetic counselor should definitely contact the father, because he has a right to know that he is a CF carrier.
Smith_003	2/29/2008 6:45:50 PM	Ignorant_Husband	No, I think that they should should tell the mom privately, and let her decide when or if the husband should be told that he is not the biological father. That is obviously a very personal issue which should be handled delicately. I think the mother should contact the biological father and let him know that he is a carrier of CF. She will also more than likely be telling him for the first time that he fathered her child. So, several lives will be affected by whatever decisions are made in this situation.
Smith_003	2/29/2008 6:06:18 PM	Fragile_X	No, she should not be able to abort a healthy fetus. Yes it will stop the disorder but you can't just kill someone because of it. Thats like if you wanted to bare a male child and aborted every female until you got what you wanted. I believe the disabled fetus should be allowed to be aborted because of the danger and problems the baby will have.
Smith_003	2/29/2008 6:01:51 PM	Private_Woman	I don't exactly believe that they have the right to tell everyone but I believe they should. It is a must to tell everyone, maybe except the husband. They all should be tested and screened so they too don't die at a young age. It's selfish that the lady would not want her family to know about the lethal condition that they may have too. I believe the person owns their genes but scientist have a right to the information if it will help save lives.
Smith_003	2/29/2008 5:54:12 PM	Ignorant_Husband	The supposed father should not be told directly. The mother should be told privately and should be up to her to tell the supposed father. The real father should be contacted immediately so he will know that he is a carrier of CF and will not have another child with cystic fibrosis.
Smith_003	2/29/2008 5:28:20 PM	Fragile_X	I don't beleive that she should abort either, because both have the right to a life.
Smith_003	2/29/2008 5:25:22 PM	Private_Woman	I believe that they should inform the family of their risks, but keep the womans privacy protected until she is ready to share the news.
Smith_003	2/29/2008 5:22:41 PM	Ignorant_Husband	I strongly believe that they should not tell the husband. Although the woman was not faithful when she concepted the baby, it is no way the child's fault, and may turn a happy family, into a mess. Right now I believe that they should focus on the child, and what is in its best interest.
Smith_003	2/29/2008 5:09:07 PM	Fragile_X	Personally I do not agree with the choice to aborting it. It upsets me that should couldn't love the mentally-disabled child just as much as any other, yet I understand that it is a really hard decision and I do not believe that we have the right to take that away from her. Even though she could put her up for adoption it would be just as hard for me to know that I had a child out there somewhere that was suffering with someone else that may not be treating her as well. But, if the fetus is healthy then I do not believe that she should abort it though, let her daughter make that decision when she gets older because at that point it really isn't the mothers choice to make any more.
Smith_003	2/29/2008 4:52:58 PM	Private_Woman	Yes, not directly go to them and say, "Well your sister was here and she may have it so we should test you." But just sending someone to let them know that they are at risk and they most likely need to be tested for it. I would never be able to live with something like that if my family member died because I was to stubborn to help them out and let them know what was going on. I believe that in some way with out telling them that she was there, they should let her family know what is going on with their bodies.
Smith_003	2/29/2008 4:48:29 PM	Ignorant_Husband	No, I believe that it is the mothers choice to decide if the father finds out or not. I know that it mean to say to some extent, but most likely she knows that he isn't the father already so it should be her that tells him not the counselors choice. They should pull the mother aside separately and let her know yet maybe give her the option of them telling the husband too, and then let her handle it from there on.
Smith_003	2/29/2008 2:39:05 PM	Fragile_X	I am pro-choice. Personally I dont think that I would abort a child that I fathered, but I do believe that each woman has the right do do what they wish with their child, whether it is right or wrong.
Smith_003	2/29/2008 2:34:48 PM	Private_Woman	I think that the ethical thing for the testing center to do would be to inform the whole family to tell them they are at risk. I dont understand why the mother would not inform her children that they had a family condition that could potentially kill them.
Smith_003	2/29/2008 2:31:07 PM	Ignorant_Husband	I think that the couple should be told at the same time so that both parties know what is going on. I also think that the testing center should contact the biological father so he knows that he caries the cystic fibrosis gene.
Smith_003	2/29/2008 2:27:20 PM	Fragile_X	Either way, it's her choice: I'm not the judge.
Smith_003	2/29/2008 2:25:33 PM	Private_Woman	If there is a patient with a family that is one of the few exceptions to confidentiality. Relatives equally own the genes.
Smith_003	2/29/2008 2:22:23 PM	Ignorant_Husband	Everybody should be informed. The husband needs to know he's not the father, and the real father deserves to know he's a carrier of CF.
Smith_003	2/29/2008 1:48:25 PM	Fragile_X	No, each child should have their own chances to live.
Smith_003	2/29/2008 1:47:09 PM	Private_Woman	no, the 30 yr old woman should tell the family herself
Smith_003	2/29/2008 1:45:38 PM	Ignorant_Husband	yes, they should tell the husband
Smith_003	2/29/2008 1:38:55 PM	Fragile_X	This woman should not have any right to abort a child because of a genetic mutation. The mutation isn't life-threatening. There is nothing wrong with a child that's different. The child may have more troubles throughout his or her life, but he or she should be able to live that through without anyone else making the decisions for them. It's murder to kill a fetus; it's like killing a child. It should be against the law and this woman should not be able to do so.
Smith_003	2/29/2008 1:35:35 PM	Private_Woman	The genetic counseling center should definitely disclose the information because it's possible that one of her children or sisters could be at risk also. Also, her family deserves to know what to expect rather than having it come as a shock in case she does develop this cancer because it's fatal. The whole family "owns" the information in a person's genes because those genes either make up their own or they come from the same people.
Smith_003	2/29/2008 1:30:38 PM	Ignorant_Husband	They should tell the mother privately first and give her the chance to tell her husband the truth. Then, if she chooses not to or does not by a certain time, they should tell the husband because it is very important that he know that he is CF carrier. This way he knows that if he and his wife have another child or if he decides to have a child with another woman, its highly possible that he will have another child with CF especially if the woman is a carrier also.
Smith_003	2/29/2008 11:17:31 AM	Fragile_X	I think that if this woman feels that is necessary to abort the carrier fetus, then it is her choice. It might be really hard to even have a normal fetus without being a carrier since she is a carrier of the flawed gene herself, but avoiding having a carrier fetus would stop the woman from passing it on. I also think she should abort the mentally-disabled fetus too because it would be so hard to raise a mentally retarted child, and the child would not have a fulfilling life. She might not be able to handle the huge responsibility of taking on a mentally retarded child,so I would leave that decision up to her.
Smith_003	2/29/2008 11:11:33 AM	Private_Woman	I think the genetic counceling center should disclose the test results to the family. If the center doesn't tell the family the results, some of the family members could possibly have colon cancer and not even be getting treatment for it. It is this woman's duty to protect her family as a mother, and by not telling them, she could be killing them. If the genetic counseling center could help save the family members from dying, then why not help? This woman is stupid.
Smith_003	2/29/2008 11:06:16 AM	Ignorant_Husband	Yes I believe the genetic counselor should get in touch with him because he has a right to know that he is a CF carrier. He will need to know that in case he has another child, because that child could possible get CF. I just think it is only fair for him to know the truth.
Smith_003	2/29/2008 10:22:21 AM	Fragile_X	No, the woman should not have the right to have an abortion. If the fetus is healthy and just happens to be a carrier and she has an abortion she should look at it like this, what if her mother had done the same thing, she wouldn't be here. Even if the fetus is mentally retarded, it also has a right to live. So I feel no fetus should ever be aborted.
Smith_003	2/29/2008 10:16:12 AM	Private_Woman	I'm not too sure about this one, if it were my mother I would like to know if I'm at risk of colon cancer, but then again the privacy of the patient is an issue. Since it is hereditary the family has a right to know that they are at risk. The family doesn't have to know that their mother has it, but I think that they should at least know that it is possible for them to get it.
Smith_003	2/28/2008 11:59:13 PM	Fragile_X	I don't think that she should abort the healthy fetus because the chances of her getting pregnant again after so many abortions will be very difficult and very hard on her body. I do think that she is trying to make her daughter's decision for her, because it'll be up to her as to whether or not she wants to risk having a mentally handicapped child. I don't particularly agree with her decision to abort a mentally retarded fetus, but i suppose that if she believes that she won't be able to handle something like that in her life, then that's her decision.
Smith_003	2/28/2008 11:54:24 PM	Private_Woman	I think that they should tell the family after telling the patient what they plan to do first. That way she can just go ahead and accept the fact that she's being selfish and realize that it is very important for the rest of the family to be tested for this because it could save their lives if that doctor's catch it early enough.
Smith_003	2/28/2008 11:49:31 PM	Ignorant_Husband	I think that the mother should decide on if she wants her husband to know about this discovery or not because it's putting her marriage at risk. She should be told privately, first so that she can tell the doctors how something like this happened and they can better make the decision of whether or not to contact the bilogical father of the child to tell him that he is a carrier of that gene. I don't think that it's the test center's place to get involoved in something as risky as this situation. They should let the couple work it out for themselves. But, I do think that, if possible, the center should contact the biological father of the child just to make him aware.
Smith_003	2/28/2008 11:31:26 PM	Fragile_X	The Fragile X Syndrome is an inherited mental impairment. This impairment can deal with learning abilities and lead to more cognitive problems. It can lead to mental retardation. FXS is the most common known cause of autism, or autistic like behaviors. The main character traits are trouble with speech and language development. This 34 year old woman's situation deals with FXS. She found out that she is a carrier of this gene. They offer to give her prenatal testing, but she says she will abort any fetus affected with this syndrome. I think that she should give this situation a chance. It's not fair for her to just throw this away. By taking away this life of the infected fetus, she's taking away a life! It goes into the issues of abortion, and I think that it shouldn't be allowed. I think that the unborn fetus should have a chance to live. With all the medicine miracles and treatment, and people who specifically work with these disabilities, theres a good chance that there's a possibility to cure this disability, or even just make it better. I don't think she should abort either one.
Smith_003	2/28/2008 11:16:59 PM	Ignorant_Husband	Absolutely! if i was the husband i would definately want to be told. the husband has every right to know. i think the counsler should get in touch with the biological father and let him know all the information. i don't think it matters if the mother is told privately because both the biological mother and her husband have a right to know, especially if the husband is supporting the family and the child.
Smith_003	2/28/2008 10:23:55 PM	Fragile_X	No, she shouldnt abort the healthy fetus. Yes, i would abort the mentally-disabled fetus if it was me. I dont want a retarded baby i need a NFL player to come out.
Smith_003	2/28/2008 10:14:04 PM	Fragile_X	No, but i think they should be allowed to if they want to. i dont want to have a mentally disabled kid. No one does. But shit happens!
Smith_003	2/28/2008 10:07:41 PM	Fragile_X	there is no doubt even if fetus is a human being. But i wonder if the fetus who has the flawed gene is born, he or she would have happy future or not. no one has the right to abort any fetus but i don't know what is the best solution for the fetus who has genetis proplems.
Smith_003	2/28/2008 10:06:44 PM	Private_Woman	Yes, because just like the family name they have the right to know family history. If the genetic disorder goes back in time to other family members then yes i think the family has the right to know.
Smith_003	2/28/2008 10:02:44 PM	Ignorant_Husband	Yes, I think they should tell the husband because If i was in the same case i would want to know. Everyone has the right to know so i wouldn't want the Testing Center to withhold any information from me. I always want to know what they know.
Smith_003	2/28/2008 9:46:39 PM	Private_Woman	they should tell the family because high risk of developing colon cancer is concerned with not only the woman but also her family. they should know and then figure out how to prevent to develope colon cancer.
Smith_003	2/28/2008 9:31:13 PM	Ignorant_Husband	I think the husband has to know about the fact. If the testing center does not tell the truth to everybody, it would cause bigger problems that is irrevocable. it is hard for the genetic counselor to tell the fact to the husband directly. i would like to suggest to persuade the mother. she has to tell the truth for the father, child and baby in the future.
Smith_003	2/28/2008 9:30:11 PM	Ignorant_Husband	I think the husband has to know about the fact. If the testing center does not tell the truth to everybody, it would cause bigger problems that is irrevocable. it is hard for the genetic counselor to tell the fact to the husband directly. i would like to suggest to persuade the mother. she has to tell the truth for the father, child and baby in the future.
Smith_003	2/28/2008 9:28:25 PM	Fragile_X	I don't really feel that any type of abortion is acceptable. The only way that I could possibly understand this act is if the mother-to-be was in a severe risk. I really don't think that either act would need to take place, because honestly, miracles happen everyday!
Smith_003	2/28/2008 9:25:40 PM	Private_Woman	I believe that the center should inform the family. Their safety is on the line and I truly think that the woman is being extremely selfish if she isn't fine with their choice to inform them.
Smith_003	2/28/2008 9:23:08 PM	Ignorant_Husband	I think that it is their responsibility to inform the husband of these findings. He has every right to know if the child he loves and has supported isn't his. I do think that they should tell the wife first, and then let her know their intentions of telling her husband, in case she wants to let him know first.
Smith_003	2/28/2008 7:14:53 PM	Fragile_X	no, i dont believe she has the right to abort ant baby no matter if it is mentally-disabled or not if she knew she carried this gene before she got pregnant she shouldnt have gotten pregnant.
Smith_003	2/28/2008 7:12:28 PM	Private_Woman	yes, i do believe they should tell the family because in the lang rub it could save her life and one of her kids or sister or brother might have it to so it might motivate them to go get tested and it might end up saving one of their lives to
Smith_003	2/28/2008 7:08:24 PM	Ignorant_Husband	yes, i think that they should tell the husband because i believe he has a right to know that he jsnt not the father of their kid.
Smith_003	2/28/2008 7:05:39 PM	Fragile_X	I don't agree with either, she is killing a life. She doesn't know how bad it could be and if her daughter will ever pass it on. She should let her own daughter decide, she shouldn't decide for her.
Smith_003	2/28/2008 7:03:40 PM	Private_Woman	I think that they should tell the family but I think that its up to the mother/wife. I don't think its the genetic couseler's job to tell the family, especially because of patient privacy.
Smith_003	2/28/2008 6:59:20 PM	Ignorant_Husband	I think that they should tell the mother first and leave the choice up to her, that way they can tell him or she can tell him that he is not the father. I also think that the testing center needs to tell him that he is a carrier.
Smith_003	2/28/2008 5:01:16 PM	Fragile_X	No i don't believe in abortion at all. Its not right to take somethings life and also if she is going to kill the baby because of it being a carrier she shouldnt have that right cause it should be the future daughters.
Smith_003	2/28/2008 4:57:50 PM	Private_Woman	no the testing center shouldnt inform the family until the the women has passed. because she is a patient of theirs and she does have the right to keep it a secret from them.
Smith_003	2/28/2008 4:54:45 PM	Ignorant_Husband	I think that the mother should be told and in turn she should tell the biological father to get in touch with the testing center to have them relate the news to the him. The other thought to be father should not be told because that is an issue of the marriage which shouldnt be a concern of the doctors.
Smith_003	2/28/2008 1:53:33 PM	Fragile_X	I do not believe that the woman should be able to abort either fetus. The only exception I have to the before stated is that if the birth of this baby jepordizes the mother's life, then I think an abortion would be justified. I believe with an abortion, you are playing the role of God, which is not what we are ment to do. If the baby is mentally-disabled, then God put that in your life for a reason and even though it would be difficult to raise that child, you would learn to love it just as much as a normal child.
Smith_003	2/28/2008 1:48:18 PM	Private_Woman	Legally, the genetic counseling center can not disclose this information to the woman's family since she specifically asked for them not to be notified. However, I do not think that this is the correct way to do things. I believe that the rest of the family should be notified at least that they need to be screened regularly for this type of cancer/disease. I am not really sure what this woman's reason is for keeping this information from her family, but I think that her family definitely needs to know the situation at hand.
Smith_003	2/28/2008 1:42:21 PM	Ignorant_Husband	First of all, in my opinion, the mother should be told privately before the Testing Center informs anyone else. The Testing Center should give her a chance to tell her husband about this information that she has been keeping from him. If the wife chooses not to tell her husband, I then think the Testing Center has the right to tell her husband of the news, because it will directly effect him in the future. I do not think the Testing Center will have any need to contact the biological father.
Smith_003	2/28/2008 11:52:33 AM	Fragile_X	It is the mother's choice to do whatever she wants, laws permitting. Personally, the right to life should not be tampered with, but this is a decision only she should make. If she wants, she has the right to abort any birth, yet I would recommend that she should not abort the fetus. These things are a part of life.
Smith_003	2/28/2008 11:48:18 AM	Private_Woman	No. They should only tell the woman what is wrong with her body, and it is then up to her to do the moral thing by telling her family about the risks. The counselors should only tell people that come to them with questions. If another family member asks the counseling center, then it would be their job to test them and tell them whether something is wrong. Each person has a right to not disclose any information about themselves to anyone.
Smith_003	2/28/2008 11:44:19 AM	Ignorant_Husband	Yes. It is his right to know what is wrong with his body. This is sensitive information which could lead to serious law suits if not handled correctly.
Smith_003	2/28/2008 12:14:30 AM	Fragile_X	I don't think the woman has a right to play god. Which is essentially what she's doing. She's saying she wouldn't care as much for a retarded baby as she would for a healthy one, but either way it's her responsibility. Although, I'm a bit on the fence regarding this issue because I think about all of the diseases we could rid ourselves of if we were genetically "picky."
Smith_003	2/28/2008 12:06:44 AM	Private_Woman	These results affect more than just this woman. She would be very selfish and careless if she didn't inform her family of these results. This information isn't owned. It belongs to all the people it affects. Many people are at risk, and it's only fair that they all know.
Smith_003	2/28/2008 12:01:58 AM	Ignorant_Husband	So that the husband isn't wondering about the results and worrying about infecting another child, he should be told the truth. It is an unfortunate circumstance but he needs to know. And along the same lines the biological father has a right to know who his child is. All parties involved need to be informed of the truth.
Smith_003	2/27/2008 10:36:09 PM	Fragile_X	I definately don't think that she should abort a healthy fetus with the carrier gene, but that decision should be left up to her to decide. I also think it is her decision to abort or not abort the mentally-disabled fetus.
Smith_003	2/27/2008 10:32:35 PM	Private_Woman	I think that the counseling should strongly advise her to warn her other family members about this condition. I think they should also leave it up to her to tell them about her diagnosis and keep it confidential for her.
Smith_003	2/27/2008 10:06:53 PM	Ignorant_Husband	I believe that the mother should be told first privately and then I think the husband should be told seprately.
Smith_003	2/27/2008 9:39:37 PM	Private_Woman	I think if the woman wants to keep it a secret its not the right of the counselor to tell her family. But rather try to pursuade the woman to tell her family because this is a genetic thing that can also affect her family.
Smith_003	2/27/2008 9:35:28 PM	Ignorant_Husband	The husband should be told that he is not the biological father. I think it is his right to be informed of this information. No the mother shouldnt be told in private. I think the counselor should bring them in at the same time. By telling the mother seperately you are given her the power to keep this a secret. And i think the real father should be informed also because he should know he is a CF carrier.
Smith_003	2/27/2008 8:34:44 PM	Fragile_X	The woman has the right to do whatever she wants with what is in her body. She may not have the means to support the a child with a genetic mutation or a carrier of a genetic mutation. It is the womans right to do what she wants with the unborn child.
Smith_003	2/27/2008 8:34:36 PM	Fragile_X	I personally think that if the fetus is healthy than she should not abort the fetus. Even if the fetus is a carrier, it is still healthy and should be able to live and later make the deicison for its kids. However it is the mother's decision. If the mother wants the mentally-disable fetus aborted then nobody can changer her mind.
Smith_003	2/27/2008 8:29:58 PM	Private_Woman	The genetic counselor shoud disclose the results to the family because they should know that they will have to take care of her at some point. The information must be shared with the family because it is important for them to watch over loved ones. They deserve to know that there is a flaw in the genes of the family, for they share the same genes.
Smith_003	2/27/2008 8:29:53 PM	Private_Woman	The genetic counseling center should not tell the rest of the family. The women's information is supposed to be help privately if that is what she wants. However I do think that the genetic counseling center should stress greatly to the women that the family needs to be told.
Smith_003	2/27/2008 8:28:18 PM	Fragile_X	It's a hard thing to decide. I understand that she wants to end the mutation for the sake of her family, but also at the same time she is taking an innocent baby's life, and I do not think she should do that. Ultimately it is her decision what she feels like it is right. This is a tough question.
Smith_003	2/27/2008 8:25:39 PM	Private_Woman	I do not think it is the doctor's right to tell them other family members about the woman's test results against her will. They knew it happened to someone in their family, so they are already aware of the risk of the cancer. I think the doctor shoud just encourage the patient to tell her family when she feels comfortable.
Smith_003	2/27/2008 8:24:30 PM	Ignorant_Husband	The mother should be told of this information privitely, and tell the husband under her own disgression. The mother should at least tell the biological father that he is a CF carrier because this could carry serious problems.
Smith_003	2/27/2008 8:24:09 PM	Ignorant_Husband	I think the entire family should be told the information. The mother should be told privately while the father be told by the mother afterwards. The Genetic counsler needs to get in touch with the biological father so he knows that he is a CF carrier, this could cause problems for the biological fathers family.
Smith_003	2/27/2008 8:20:27 PM	Ignorant_Husband	I think they should inform the mother and enourage her to tell the husband. I do not think it is their right to tell the husband that it is not his child. I do not believe that they should get in touch with the bilogical father without the permission of the mother of the baby. I know he should know about being a carrie of CF, but at the same time you don't want to tell him that news and then tell him you found out because he has a child. I think it would cause more problems.
Smith_003	2/27/2008 6:43:55 PM	Fragile_X	I think that any abortion is wrong. Esspecially if the the fetus is still healthy, I don't think anyone, even the mother has the right to take someone's life. As far as the mentally-disabled fetus I again think that no child should be aborted. Even though the child life as well as the parents are going to be a little more difficult, I don't believe that gives someone the right to end the child's life. I know this has a lot to do with the pro choice situation, but I think that if your willing to have sexual relations with someone, you are also taking the risk of having a child whether it is a healthy fetus or not. I think that every child has the right to live and it is not someone choice whether or not it has the right to live.
Visitor	2/26/2008 9:30:42 PM	Fragile_X	No, if she will not abort for one reason why for the other. This women needs to know that every child is a gift from GOd. She is trying to look out for the sake of her child, but she should not kill it for carrying a gene.
Visitor	2/26/2008 9:28:40 PM	Private_Woman	This is a very hard descion, but it is said that if others lives are in danger they have the right to tell. This women needs to get help for her and her family. If this was me I would tell them for they could get checked and for I could do what ever it took to stay with them. It is selfish and un-motherly to not want to prevent harm from your children.
Visitor	2/26/2008 9:25:20 PM	Ignorant_Husband	I believe that the mother should be told privately, but given the decsion to tell her husband or they will tell him. I believe that this situation is very hard, but maybe the husband might have known. I do believe that the father of the child with CF should be contacted for he and his spouse can know if their future child will be at risk for having the disease.
Smith_003	2/26/2008 9:00:27 PM	Fragile_X	I do not think she should abort the healthy fetus. Her daughter will be healthy. It is not her right to make her daughters decision for her, even if that decision will be made many years in the future. Who knows, in the future, there might be a cure for the syndrome. However, I do believe the mother has the right to abort the mentally-disabled fetus as long as the father is in favor. If her decision is to abort the fetus, it goes against my beliefs, but yes, she does have that right. I think that if she is a loving mother, she will love her child regardless of what disabilities they may have and give them the gift of life.
Smith_003	2/26/2008 8:47:36 PM	Private_Woman	Unfortunately, I do not believe that the genetic counselor is in the position to tell the woman's family with "patient privacy protection" type laws. If I were the counselor, I would have a long discussion about how it is not fair for her family to suffer from the same disease as her and her mother before her just because he is too stubborn or afraid to tell them. If the woman loved her family at all, she would want the best for them, which means she would tell them of her disorder and have them tested so they do not have to suffer like her. If I could not convince her, I would advise her to go to psychiatrist in hopes that she will finally realize the right thing to do, tell her family.
Visitor	2/26/2008 8:47:26 PM	Private_Woman	Unfortunately, I do not believe that the genetic counselor is in the position to tell the woman's family with "patient privacy protection" type laws. If I were the counselor, I would have a long discussion about how it is not fair for her family to suffer from the same disease as her and her mother before her just because he is too stubborn or afraid to tell them. If the woman loved her family at all, she would want the best for them, which means she would tell them of her disorder and have them tested so they do not have to suffer like her. If I could not convince her, I would advise her to go to psychiatrist in hopes that she will finally realize the right thing to do, tell her family.
Smith_003	2/26/2008 8:41:06 PM	Ignorant_Husband	First of all, no, I do not believe it is the Testing Center is obliged to tell the father that he is not the biological father. If I were in the Testing Centers position, I would talk to the mother privately. I would tell the mother the test's findings and then I would strongly advise her to discuss the findings with her husband. I believe that it is a personal matter that should be dealt with between husband and wife, not externally. Secondly, while in the private discussion with the mother, I would notify her that we discovered that the biological father is also a CF carrier. I would then tell the mother that we believe it is in his best interest that the father is notified that he is a CF carrier. The genetics counselor would notify the father regardless, but we just want the mother to be aware of it as well.
Wyatt	2/26/2008 8:13:43 PM	Fragile_X	I believe a woman has the right to choose. Just because her morals are not the same as yours does not mean you can stop her from doing what she thinks is right. She believes she is doing the right thing by preventing further spread of this gene, and to an extent she is. However, there should be limits. She should only be allowed so many health fetus abortions and so many unhealthy abortions. After a while you have to face the facts that you are either going to have a child with the gene or defect, or not have a child at all.
Wyatt	2/26/2008 8:07:53 PM	Private_Woman	The counseling center does not have the right to disclose information to the people they did not test, unless their name is on a list approved by the person being tested. They would face legal charges. Their best bet would be to try to convince the lady to tell her family. Plus, with frequent screenings, her family may eventually figure it out on their own. Maybe the lady will grow up and realize she is putting her family at risk.
Wyatt	2/26/2008 7:58:05 PM	Ignorant_Husband	I believe both the mother and supposed father should be told. It is not the Testing Center's responsibility to consider morality. They should reveal all information gathered in the tests. It would be best to tell both parties seperately. The father may already know, or have at least some idea, that he is not the biological father. Also, the couple needs to know that they are at risk after all.
Smith_003	2/26/2008 6:03:32 PM	Private_Woman	This one is kind of tough. I think that even though I think that the mother is being selfish, I think that they should stick with her wishes and not tell the family. I would try to persuade the mother to reconsider just because the life span of her children are at a risk of being greatly shortened. I'm sure that she doesn't want her children to die as young as her mother did. I don't really know the treatments of the this particular cancer but I don't understand why she wouldn't want the support from her family, especially her husband. But like I said that you should deal with the one patient and not make it a family matter. I think that they shouldn't tell the family, even though it would be hard not to.
Smith_003	2/26/2008 5:38:14 PM	Ignorant_Husband	I actually was just watching a show with a similar conflict as this one. I believe that the husband should know. The husband has a right to know that he is not the father of the child. I think that they should tell the wife first in private to let her know the information that they recovered from the test. I think it is the right of the testing center to tell the father without the wife's consent. I think that they should first try to get the wife to tell him just so that it comes from her and not a total stranger. I think that the real father should be told as well. I think that the couple should ust let him know that he does have a son. Whether or not the real father is in the childs life should be left up to the couple.
Smith_003	2/26/2008 12:08:52 PM	Fragile_X	In some states it is not illegal for abortion, rather if its from not wanting a baby at that time. I believe abortion is cowardless. Yes the child may be infected with Fragile X Syndrome but it doesnt mean that they should not live thier life. Also it is not 100 percent sure that the child will be mental. The women should have either child, if she doesnt want them there is always adoption.
Smith_003	2/26/2008 12:03:26 PM	Private_Woman	The private women is not only putting her life in danger but also her children. The women has not yet been diagnosed with cancer and can still get checked up on to recieve the removoal of growths in the colon. The genetic doctor is not allowed to relay this information on to the family memmbers but what does it really matter if you can save lives. Not being aware of this condition is what can kill you.
Smith_003	2/26/2008 11:57:29 AM	Ignorant_Husband	Not only is the main male figure not the biological father but also is not a CF carrier. I believe that the husband should be told about not being the father of the child. Because of right now he believes he is a carrier of this disorder and is the biological father. The mother should not be told privately because if she was the only one to know then she might keep the information to herself. Also the genetic doctor should inform the biological father about the situation.
Wyatt	2/25/2008 10:24:40 PM	Fragile_X	I do not believe she should be allowed to abort regardless of the results of her tests. She has the option of not getting pregnant at all if she doesn't want to take the chance of having a child with this gene. She could look into the options of adopting instead. There are many unwanted babies out there that don't have anything wrong with their genes other than having parents who can't care for them or don't want them.
Wyatt	2/25/2008 10:19:28 PM	Private_Woman	Due to HIPPA federal government regulations the family can not be informed of the test results, but because the family does know of the death of the women's mother and the cause; they should be informed of early signs, symptoms and screenings for colon cancer at an early age.Due to an increased risk with a family member having a history of colon cancer this would put them at a higher risk also regardless of what the woman's test results are.
Wyatt	2/25/2008 10:07:56 PM	Ignorant_Husband	The husband should be told there is no risk of the couple having another child with CF.
Smith_003	2/25/2008 10:05:20 PM	Fragile_X	i think she should not abbort the baby at all no matter if it is going ot be healthy or not. she is the childs mother and should love her child with her heart and take care of it. because who knows...maybe she could have the baby and it not be healthy but one day they find a cure for the disease and are able to cure it.
Smith_003	2/25/2008 10:01:27 PM	Private_Woman	yes the entire family should be told that they are at risk for having a disease so they can stop it from getting worse. i would want to know if i was at risk for having colon cancer, and the family should be told as well.
Smith_003	2/25/2008 9:58:23 PM	Ignorant_Husband	I think the husband should be told that he is not the biological father and also that the biological father is a CF carrier. i think he should also know that he is not a carrier so that they can have a safe child together.
Wyatt	2/25/2008 6:12:08 PM	Fragile_X	No she should not abort either fetus. I don't think it would be right not to give the child a chance to live. If not, she might not know what she is missing out on, and it would not be fair to the child, to not have a say so. The fetus's should not be aborted.
Wyatt	2/25/2008 6:09:51 PM	Fragile_X	No she should not abort either fetus. I don't think it would be right not to give the child a chance to live. If not, she might not know what she is missing out on, and it would not be fair to the child, to not have a say so. The fetus's should not be aborted.
Wyatt	2/25/2008 6:07:14 PM	Private_Woman	No they should not tell the family. I would like to say they should, but because it is an invasion of privacy I have to say no. If this lady dies from this I would then tell the rest of the family of the news.
Wyatt	2/25/2008 6:04:45 PM	Ignorant_Husband	I think that they should send the tests to the family and let both of them see the results. If he is too dumb to realize what the tests are saying, thats his fault. If the mother doesn't want to tell him, that is between them, but I would make it clear in the document that they don't have to worry about their next child and let the rest take care of itself.
Smith_003	2/25/2008 5:16:57 PM	Private_Woman	This condition of Familial Adenomatous Polyposis, deals with cysts on the large intestines. It's a serious disease, and you can die young from it. This situation deals with a 30 year old woman who wants to keep her disease to herself, I think this is selfish. She wants to keep this condition private, for what reason I don't understand. Her mother died of colon cancer of age 32. This is only 2 years older than what this woman is now. She knows that it is a genetic factor, yet she is trying to overlook it. Because of the right to privacy in the society we live in today, I do believe that it is the woman's options of sharing the results, considering she is the one who got tested and knows. I think the rest of the family should have some common sense and want to get tested just in case. They saw this woman's mother have it, so they should initially think that there is a small chance it could be a problem with their health too! I don't think it is the genetic counseling center's place to tell the family about this disease and warn them of their chances of having it, but it is the responsibility of the woman to warn her family. She should be talked to by a doctor. The patient privacy protection pretty much knocks out the chances of just randomly telling the family about this disease for their own sake, it's like exposing this 30 year olds secret, which they can't do. Where this doesn't seem fair, it's what the law says. She should be talked to very seriously about the health of the rest of her family, and be convinced about the rest of the family's heritage and their risk of this disease.
Smith_003	2/25/2008 5:08:11 PM	Ignorant_Husband	Dealing with this situation, I had to look to see what this disease is all about, to see how serious it is. I found that Cystic Fibrosis is a heredity disease that affects the lungs and digestive system. Cystic Fibrosis can be found at birth by genetic testing, so it can be found really early. However, There is no cure for CF, but lung transplants are usually necessary. Most individuals with cystic fibrosis die young. Most patients lose their life within their 20s and 30s from lung failure. I believe that the husband has every right to know about the parenting problems. I do think that the woman should be consulted first, simply because the husband didn't get the tests run, it was an accident. I think that this situation is more of a personal problem with the woman but it also a big health issue with the doctors. It deals with a child's life, but you have to remember that it was an accident. If this would have never been found out, they would have never known. Regardless, it's a health issue to be told. They should consult the woman first and explain the situation, and let her decide how to tell him. Whether the doctors tell him, or the woman herself, it must be done. It could determine a lot of things that deals with the upbringings of more children and their home life in general.
Smith_003	2/25/2008 3:06:47 PM	Fragile_X	This is very difficult because I do not like the idea of killing any kind of fetus, but thankfully I am not in the situation. Personally, I do not really like the medical power we now have to see in advance how our baby might turn out and destroy it beforehand. But I guess there are several cases where the technology could be helpful and this may be one of them. I do not feel comfortable making a decision like this one because I feel it is very personal.
Smith_003	2/25/2008 2:55:35 PM	Private_Woman	The situation is difficult and I do not understand why the woman does not want her family to be tested. I guess the genetic counseling center is not allowed to break the patient privacy protection, but maybe they could talk to the woman some more to maybe change her mind.
Smith_003	2/25/2008 2:50:56 PM	Ignorant_Husband	I think the mother should be contacted privately first about the non-paternity finding. Maybe a counselor could convince her to tell her husband herself. If she decides to not tell him and even if she does not wish for him to find out, I think the counselor would be obligated to tell the husband that he is not the biological father. And I also believe the husband should be told that he is a CF carrier so he will know for the future.
Smith_003	2/25/2008 11:57:41 AM	Fragile_X	I do not believe that the woman should have the right to abort the healthy fetus. If the daughter that she has turns out to be fine (although she would be a carrier) then how sad would it be to have once thought that her own mother almost terminated her own life just because she thought that her daughter might spread the Fragile X syndrome down to her children. The decision to have children would be up to the daughter. The mentally-disbled fetus is a little different though. If the situation is sever enough and the child would never have an even semi-normal life and the child would basically just be a vegetable, then I can understand a mother wanting to prevent the pregnancy from taking place. This would save the child from pain and heartache that they would ultimately face everyday.
Smith_003	2/25/2008 11:51:55 AM	Private_Woman	This is a difficult situation to deal with. However, the mother should at least reveal to her husband this information so that in case she dies due to a malignent polyp in her colon at a young age he will then be able to share with the family the cause and will be able to then know of the family's history. If the mother fails to mention this information to anyone this condition can continue to effect the rest of the family members by sneaking up on them and potentially killing them when all they had to do was recognize the symptoms and potentially get treated or checked regularly to prevent the same conditioning to happen again to them.
Smith_003	2/25/2008 11:46:44 AM	Ignorant_Husband	I believe that all parties should be told all of the information. This way there are no more miscommunications. Because if the biological father knows he is a carrier that may prevent the possibility in his future for having a child with CF. The husband should be aware for the obvious reason; however, depending on how he takes the information might result in him and his wife getting a divorce. I feel that the mother should be the first person to hear the news so she can prepare herself on how to break the news to her husband and know how to deal with the biological father as well. I mean if the mother hypothetically had aids then she would be forced to tell both parties to prevent the spread of the virus-by informing all parties of the new information this may prevent the biological father from having children in the future so that he wouldn't "create" another child with this terrible disease.
Smith_003	2/25/2008 11:19:46 AM	Fragile_X	No she does not have the right. You put your self in the baby shoes, and it wants’ to live and because you kill your baby because of the conditions don’t mean others will. So she needs to have the baby and let it make its on decisions in life.
Smith_003	2/25/2008 11:16:16 AM	Private_Woman	The rest of the family needs to know what’s going on. I thank the whole family need to be tested for this same condition. It’s the mother responsibility to protect her family and they need protection from this condition it only right for them to know.
Smith_003	2/25/2008 11:12:24 AM	Ignorant_Husband	I thank that the Husband need to be told. But the testing center needs to let the wife tell her husband. If he been in that child life that long already, then in wont matter to him. The mother should be told privately so she can be prepared for the shocking news.
Smith_003	2/24/2008 10:37:24 PM	Fragile_X	Despite the fact that I believe that a woman has the right to choose, on a personal level I don't believe she has the right to abort any of the potentially affected children. She knows from the start that if she wants to have kids, that there's a good chance that he/she will contract it. If she doesn't want a child affected, she shouldn't have biological children.
Smith_003	2/24/2008 10:34:11 PM	Private_Woman	They should not tell the family that she has been diagnosed, once again it's not their place. But they do need to let her family know that they, along with her, have a really high risk for familial adenomatous polyposis.
Smith_003	2/24/2008 10:30:44 PM	Ignorant_Husband	I believe that they should only tell the mother that the results show that the husband isn't the biological father. It's not their place to get into private matters with patients. However, they can let the couple know that they aren't ar risk for having another child with CF.
Wyatt	2/24/2008 10:03:11 PM	Fragile_X	I strongly think that she should not have the right to abort either of the fetus. If she does not wish to care for the child she should consider giving it up for adoption.
Wyatt	2/24/2008 9:54:49 PM	Private_Woman	I do not think that the counseling center should disclose the test results to her family, she may think that she doesn't have much time to live and that she wants to spend the rest of her life normally.
Wyatt	2/24/2008 9:50:35 PM	Ignorant_Husband	I think that the husband should be told because it is not right for the Testing Center to withhold that information. Plus the husband should know that the child is not his. I also think that the biological father should be contacted so that he will know for his next child.
Smith_003	2/24/2008 7:01:15 PM	Fragile_X	No she should not abor the carrier/heathy fetus. If the baby is perfectly fine then there is no excuse to abort it, just because it is carrier. I mean she is a carrier as well and her mom did not abort her. She should not abort the mentally-disabled fetus either because everyone should get a chance to live a life.
Smith_003	2/24/2008 6:58:17 PM	Private_Woman	yes they should tell the family. They have to warn her family because they are the people tha will be taking most care of her. Plus she has daughters which are at high risk of gettin colon cancer since their grandma had it.
Smith_003	2/24/2008 6:55:58 PM	Ignorant_Husband	Yes, they should tell the father...because if he doesn't find out now he never will. And if one day he does find out he will wonder why he wasn't told earlier.
Wyatt	2/24/2008 3:59:33 PM	Fragile_X	It is her decision in both cases and one she will have to live to face for the rest of her life and all eternity - whether it be with regret or relief. However, were I in her shoes - I certainly would not even consider abortion. That's why I opted out on all those fancy unrequired tests w/ my pregnancy. I've heard of ppl being told that their child is down syndrome or etc. and suggested by the doctor to abort, but then these faithful parents carried on and gave birth to perfectly healthy children.
Wyatt	2/24/2008 3:56:24 PM	Private_Woman	I think the center should adhere to their patient privacy policies for legal reasons. However, they should strongly encourage the woman to tell her family, as they are at high risk as well. Perhaps the center could adopt an anonymous way of informing her family members? Just a creative thought. Seems to me if she really cared about her family though, she would tell them!
Wyatt	2/24/2008 3:54:04 PM	Ignorant_Husband	NO - I think the mother should be told privately. And, that the test center should only tell the non-biological father that they are not at risk for having another child with CF, nothing more. It should be at the mother's discretion to inform the man that he is not the child's father, but hopefully she does this. If the mother decides to contact the child's biological father, then perhaps then she can inform him that he is a CF carrier. It is really a personal matter in my opinion.
Smith_003	2/23/2008 1:03:20 PM	Fragile_X	Absolutely not because while she does not have to patients and will to handle such a child, her daughter may be blessed with the ability to care for a child with Fragile X Syndrome.
Smith_003	2/23/2008 1:01:02 PM	Private_Woman	Even though the family has the right to know, the woman still has the right to confidentiality, so no, the counseling center should not disclose the woman's test results to the family.
Smith_003	2/23/2008 12:55:57 PM	Ignorant_Husband	Yes, the counselor should tell the husband. The husband has the right to know that the child is not his.
Smith_003	2/22/2008 8:23:31 PM	Fragile_X	I do not think she should abort the healthy fetus. The decision should be passed down to the carrier in any situation. It is completely unfair for the female fetus to be aborted because she may one day feel differently about this situation than her mother does. I do however think it is fair for her to abort the mentally-disabled fetus. It takes a strong parent to unconditionally love a child with mental retardation because they usually feel as though it is their fault the child is like that. If she is the least bit hesitant, it would ultimately affect the childs life forever.
Smith_003	2/22/2008 8:17:38 PM	Private_Woman	This one is extremely tough. I think the decision to tell her family should be left to the woman. Although they could possibly share the same condition, it is comforting for her to pretend there is no problem with her family. Eventually the family will find out about her condition, so until then, let her fulfill her fairy tale life that she craves so badly. After receiving terrible news like that, the only thing you want to feel is normal and telling her family would change that forever.
Smith_003	2/22/2008 8:11:26 PM	Ignorant_Husband	I believe that they should first discuss the situation with the wife. The devastation will be too much for them to both handle at the same time. The wife is clearly the one with the answers to who's child it would be, so talking to her first would be a smart move. But the counselor should without a doubt tell the husband.
Smith_003	2/22/2008 2:33:16 PM	Fragile_X	Yes. The woman should have the right to abort the healthy fetus. It's her own decision and yes this may affect her future daughter but she is doing it for the right reason. Its likely that the daughter will be happy she did it. She is saving a struggle that her daughter may have with mentally-disabled fetus.
Smith_003	2/22/2008 2:29:12 PM	Private_Woman	Yes I think they should tell the family. This is a selfish act of the woman. I think the counsleing center should test the rest of the family in order to save more time living. The family deserves to know of this condition. Anything that can portray to someone elses life needs to know.
Smith_003	2/22/2008 2:25:18 PM	Ignorant_Husband	I strongly belive that the father and mother should be told. The counselor's should not tell them seperatly. It's not fair to the child as well as the father. It's the mothers fault, she did it to herself. This situation would not occured if she hadn't cheated in the first place. The genetic counselor shouldn't tell the biological father. If the mother wants him to know then she can tell him.
Smith_003	2/22/2008 11:42:22 AM	Fragile_X	I believe she should have the child either way. Abortion is wrong, and shouldn't be tolerated in this country, or world anymore.
Smith_003	2/22/2008 11:40:25 AM	Private_Woman	If the 30 year old woman loved her family, then she would tell them about their possible risk of having the same condition that she has. So I think that she should tell them, and if she doesn't, the doctor should call some of the family members in himself and have them tested. It wouldn't be fair to the family if he didn't.
Smith_003	2/22/2008 11:31:35 AM	Ignorant_Husband	Yes. They should tell the husband the truth, and that he is not the biological father of the child.
Wyatt	2/21/2008 8:57:58 PM	Fragile_X	I do not think she should abort anyone. I do not not think abortion solves any problems unless the mother will otherwise die. Abortion should not be an option here.
Wyatt	2/21/2008 8:54:33 PM	Private_Woman	I think the counselors should be able to insist on family testing in such situations. They goal is to keep people healthy.
Wyatt	2/21/2008 8:49:05 PM	Ignorant_Husband	I think it is the counselor's obligation to relay the outcome of the test. What the mother has been doing or the husband's reation to the information is not the counselor's concern. However, they should recomend that the biological father be informed that he is a CF carrier
McDaniel_006	2/21/2008 11:39:30 AM	Fragile_X	I don't think that anyone should have an abortion reguardless of reason. The way I look at it is that if God wanted you to become pregnant and have a child with any sort of disability then that is the way it should be. If that is the case then obviously He had a lesson that needed to be taught and learned!
McDaniel_006	2/21/2008 11:36:32 AM	Private_Woman	This situation is very similar to the oblivious husband because it impacts so many lives. What I don't understand is why the woman would not want to tell her family since the condition is hereditary. So I would have to say that the counseling center should disclose the information to the family even though it is against her wishes.
McDaniel_006	2/21/2008 11:32:54 AM	Ignorant_Husband	I don't think that the counselor should tell the husband, but speak to the mother in private. It should fall on her shoulders to tell her husband that she was unfaithful. But at the same time, I think that the child should know the truth as well.
Wyatt	2/20/2008 9:49:13 AM	Fragile_X	I think it depends on the situation of the woman. If she is not willing to have a child that is mentally-disabled then she probably should not be a parent in the first place. I believe she should be able to have an abortion because it is her choice, and secondly if she were to have an unwanted child there probably wouldn't be much care for the child that needs extra care. As far as the carrier fetus, I think it would be a horrible decision on her part to have an abortion but again I go back to it is her choice.
Wyatt	2/20/2008 9:44:12 AM	Private_Woman	Due to the patient privacy proctection laws, the counseling center cannot tell her family nor anyone else, but I do think they should stongly advise her to tell them to protect others in her family.
Wyatt	2/20/2008 9:41:08 AM	Ignorant_Husband	I believe that the mother and husband both should be told, because as the child gets older characterisitcs could come out that do not match up with the present "father" and everything could later come out being more of a problem, then to let it out now and be forced to face the truth.
Wyatt	2/18/2008 9:54:14 PM	Fragile_X	Personally, I do not believe it is our right to destroy 'life' ... I believe God gives purpose to all of His creations. So, I would encourage the mother to have her baby and trust that she will love him/her and God will give her the strength and the means to handle what comes her way.
Wyatt	2/18/2008 9:47:33 PM	Private_Woman	I feel this situation could turn into a matter of life and death. Therefore, despite privacy rights, the center has a moral obligation to inform the family of their potential disease. I certainly would want to know, ... witholding that information could become an unforgivable mistake.
Wyatt	2/18/2008 9:39:53 PM	Ignorant_Husband	I feel the center should share the disturbing news with the mother only ... it is then her ethical responsibility to tell the husband. It is then also the mother's responsibility to tell the child's father about the test results. She has to do what is right ... and, God willing, things will work out:) I hope.
Smith_003	2/18/2008 1:20:12 PM	Fragile_X	Yes I think she should abort both of the healthy fetus carries and the mentally-disabled fetus, because she should do what is best for her daughter.
Smith_003	2/18/2008 1:18:32 PM	Private_Woman	I think that they should not tell the family, however, I do think that the lady should tell her husband and the rest of her family, and she should try to get treatment for it.
Smith_003	2/18/2008 1:16:57 PM	Ignorant_Husband	Yes, I think they should tell the husband is he is not the biological father and the he is also a carrier of the CF, because it is his right to know about all of that.
Visitor	2/16/2008 5:17:57 PM	Fragile_X	I definitely do not think that she should abort the carrier/healthy fetus. If there is no way that that fetus will be affected then the baby will be fine, it will just be a choice of that person later in life to make about their child. This mother should not be able to kill a healthy fetus for that reason. Personally I think that she shouldn't be able to abort the mentally-disabled fetus either, but I believe that is up to the law to make that choice. If she didn't know it was going to be mentally-disabled she would want it, so just because she thinks there is something wrong with that why should she be able to take it's life?
Smith_003	2/16/2008 5:13:03 PM	Private_Woman	I am not sure of all the legal background of this situation but from a moral standpoint, it would only be right to inform the family of the condition. They are all at risk of cancer and if the woman holds back this information than they could be at risk of death. I think the company would be in more trouble for holding back this information than they would be for breaking the patient privacy protection plan. I think it is the testing center's right to tell the family since the genes are technically part of the rest of the family's heritage.
Smith_003	2/16/2008 5:06:46 PM	Ignorant_Husband	I think that although this is a very sticky situation, the Testing Center has no choice to withhold information from the husband or the father. I think that they should contact the mother and tell her of the findings and tell her she should talk to her husband and the father about it and that the Testing Center is going to call the father to talk to him about the results that he is a CF carrier. They should give the mother time to talk to the father and husband and then should call the father and tell him that he is a carrier. If the husband comes in with the mother they should not tell her privately because it is both of theirs child. The husband and the father should be told.
Wyatt	2/14/2008 1:57:39 PM	Fragile_X	I don't think that either should be aborted because I don't believe in abortion. You take your chances and you get what you get but you shouldn't play God with other lives.
Wyatt	2/14/2008 1:54:58 PM	Private_Woman	Yes, because even though one person's privacy will be violated, a large number of lives could be saved.
Wyatt	2/14/2008 1:52:20 PM	Ignorant_Husband	Yes, they should tell the husband and the biological father should be told as well.
Wyatt	2/14/2008 4:59:13 AM	Fragile_X	She should not abort the healthy fetus. I would not abort either fetus. However, if the mother feels that the mentally-disabled fetus will be more than she can handle, or the potential child will not have a good quality of life then aborting would most likely be her best option. This woman should take steps to ensure that she can no longer become pregnant. She has a responsibility NOT to pass this gene on.
Wyatt	2/14/2008 4:48:26 AM	Private_Woman	I cannot understand why the woman would want to keep this a secret from her husband and family. The testing center has no responsibility to tell the woman's husband if he is not at risk. However, they do have a responsibility to tell her family because they are at risk. This information could save lives!
Wyatt	2/14/2008 4:39:11 AM	Ignorant_Husband	The counselor should speak with the mother first. The mother should be encouraged to tell both men the truth. If the mother decides not to tell the men, then the counselor would need to contact the biological father. It is the mother's responsibility to tell her husband. The testing center has no responsibility to tell the husband because he is not a CF carrier.
Visitor	1/28/2008 9:45:55 PM	Fragile_X	No. She should not abort any fetus at all.
Visitor	1/28/2008 9:44:08 PM	Private_Woman	Yes. Thje genes information is shared by the entire family regardless of the wopman's wishes
Visitor	1/28/2008 9:41:59 PM	Ignorant_Husband	Yes
Visitor	11/14/2007 2:41:25 PM	Fragile_X	yes because she is trying to save the life of her future daughter and don't want her child to have to grow up and be made fun of.
Visitor	11/14/2007 2:39:29 PM	Ignorant_Husband	Yes, they should all be told who is a carrier of CF and who is not. The non-biological father should be told that he is not a carrier of CF, just in case he wants to have another child with this woman. Because if he wants to have another child and decides not to because he thinks he has CF, that is not fair to him or the child him & his wife might produce. The biological father should be told because he needs to stop this affair with the mother before they have anymore CF children.
Visitor	11/14/2007 2:37:13 PM	Private_Woman	yes because if she has the condition and it is genetics then maybe her kids might have the chance of getting colon cancer or the sympthoms
Visitor	11/14/2007 2:32:46 PM	Ignorant_Husband	yes i think that the husband should know because if he is doing all these things for this child and its not his then i would want to know. The mother needs to know first before the husband finds out. i think that she should be the one to tell him
Visitor	11/14/2007 2:32:00 PM	Ignorant_Husband	Yes, because the child might be carrier for Cystic Fibrosis and you need to be inform if the true biological father has the recessive disorder
Visitor	11/14/2007 1:54:49 PM	Private_Woman	yes, I do think that they should inform the family because not only do the have the right to know, but also that the kids themselves could be at risk.
Visitor	11/14/2007 1:47:02 PM	Ignorant_Husband	yes, because he has the right to know anything that they find out about him, even if he is not the father of the first child.
McDaniel_007	10/23/2007 11:53:29 AM	Fragile_X	yes.
McDaniel_007	10/23/2007 11:52:50 AM	Private_Woman	yes they should be informed.
McDaniel_007	10/23/2007 11:51:27 AM	Ignorant_Husband	the mother and father should be told seperetly and then grouply and then given information on family councling. the doctor who was the Point of contact should notify both
Wyatt	10/12/2007 9:47:13 PM	Fragile_X	Unfortunately, this comes to light the right to life or prochoice issues. Whereas, I feel that a woman should take into consideration all avenues prior to aborting any fetus I also believe in this country for each person to make their own personal choice in the matter. If I was in the same situation I would not make that choice. So technically she should have the right. I don't feel that she should abort the fetus, but again I cannot make that decision for her. The mentally-disabled fetus needs to be a family decision based on the several factors such as ability to care, family life etc. This is one of those tricky areas where if I was faced with the same decision I would need to consider if I was making the right decision for all involved. It would not be just me taking on this addtional responsibility but potentially many other tax payers. So I am going to cop out on this one and say I don't know and I hope never to have to make this type decision
Wyatt	10/12/2007 9:42:22 PM	Private_Woman	I believe the patient privacy act does not allow the doctors to seek additional clients. In a time where AIDS is still lurking the doctors can only request the individual divulge their associated partners but cannot contact them without permission. I would assume this above scenario, legally would need to be done the same way. The person going to the doctor "owns" the information. I would also feel that the person visiting the doctor should feel enough personal responsibility to let her family know so they can take the appropriate precautions, if she doesn't than I feel she is not compassionate to the "greater good"
Wyatt	10/12/2007 9:38:29 PM	Ignorant_Husband	I purpose of the test is to determine the chances of having another child with the same disorder and that is what the doctor needs to address. the question from teh parents weren't of paternity or lack thereof, so unless that question is raised I find it irrelevant to visit. I don't feel the testing center is hiding anything; however, they are following the legal boundries of confidentiality. The biological father should contacted in order to promote any necessary treatment required.
Wyatt	10/12/2007 5:15:58 PM	Fragile_X	I do not think she should abort EITHER of the fetus, especially the carrier/healthy fetus. Like said, that is the decision of the future daughter to make for herself and her children not the mothers. With growing technology and medicines who knows what could help a mentally disabled person in the future. It to me says that the woman is selfish, rather than actually looking out for the future of the child. You never know what the future might hold.
Wyatt	10/12/2007 5:11:04 PM	Private_Woman	I think the family should be told that colon cancer is common to their heritage and that they have the option to be tested for the medical condition. I don't believe it is going against the woman's privacy to let the family know that they all share the gene that puts them all at high risk of developing colon cancer. If the family knows their options, then they can decide what to do.
Wyatt	10/12/2007 5:05:02 PM	Ignorant_Husband	I believe that they should tell the mother privately and let her decide on whether or not to approach the husband. If he is not willing to contact the Center for testing, then he shouldn't be contacted now. The husband is not witheld any information if he CHOOSES to not be tested for the CF gene.
Wyatt	10/12/2007 4:22:27 PM	Fragile_X	I feel that abortion is wrong period. I think that she should definately not be able to abort a perfectly healthy fetus just because it is a potential carrier. Like it says above, she is making the decision for her potential daughter. I also feel that she should not abort the mentally disabled fetus either. It is not fair to abort this child when it is capable of living a life and being loved.
Wyatt	10/12/2007 4:19:55 PM	Private_Woman	Wow, this is a tough one. I do believe that her information is her own business and to be kept private. However I cannot believe that she would want to keep it a secret from her husband and especially her children who could eventually get the same disease. However I do feel that she owns the information, and the doctor is just the one that diagnosed it.
Wyatt	10/12/2007 4:15:46 PM	Ignorant_Husband	I think that the genetic counselor should tell the couple together. They had the child together therefore the information is important for each of the parents. The genectic counselor however could tell the wife in private that the baby is not her husbands and leave it up to the wife to tell the husband. Ultimately I think it is only fair for the husband to know.
Wyatt	10/12/2007 2:09:45 PM	Fragile_X	She should not be able to abort the carrier fetus, but she should be able to abort eh mentally disabled fetus. Jus because the carrier can pass it on doesn't mean that she will.
Visitor	10/12/2007 2:08:09 PM	Private_Woman	Yes they should tell the family because their health is at extreme risk. They could develop cancer if they do not know what to look for.
Visitor	10/12/2007 2:06:40 PM	Ignorant_Husband	I think that the mother should be told in private and it is her discretion if she tells the father. The counselor should contact the biological father to let him know the risks if he has another child.
Wyatt	10/11/2007 9:30:36 PM	Fragile_X	Yes, she has the right to abort but once the fetus has been formed regarless of a healthy or mentally disable it is now out of her hands.
Wyatt	10/11/2007 9:23:48 PM	Private_Woman	It is my thought that the woman is not of sound mind. The HIPPA act has detered more than help in the circumstance that involve pertinent information. I'm sure that there must be some creative way to inform the family of this family medical trait.
Wyatt	10/11/2007 9:11:49 PM	Ignorant_Husband	The non-biological father should not be told about the non-paternity. His question is not if he is the father but what are the chance their offspring having CF. The biological father should not be told as he did not ask.
Wyatt	10/11/2007 4:27:10 PM	Fragile_X	This is a difficult decision. I understand wanting to abort any fetus affected with the syndrome. She doesn't want her child to have to suffer for however long their life may be. The mental, physical, and emotional problems of having a child of mental retardation may have seemed too great for her to handle. I do not support her decision to abort any female fetus carrying the gene. She should allow her daughter to be born and make that decision for herself. After all, if her mother had made that choice she wouldn't have been born. Aborting a mentally disabled fetus and a carrier fetus are two different situations and she should realize that.
Wyatt	10/11/2007 4:23:27 PM	Private_Woman	The genetic counselor should follow patient confidentiality. As hard as it may be for them, they took an oath when recieving their licenses. The mother may want to protect herself from judgement or pity, but perhaps the counselor could attempt to pursuade her to the fact that she could possibly be putting the rest of her family in danger by not informing them of the possibility that they could have this condition. The person who own's the genes owns the information in them, despite the shared heritage. The best that the counselor could do would be to encourage the woman to inform her family and hope for the best.
Wyatt	10/11/2007 4:20:36 PM	Ignorant_Husband	I think that the mother should be told about the findings. She probably already has knowledge of the fact that her child is really another man's, the center will only be confirming that. Then she can make the decision whether or not to tell her husband. It is not the place of the testing center to tell the husband and possibly ruin a marraige, but they should tell the mother so that she can get in touch with the child's biological father. The testing center should tell the husband nothing, unless the mother of the child asks them too.
Wyatt	10/10/2007 8:48:35 PM	Fragile_X	I do not believe that she should have the right to abort the carrier / healthy fetus or any fetus. Unfortunately it is her legal right to do so in many countries around the world including the US.
Wyatt	10/10/2007 8:44:31 PM	Private_Woman	They should tell the family nothing until the woman dies. This may be a ressesive trait and the others may not be at risk. The health condition of the patient should be kept secret.
Wyatt	10/10/2007 8:40:06 PM	Ignorant_Husband	The mother and father should be told about the fact that there is no chance that they could produce a child that will have CF. Then answer any questions they may have.
Wyatt	10/8/2007 7:29:58 PM	Fragile_X	It is her choice by law
Wyatt	10/8/2007 7:28:53 PM	Private_Woman	Nothing, privacy laws forbid it. Also if the Children know their maternal grandmother died at an early age that is already a strong indicator.
Wyatt	10/8/2007 7:27:15 PM	Ignorant_Husband	NOTHING
Visitor	10/6/2007 9:49:51 PM	Fragile_X	I personally am against abortion and I'm against abortion in this case. I feel that alternate alternatives such as adoption should be used in these situations.
Visitor	10/6/2007 9:46:41 PM	Private_Woman	No I believe that the counseling center should maintain confidentiality with the women in question. Privacy in issues like these is critical in my eyes. The woman should care enough about he family to want to tell them and will have to carry the burden of not telling around with her.
Visitor	10/6/2007 9:42:00 PM	Ignorant_Husband	I believe that the mother in this case is responsible for telling the husband. The father should be told the tes results from the clinic, but the mother should ultimately be the one to tell the father what this means.
Wyatt	10/6/2007 11:44:25 AM	Fragile_X	I do not believe in abortion. This woman would have to live with the decison that she makes. I would definitely not abort a female that is a carrier. She should be made aware when she is of child-bearing age that she carries the gene. Again, I could not go thru with an abortion. Special needs children deserve to be loved - it's a human life.
Wyatt	10/6/2007 11:40:18 AM	Private_Woman	First of all, the family should already know that the woman's mother died of colon cancer and that in itself is a risk to the rest of the family. So they should be getting the appropriate examinations as precautions. It is the woman's right to not tell the family, but once she dies of the disease - the family should be told. I don't know how she could keep this from family...
Wyatt	10/6/2007 11:35:26 AM	Ignorant_Husband	The mother should tell her husband he is not the father of the child, not the testing center. Due to hippa laws today, the testing center would not be allowed to release information anyway. Yes, the genetic couselor should advise the husband he is a CF carrier.
Wyatt	10/5/2007 4:48:02 AM	Fragile_X	This is a difficult question. I can see her viewpoint, and if I was in her situation, I would like to think that I would continue with the pregnancy knowing the child would be mentally handicapped. But I'm not sure if I would be able to in reality, knowing what quality of life they would have. I think a woman should be able to do anything she wants, abortion wise. It's her decision. I might disagree a little more however, against aborting the HEALTHY fetus that's a carrier. She might still have a good quality of life. What if it ends up that she never gets married, or can't have children and adopts? There are so many variables, that I would disagree with aborting her.
Wyatt